Very elevated GDF-15 suggestive of mitochondrial disease

Posted by blaira @blaira, 4 days ago

Hi,

I have many multi system issues with diagnosis of Crohn’s Disease, POTS, MCAS, small fiber neuropathy, migraines.

I had some labs done and I have very elevated GDF-15 which is concerning for an underlying mitochondrial disorder.

Does anyone know how I can find a Dr. to look at this and make a diagnosis?

I am 65 years old and my body keeps failing in one way or another.

Thank you

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John, Volunteer Mentor | @johnbishop | 3 days ago

Hello @blaira, I did a search of Connect and didn't find any other member who had mentioned having an elevated GDF-15 test but I did see an article this year that mentions GDF15 and a Rochester Mayo doctor who may have some experience.
-- Biomarkers of cellular senescence and mobility disability in older adults:
https://www.mayoclinic.org/medical-professionals/physical-medicine-rehabilitation/news/biomarkers-of-cellular-senescence-and-mobility-disability-in-older-adults/mac-20578698.
If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Teresa, Volunteer Mentor | @hopeful33250 | 3 days ago

Hello @blaira,

I found your post interesting, and I wonder what symptoms led to the testing of GDF-15? I have also had some testing, which has shown results of mitochondrial abnormalities. Also, what type of specialists did this testing?

stephencbabcock | @stephencbabcock | 3 days ago

Check out http://www.healthgrades.com
They give rating on doctors from actual patients. They also let you search by "speciality", location, reviews. Or you could try AI, (Chatgpt is the one I like). Just download from your store and ask it questions, then refine questions till you get your information.
Hope this helped.