What Kind of Radiation Did You Get for Your Gynecological Cancer?
I was diagnosed with endometrioid adenocarcinoma (Stage 1a, FIGO Grade 1) in 2019. I was treated for a recurrence in late 2021 with radiation therapy. I had 25 external beam treatments and 2 brachytherapy treatments. I'll share more details about the lengthy preparation and the actual treatments in a separate post below.
I know of members here who have had or are going to have radiation treatments. Would you like to share your radiation treatments and experiences with one another? This is a great way to support one another.
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
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Started radiation on the 14th ( thanks to you no surprises ) and Chemo the following day. Lots of nauseousa and fatique for a couple of days. Now in over one full week and feel surprisingly good. Sleeping alot. Eating lots of small high calorie snacks and meals throughout the day. No desire to really do anything but I am going to make a point to do some yoga and walking everyday. The puppy is going to be my prize when I get through this!
I do have question as one one of my doctors mentioned doing immunotherapy after. Wondering if this is a common follow up plan?
Hope you have a happy and healthy day! Thanks for checking in!
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3 ReactionsEverything has been this year 2022, started bleeding mid May, urgent care sent referrals to urologist and gynecologist however gynecology called me and said would be mid July since wasn't emergency. I started with a new primary care end of May and she said your not waiting that long. Got me into Women's Health Center. Grants Pass, Or, where I live, the Dr. there saw me 6/1/22. He setup up hysteroscopy 6/27, he was going to remove most of the fibroid, however found endometrial adenocarcinoma was where the bleeding was coming from. He scheduled me to go to Eugene, Or Williamette cancer center there. They did not schedule hysterectomy till 8/29 this year, I was told FIGO 1, however, lesions on the serous s o was changed to 3A and said when they did wash found adenocarcinoma cells in fluid. So, at 2 week post-op was total 3 chemo 8 radiation 3 chemo and then 2 brachy. However, since Eugene was so far away and family wanted me to have treatment in this area not so far away. The Dr. from up there contacted Drs' down here. When I tried to check on treatment with her up at Williamette I am being told that the radiation person chooses treatment plan and he says direction came from them. And, seemed irritate that I would question what he was saying to me. My son is going with me Monday to Chemo and plans on asking alot of questions, I guess I would feel better if there was something they really found somewhere rather than being so drastic immediately after the hysterectomy. Its like going from A to Z in 5 months. But, will be asking more questions for sure.
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3 ReactionsI started having bleeding 5/22 with alot of pain, received diagnosis 6/27/22, hysterectomy wasn't till 8/29, no ovary, fallopian tube or node involvement, wasn't in cervix. However, wash had adenocarcinoma cells in the wash, nothing found anywhere else. But, they are reacting like the cells have gone everywhere and treating the extreme way now from reading. Worries me about the radiation causing further problems years down the road.
Asked if after chemo is done whether, radiation treatment could change, and question re: wasn't taken very well.
So, was told 25 external, 2 brachy to be done after chemo of 6 rounds 3 weeks apart,
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1 ReactionI started having bleeding 5/22 with alot of pain, received diagnosis 6/27/22, hysterectomy wasn't till 8/29, no ovary, fallopian tube or node involvement, wasn't in cervix. However, wash had adenocarcinoma cells in the wash, nothing found anywhere else. But, they are reacting like the cells have gone everywhere and treating the extreme way now from reading. Worries me about the radiation causing further problems years down the road.
Asked if after chemo is done whether, radiation treatment could change, and question re: wasn't taken very well.
@rainyp How are you doing? So, no more surprises which is good. Have you started the radiation therapy as you expected on 10/10? How are you feeling?
And have you brought home a doggie companion yet? 🐕
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1 Reaction@terradean That is a lot to handle. No wonder your head is spinning. Did your oncologist explain why you will get more radiation sessions than you were originally told?
Were you first diagnosed with uterine cancer two years ago? What kind of uterine cancer were you diagnosed with? So now two years later is it the same kind of cancer that came back (a recurrence)?
In my case I was diagnosed with endometrial cancer (endometrioid adenocarcinoma, FIGO Grade 1) in 2019. I had a radical hysterectomy in 2019 that took also the ovaries, and fallopian tubes and cervix. There was no cancer anywhere else. I had a recurrence in late 2021 of the same cancer that showed up as a small lesion on the vaginal cuff.
Cancers are not all the same so the treatments will be different depending on the kind of cancer. Is it possible that your oncologist is making sure that they get as much of the cancer cells as possible?
I am 2 weeks into my external beam radiation. I will have 28 total of those and 3 brachytherapy ones. So far no real side effects. I am tired somedays, but still working and travel each day for the sessions. My experience is very much like @naturegirl5's
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4 ReactionsQuestion, no chemo, just radiation 2 years later, I was Figo Grade1, but liason on serous backside so is 3A, so am to have chemo 6 times 3 weeks apart, had been told 8 routines radiation however saw the Dr. last Monday who said 25 and 2 brachytherapy treatments. My head is still spinning so much more than I had thought originally thought. there was no involvement of ovary, tubes , or lymph nodes. Just seems so much.
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4 ReactionsLooks like Monday 10/10. The women I spoke with said it was for a consult , as I am getting my treatments closer to home, not with the Radiation Oncologist I met with on Thursday). Hoping its for the CT Simulation and not just a meet and greet. Im going to have to call and confirm. and PS my biopsies came back and confirmed exactly what the team expected.(DIAGNOSIS: Squamous cell carcinoma of the vagina, cT3N1M0, FIGO stage III) Bad enough, but thankfully no additional surprises. Counting my blessings
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5 Reactions@naturegirl5
Thank you so much for sharing your experience with us. I am about to go through this process and am a bit nervous.
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