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Uterine Papillary Serous Carcinoma: What treatments did you have?

Posted by goldengirl2 @goldengirl2, Oct 25, 2018

Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.

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goldengirl2 | @goldengirl2 | Nov 2, 2018
In reply to @colleenyoung "@goldengirl2 you mention "Some provinces use it but others don't." Am I to understand that you..." + (show)
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@goldengirl2 you mention "Some provinces use it but others don't." Am I to understand that you live in Canada?

I read in the abstract of this 2014 study that "vaginal cuff brachytherapy is also of potential benefit in USC" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3984476/
Is brachytherapy the type of radiation being suggested for you?

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Yes I live in British Columbia. They are suggesting WART and along the paa aortic lymph nodes, not brachytherapy. I just finished my last chemo and this may be the next step in January. Adjuvant , like the chemo. I will read the article thank you so much. Knowledge is powere I am finding out the hard way through this whole process of advocating for yourself...

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Colleen Young, Connect Director | @colleenyoung | Nov 2, 2018

I just found this Q&A about uterine papillary serous carcinoma from a Mayo Clinic expert https://newsnetwork.mayoclinic.org/discussion/treatment-for-rare-form-of-endometrial-cancer-can-be-complex/ Might getting a second opinion at Mayo Clinic be an option you could consider?

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Colleen Young, Connect Director | @colleenyoung | Nov 2, 2018
In reply to @goldengirl2 "Would have been stage 1 except 2 paaortic nodes were pos but nothing had leaked out..." + (show)
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Would have been stage 1 except 2 paaortic nodes were pos but nothing had leaked out of them. So stage 3c. As the radiation would be adjuvant and I just finished my round 6 of chemo I am undecided as cant find any data on benefit of it. Some provinces use it but others don't. I guess if the benefits were good then the protocol would be used everywhere. I need a few more answers before I decide. To do that as well. Everything roemoved had no signs of it. Including the pelvic washings. Just those 2 nodes . I don't rad about many survivors so it is discouraging but I remain positive.

Jump to this post

@goldengirl2 you mention "Some provinces use it but others don't." Am I to understand that you live in Canada?

I read in the abstract of this 2014 study that "vaginal cuff brachytherapy is also of potential benefit in USC" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3984476/
Is brachytherapy the type of radiation being suggested for you?

REPLY
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goldengirl2 | @goldengirl2 | Oct 25, 2018
In reply to @colleenyoung "Hi @goldengirl2, It must be a challenge to get information as well as support from others..." + (show)
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Hi @goldengirl2, It must be a challenge to get information as well as support from others when dealing with a rare cancer such as uterine papillary serous carcinoma. I see that @judithvt posted on Connect a while ago about UPSC. I'm not sure if she is still monitoring the discussions, but hope she join us if she is.

@diane060 @mdotsie and others talk about endometrial cancer in these discussions:
- Uterine Cancer with brain metastasis https://connect.mayoclinic.org/discussion/metastatic-brain-cancer/
- Endometrial Carcinoma: Rare, aggressive, hard to treat but don't worry https://connect.mayoclinic.org/discussion/rare-aggressive-hard-to-treat-but-donthe-worry/

GoldenGirl, what stage is your cancer? Will you be getting whole abdominopelvic radiation therapy?

Jump to this post

Would have been stage 1 except 2 paaortic nodes were pos but nothing had leaked out of them. So stage 3c. As the radiation would be adjuvant and I just finished my round 6 of chemo I am undecided as cant find any data on benefit of it. Some provinces use it but others don't. I guess if the benefits were good then the protocol would be used everywhere. I need a few more answers before I decide. To do that as well. Everything roemoved had no signs of it. Including the pelvic washings. Just those 2 nodes . I don't rad about many survivors so it is discouraging but I remain positive.

REPLY
1 reply
Profile picture for Colleen Young, Connect Director
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 25, 2018

Hi @goldengirl2, It must be a challenge to get information as well as support from others when dealing with a rare cancer such as uterine papillary serous carcinoma. I see that @judithvt posted on Connect a while ago about UPSC. I'm not sure if she is still monitoring the discussions, but hope she join us if she is.

@diane060 @mdotsie and others talk about endometrial cancer in these discussions:
- Uterine Cancer with brain metastasis https://connect.mayoclinic.org/discussion/metastatic-brain-cancer/
- Endometrial Carcinoma: Rare, aggressive, hard to treat but don't worry https://connect.mayoclinic.org/discussion/rare-aggressive-hard-to-treat-but-donthe-worry/

GoldenGirl, what stage is your cancer? Will you be getting whole abdominopelvic radiation therapy?

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