Vestibular migraine: What symptoms do you experience?

After 6 months, I feel like I am getting worse. I experience a lot of dizziness and lightheadedness. I also have tingles in my feet.

frobvt,
Is it against rules here to exchange phone numbers? I really would love to chat. Each day brings new surprises and i am losing faith in my neurologist..
I get it if you are not comfortable
cmg

My daughter has seen Otorologist, (ear specialist… ruled out crystals causing vertigo), neurologist and even a neurologist that specialized in eye related neuro disorders to rule that out). She suffers from motion sickness even driving short distance and vertigo about every 2 weeks w light sensitivity. Have tried chiropractor and acupuncture. Recently read that even minor car accident could cause the skull to be pushed off center of the cervical spine, which hers is, so trying physical therapy on the neck especially top discs. She takes all the meds listed by others for nausea, odansetron, motion, meclizine and rizatriptan when vertigo strikes.
She tried antidepresant that caused hallucinations! None of the newer meds to decrease frequency of migraines have worked for her vestibular migraines. I would not let a Dr put you on am anti seizure drug (that’s one option they recommend) as my son is on Depakote and it makes him lethargic and unable to concentrate (young adult). If you have taken recent jab I would definitely look into Dr Malone and dr McCullough for ways to detox and allow your body to heal from the effects of that poison… especially of the symptoms started in the last 3 yrs. Healthy eating and clean water can make a huge difference in allowing your body to heal itself. God bless you and guide you.

I have the exact same symptoms and I have gone through the same issues, but no answer. I have done spine rehab etc. Does anyone know the expert in vestibular migraines?

Thanks! I wish I could use medical marijuana and then be able to work. I work at a women's imaging center at a local hospital doing mammograms and bone density. Not sure I'd function properly. lol
I may try it on the weekend to see if it helps. I thought it would increase my dizziness. I sure hope I can get back to myself. I will be a patient as I can possibly be!
My concussion was mild as far as I know. I never vomited however didn't know where I was and was talking jibberish for about 20 minutes.
My son built a zipline in his back yard for his 7-year-old. Nana HAD to try it!!! Fell hard!

Matt,
I had a ton of imaging done before I was diagnosed with vestibular migraines. It included brain MRI, neck MRI, Ct of inner ears. I think your idea of seeing a specialist is a good one. I would start there.
CMG

My neurologist has started me on a low dose of anti-depressants. I am not sure it the right thing. She mentioned there are other meds we can try, and it will be a process of elimination to find the right one.

I realize your post is a long time ago. Your discription of symptoms are similar to mine. My entire face feels burning. Cool to touch. I have a constant ache and pressure in my head. I have not seen a specialist. Any advice you or anyone else can give us most welcome. Thank you. Matt.

@cmg Meclizine helps with some, but can make other types of vertigo worse. I have baclofen and low dose steroids for dizziness from neck issues, which I use rarely (and Klonopin to relax muscles, used even more rarely). Zofran for nausea if that is relevant.

But basically, no meds on a regular basis. If I get dizzy I either wait it out or do exercises. You?

Hi cmg,

Thank you, you're very welcome! When I was 6 months post-concussion, my head still felt like I had scrambled eggs for brains! Sorry to say that, but it's true. It took me most of a year before I started really feeling pretty strong physically, and more like myself. The dizziness did subside after awhile, now it's mostly under control. A slight bit of dizziness comes from the migraines. And I was told that I only had a mild concussion? I don't use prescriptive drugs from a doctor, I use small amounts of medical marijuana for this, and other challenges I have.
Please keep your chin up, things will get better!