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Tymlos One-on-One Support program?
Hello, I am preparing to begin using Tymlos. My doctor gave me a brochure and suggested I look at the Tymlos One-on-One Support program that includes a Clinical Educator. I am wondering if any Tymlos-users here signed up for the Support program, and if you thought it was beneficial?
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@grace10 I found the Clinical Educator to be pretty helpful. She went through the brochure that comes with the pen item by item, which on the one hand was a bit too maternal for my taste, since I'd already read the brochure carefully; but she couldn't be sure of that and was just doing her job. And on the other hand she was prepared to - this was all done via Zoom - watch me do my first injection in case I wanted her input or reassurance or whatever. I didn't; I wasn't prepared to do the shot at that moment, but I appreciated her offer to come back online when I was ready. She also clarified something that was for me a big concern: mapping out my belly for where to inject each day. the literature includes a lot about selecting the spot carefully, etc, and she basically said don't obsess over it, just don't do the same spot two days in a row. Full disclosure I had watched the Tymlos videos and some others that I found on YouTube for how best to inject yourself, so when it was actually time to do it I felt like I knew what to do and expect. She also talked about the possible side effects in a more human way than the brochure. And she invited me to call her after I did the injection if I was freaking out or had any concerns.
So IMO it was indeed beneficial; I learned a few important things and it definitely added peace of mind.
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1 ReactionNo, I got most of my help from people on this site!! Started in October and doing fine on it, worked up to full dose and inject in the morning.
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2 ReactionsHi,
I am on Tymlos and after 18 months, no significant improvement (T-score -3.2 [spine], -2.9 [hips] / same #s after a year of Rx). I have been taking calcium and vitamin D supplements adding to my dietary intake. Not a smoker or drinker, not obese but strong family history. Exercise regularly. My doc is recommending a year of Evenity now. Still thinking about but likely will go through it. Would like to have bone turnover markers done.
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1 ReactionI am quite sure I will start taking the Tymlos shot, having had two compression fractures within 15 mths. However, given the choice and if approved by the VA, I would prefer an alternative therapy with stem cell. I may look further into it having gone through PRP shots for other issues in the past that rid me of painnfor years now.