Vulvar Cancer: Anyone else?

I will have radiation therapy. I checked out the group for that but couldn’t find any posts. Has anyone had experience with it
I also have an infection, which is being treated with oral antibiotics.

Thinking of you!

@kimferguson9968, oh what a sinking thought to feel sure your cancer has returned, again! What symptoms or indications are telling you it's back? ((hugs))

I have had vulvar cancer 3 times. I’m sure it’s back now!! (Appt 11/28! 3 weeks!)
I had a left side full vulvectomy my 1st surgery. The 2 others were areas they cut out! 😢
If you have an questions let me know. Wish you the best!!!

Thank you so much for your reply. I’m sure I will know more after the appointment with the surgeon tomorrow and, hopefully, will be less stressed after I have an idea what the plan forward will be.

I had a radical vulvectomy with sentinel lymph node removal, on both the right and left sides, on September 11. My cancer is invasive. The lymph nodes on the right side showed positive on the PET scan before surgery. The testing of the nodes showed they could only be detected microscopically, however. Due to this, my oncologist said they wouldn’t do radiation now. I have a follow up appointment in December, and every three months going forward.
I know the waiting for your appointment is difficult. I don’t know what the protocol is in your case, but I’ll send good thoughts your way.

I had a radical partial vulvectomy on October 25 and 6 lymph nodes tested/removed. At the time the lymph nodes appeared to be negative for cancer but the later testing on the frozen tissue showed one of the lymph nodes positive with metastatic carcinoma. I have a post surgery appointment with the surgeon and assume she will discuss this finding. Has anyone else had this experience?

In my case, the pain from the biopsies were the worst for the first two days. After that, they were painful, but tolerable. Laying down helped me. I spent most of my time laying on the couch or the bed. Hope you are feeling better today.

Thank you for asking. I am doing as well as expected (lousy area to get a biopsy!). It has been a little over 24 hours and I feel like eating again. My doctor told me the biopsy results should be available on Monday. Dealing with the biopsy site keeps me from thinking too much about why I had the biopsy.

@tally9004, how did your biopsy appointment go? How are you doing?