Tymlos, 1st year results.

Greetings,
First and foremost, I want to thank the Mayo Clinic as well as folks in this forum, whom ask questions, and those who have answered them. This forum is an invaluable tool of information. What I have walked away from, is that we are all different, and there seems to be no exact answer for many of our concerns.

My (condensed) Journey
I was diagnosed with significant osteoporosis in 2023. I thought, no way. I did weight work out 3-4 times a week for years before covid hit. I went to another facility for a Dexa scan ( I didn’t believe the first results) , and it was even worse! I start Osteostrong, do it for a year. I begin to work with a Functional Medicine doctor. I learn about oxalates, and other calcium binders, and the importance of proteins. I have another Dexa scan in Oct 2024. No better, infact a bit worse. Now I have a Dexa TBS scan. Trabecular Bone results – no good. My results too far gone for diet solutions. I go on Tymlos Oct 2024. 1 year later, this past Monday I have Dexa with TBS . I have had over 20% gain in L1-4 and 4.6% in one hip. I’m 11mths into Tymlos!
So, in concert of the Tymlos I changed my diet. Now, mind you, I’m a vegetarian and was vegan for 7 years.
I have focused on protein, 80g a day. I had to go back to dairy for protein consumption besides Soy (tofu and soy milk). I eliminated Spinach, chickpeas and anything that was high in oxalates. Including Almonds and chocolate. I increase my consumption of broccoli (high in calcium). I consume calcium via Organic Soy milk and Matts Organic OJ fortified with calcium, of course with my other foods as well. I take “Designs for Health” Whole Collagen. It’s pricey but a value add for me.
I don’t eat junk. I try not to have any gluten from American grains. In fact, I ate very little American gluten this past year. I eat Ezekiel bread (sprouted wheat). If I get hungry for a nosh, I have organic cheese, a slice here, a slice there kind of deal. That’s easy 10g of protein down the hatch.
Of all fruits readily available to me, oranges have most calcium, so I enjoy them daily. I do the usual legume, but I do choose the ones with least oxalates. I tend to do quinoa vs rice with my legumes.
I stopped Osteostrong after my first year. It’s a good program, but didn’t work for me.
So, I’m generally pretty active. I work out when I can with resistance and weight. I use a vibration plate. I have had two big falls (knock on wood, I’m tapping my head 😉 ) I have had no broken bones.
I will continue with Tymlos.
Now, Tymlos effects.
I started slowly 2 click for 2 weeks, 4 clicks for 2 week, 6 clicks for 2 weeks, to full 8 clicks.
The drug is shifty for me. I got pains in my knees, headaches at the beginning and heart palpitations. I still have this outer body experience with my legs including muscle weakness. They don’t want to work with me. I get weird pains nerve pains (arms or legs) , I breathe through it, then it goes away. However, I am hoping that will go away when I finish Tymlos. I still have trouble poking myself with the needle. Not easy for the faint at heart.
In Conclusion, I have stuck through the side effects, changed my diet and have received 20+% results in my spine and 4.5% in one hip, less in the other.
I hope this helps you, to learn from my experience.
Again, not for the faint at heart!
All my best to you all! V