Urinary Issues
Since around age 30, I've had urinary issues. No UTI's until my 40's or later.
Problems were slow start, slow and intermittent stream, feeling that the bladder was not empty, IC type symptoms here and there. Basically felt like muscles were weak. Saw urologists, had a couple of cystos and found nothing.
Now some 40 years later, about 2 years ago, I started feeling like I had to urinate after I was finished. The urologist said it was nothing to be alarmed about but going to have a cysto this week anyway.
I have a genetic cancer syndrome from the maternal side and one of the cancers my mom had was kidney. So far, so good unless I have it now.
Anyone experienced these types of symptoms? Interested in what you've discovered, if anything.
Thanks so much.
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I’ve had IC for decades, one of the symptoms of which, as you have noted, is urinary retention. I had multiple hydrodistensions with limited relief. For the last couple of years, my symptoms improved in that I did not have the urgency, frequency, and pain during the day, but I did have nocturia which has severely compromised my sleep. Six months ago I had a urodynamics test after which my bladder suddenly stopped working entirely and I have had to use intermittent self catheterization since then. The urologist has no diagnosis, but my theory is that it’s likely muscle damage. I am presently undergoing PTNS therapy, but I am not optimistic as to whether that will deliver relief. I don’t know whether this helps or not, but I can certainly sympathize with your situation.
After bladder operation a can't pee
Oh no! Hope you've spoken to your doc. That should get better!!!
Wow, I am so sorry for all you've had to endure. I wonder if the urodynamics test affected your bladder or paralyzed it in some way.
Have you considered seeing another urologist or is yours one of the big names and you trust them? Sure hope this reverses itself.
Thanks. My local urologist is a member of Arizona Urology Specialists, which is owned by a private equity firm. Those entities have, shall I say, their corporate priorities. I have not been able to get into Mayo for four years. Every time I knock on the door they tell me that they do not accept new urology patients. Apparently, none of their patients ever die, or are cured! Tomorrow, I fly to San Francisco to see a urologist at UCSF Medical Center. Obtaining healthcare these days is a major obstacle, something. I’m sure you know all too well. Your support is appreciated.
I completely relate, as do most people in these very dark times for reliable, affordable, competent health care. Obviously, I'm not privy to your full medical story and even if I were, I don't have the credentials to offer professional opinions. Having said that, your lack of diagnosis from this "company" along with the questionable treatment is revolting.
What is the deal with urologists? The best one I can find has a reputatin for being surly, has no problem saying "I don't know" when asked what she thinks is causing my issues and changes her recommendations from time to time due, certainly due to pressure from the "company" to sell procedures. For example, initially she told me to just deal with the issues as she felt they weren't serious and urodynamics were just too ardurous. A year later, out of the blue, when I was there for a uti or something unrelated, she tried to sell me a urodynamics package involving some kind of implant. I almost laughed in her face. It hit me then that even physicians have been reduced to salespeople. As you said, "corporate priorities."
I wish you the best in San Fran am so very much hope you get the help you need and it is NOT self-catheterization!!