What Kind of Radiation Did You Get for Your Gynecological Cancer?

Posted by Helen, Volunteer Mentor @naturegirl5, Sep 29, 2022

I was diagnosed with endometrioid adenocarcinoma (Stage 1a, FIGO Grade 1) in 2019. I was treated for a recurrence in late 2021 with radiation therapy. I had 25 external beam treatments and 2 brachytherapy treatments. I'll share more details about the lengthy preparation and the actual treatments in a separate post below.

I know of members here who have had or are going to have radiation treatments. Would you like to share your radiation treatments and experiences with one another? This is a great way to support one another.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for val64 @val64

I'm also having carboplatin-paclitaxel chemo (I've had 4 cycles so far), but I'm not being treated with Neulasta. I also don't have any bone pain. Different people react differently to drugs, but to me this suggests that the Neulasta may be the culprit for your bone pain. Along with the chemo, I'm also getting Emend through the IV, along with pills of dexamethasone, Pepcid, Zofran, and benadryl. (I think that's everything.) They didn't tell me to take any other drugs afterwards other than laxatives or Pepcid/Zofran if necessary. My blood counts are dropping (all of red, white, and platelets), and the nurse practitioner said that if these keep getting worse, they would do a transfusion with the next cycle. Yuck.

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Interesting, yesterday 3 rd chemo, no problems, eat soup and hamburger when got home. Took Benadryl last night and actually slept all night. So, this afternoon is when arm injection will happen so will be interesting to see if bone pain takes place again. Will take another Benadryl
tonight to see. My white blood cell are normal range, were to high 1st round so they lowered doze going into my arm. Red this time was low but he said ok total so am o for now. Not sure about when they will start radiation, because of holidays. My days off Monday and Tuesday 26 & 27 they don't want to work not same problem the next week. Hoping they may schedule me for next Monday the 19th. Guess more tomorrow

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I'm also having carboplatin-paclitaxel chemo (I've had 4 cycles so far), but I'm not being treated with Neulasta. I also don't have any bone pain. Different people react differently to drugs, but to me this suggests that the Neulasta may be the culprit for your bone pain. Along with the chemo, I'm also getting Emend through the IV, along with pills of dexamethasone, Pepcid, Zofran, and benadryl. (I think that's everything.) They didn't tell me to take any other drugs afterwards other than laxatives or Pepcid/Zofran if necessary. My blood counts are dropping (all of red, white, and platelets), and the nurse practitioner said that if these keep getting worse, they would do a transfusion with the next cycle. Yuck.

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Profile picture for rainbow92 @rainbow92

Ask to receive steroids with the last chemo dose. It will help you recover faster from the chemo symptoms.

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Today was 3rd chemo, asked about steroid for bone pain. What I was told the bone pain is from Neulasta Onpro given to me day after chemo in my arm late afternoon. And, the dexamethason given is a steroid was for nausea. I am given 2 -8 mg for 3 days, looked it up can cause bone pain.
So, who knows. DNA is being changed from chemo in your bones. Is what I was told. And, what were the complaints of MNRA shots it changes your DNA. Have to giggle underneath at this all.
Told my Chemo Dr. going to maybe try only taking 1 of the pills and see if pain is less. May still take Naproxen, couple of days, time will tell. All I know is that chemo doesn't bother me till day 3. Am going to take a benadryl every night because they give that to me before chemo and he said may help since have no problem till injection to bring white cell count up. So, will see how it goes this time. Told him been craving red meat, he told me go for it. Red blood cell count was low. White ok, Will let you know what I find out. Findings were 8/29 FIGO 1 endometroid adenocarcinoma, peritoneal wash pT3aN0,

Editor's Note:
Mayo Clinic https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/different-types-of-covid-19-vaccines/art-20506465

The genetic material delivered by mRNA vaccines and viral vector vaccines doesn't become part of your DNA.It never enters the nucleus of your cells, where your DNA is kept.

Chemotherapy drugs damage the DNA of cancer cells, making them unable to survive. Treatment also kills or slows the growth of healthy cells that grow and divide quickly, causingside effects. Side effects often get better or go away after chemotherapy treatment is complete and healthy cells repair themselves.

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Profile picture for jeanadair123 @jeanadair123

I had 38 radiation and 4 brachytherapy.
The radiation was easy the brachytherapy however was not. Apparently, I think it is the size of your vagina?
It was very painful for me they even gave me fentanyl and norco neither helped. I know people who had brachytherapy that it didn’t phase them at all.
I think it’s because I have not had children and my husband had prostrate cancer in 2003. Use your imagination there? 😁

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Met the new radiation Dr. on the 8th, and am going to be setting up the 25 external radiation treatments, probably starting by beginning of January. After the form is created. Had the 3rd chemo today, Port was clogged so she ran all through vein in my arm. She finally did get port flushed. I have had 2 children so hopefully, brachy will go ok. Had to shake my head. He sent notes to my primary care, and it states he can't say I am not going to have problems with my intestine or my bladder or where will prolong my life. Really makes me wonder. I do feel am going to more than likely have more problems with their treatment plan. Thank you all for your comments. I get 2 pills of steroid to take for 3 days, after chemo that are suppose to
help with bone pain from Neulasta OnPro injection to raise white cell count. However, it also says side effect is bone pain. I used 2 pills first chemo. 3 naproxen 2nd chemo. And, then pain was gone.

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@jeanadair123 This is awful to read and I have pain reading and thinking about what you experienced during brachytherapy. I wonder if the applicator that they used was too large for your vagina? I have not had children either but I was sexually active with my partner before brachytherapy. I recall that the radiation oncologist was careful to make sure the applicator was comfortable enough for me so that I did not have pain. He also used a lot of lubricant and gave me a heads up about each step.

Yes, I imagine it could be the size of one's vagina. It's a good question to ask the radiation oncologist. Could it also depend on whether one is in an active chemotherapy regimen and/or medications? Another question to ask.

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I had no idea they had different sizes that they used for the brachytherapy, that’s something I would have liked to go. It was the worst pain ever I used to dread going everyday. I wish I had had your radiologist. Mine just kept pushing the cylinder in, I mentioned extra gel but they said we put extra on. That was the worst pain of my life other than when they did the vaginal biopsy in the gynecologist office. I always thought my pain tolerance was high but this really took its toll on me. My radiologist was good but she was not very personal very matter of fact. I wouldn’t go back.

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Yes, mine was done inpatient and I am being treated for vaginal cancer

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Profile picture for rainyp @rainyp

With my brachtherapy I was given a pain epidural before the device was inserted. 5 treatments were done in 3 days, so it was just inserted once. Just got home yesterday and am feeling a little sore from the removal of the device and lower back pain from being pretty much flat on my back for three days.

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@rainyp Were you an inpatient during those three days? This sounds like a different procedure than what I had. Mine was two treatments separated by one day as an outpatient. The applicator was inserted two times and only for the duration of the actual procedure. I am guessing this all depends on many things such as the kind of uterine cancer, the stage, and the radiation oncologist.

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With my brachtherapy I was given a pain epidural before the device was inserted. 5 treatments were done in 3 days, so it was just inserted once. Just got home yesterday and am feeling a little sore from the removal of the device and lower back pain from being pretty much flat on my back for three days.

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Profile picture for terradean @terradean

They do give me 3 pills of dexamethasone, not sure if helps or not. To start day after, maybe not long enough since pain starts day 3 and last for few more days. I think make my brain slower while taking though not sure if chemo or it.

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I felt significantly better on my last round of chemo when I took the steroids. I recommend that you discuss the steroid dose with your doctor. (I do not know anything about steroid dosing to reduce chemo side effects.) Please explain that you are unsure if the current dose is providing the desired result for you.

Also ask your doctor if the steroid can be affecting your mental alertness. I know first hand that the chemo can decrease your mental alertness. Mine has been ongoing even after chemo was finished.

Hang in there and pray for reduced chemo side effects!! Chemo sucks!!

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Profile picture for jeanadair123 @jeanadair123

I had 38 radiation and 4 brachytherapy.
The radiation was easy the brachytherapy however was not. Apparently, I think it is the size of your vagina?
It was very painful for me they even gave me fentanyl and norco neither helped. I know people who had brachytherapy that it didn’t phase them at all.
I think it’s because I have not had children and my husband had prostrate cancer in 2003. Use your imagination there? 😁

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@jeanadair123 This is awful to read and I have pain reading and thinking about what you experienced during brachytherapy. I wonder if the applicator that they used was too large for your vagina? I have not had children either but I was sexually active with my partner before brachytherapy. I recall that the radiation oncologist was careful to make sure the applicator was comfortable enough for me so that I did not have pain. He also used a lot of lubricant and gave me a heads up about each step.

Yes, I imagine it could be the size of one's vagina. It's a good question to ask the radiation oncologist. Could it also depend on whether one is in an active chemotherapy regimen and/or medications? Another question to ask.

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