Undiagnosed after 1.5yrs after many tests and specialists
I get these "attacks" which started suddenly in Jan 2019. I have an attack about once per month and they last from 20min to 2hrs. The days and weeks after each attack I feel like total garbage.I stopped having attacks from Dec 2019 until May of 2020 and now have started again. These attacks normally happen 20mins after eating.
Immediate anxiety, felt like I was going to pass out, dizziness, heart racing and beating hard, hard to breathe, pain/tightness in chest, tremors, arms felt cold, high BP, PVCs so hard they feel ilke I'm being punched in the sternum, and an excruciating pain below my sternum. Immediately after an attack I'm so exhausted I could pass out.
Daily symptoms after an attack :
Constant pain below sternum, PVCs that make me stop breathing for a fraction of a second, loose stools after every meal, hard to breathe laying down, dark stool, muscle pain in arms, pulse felt in stomach.
One of the ED visits they found a hiatal hernia which was repaired by Nissan Fundiplication in Feb 2019 (I also had one in 2007).The day after surgery I felt OK. The following day, 30mins after they gave me food I was passing out from the sternum pain. The opened me back up and saw I had a lot of inflammation. I went 2 months without any attacks after the surgery.
About 2 months later, April 2019 the attacks started again. Many ED trips, extended hospital stays, surgeries, testing, and specialists later no one knows what's wrong.
Starting in June 2020 I also now have what I believe is obstructive sleep apnea. I wake several times a night, sometimes chocking or gasping for air, with my heart racing, dry mouth, and a headache.
I've also had my gallbladder removed, and my Nissan Fundiplication changed to a Toupet Fundiplication. Nothing has helped and all 30+ doctors I've seen has any clue what's going on. I'm trying to get in to see the Mayo clinic next when I found this site and figured I'd try here as well.
My quality of life has greatly deteriorated and I'm in constant pain. Any help or advice would be greatly appreciated.