Two different size and locations given for my meningioma. So confused

Posted by jcorriv2 @jcorriv2, 3 days ago

Last week I thought I was having a stroke and called an ambulance. After a CT Scan the diagnosis was “ There is 6 mm calcified lesion in left frontal convexity meningioma aneurysm adjacent mass effect or edema. No extra-axial collection.
Basal cisterns are patent. No mass effect.”. After immediately going to a second hospital and having an a CT Angiogram with contrast, the diagnosis is “ No aneurysms or flow-limiting lesions. No occlusions No mass effect, midline shift or ventriculomegaly. Small partially calcified meningioma in the left parafalcine location at the vertex measuring 9mm”.
How can I possibly get two different size and location results?! I didn’t notice these discrepancies until two days later. I was discharged from the ER after they ruled out an aneurysm and was told to follow up with neurosurgery. I’m a 44 year old female with a history of ruptured aneurysm 23 years ago when I was 4 days postpartum. Not having answers is driving me crazy and I’m hoping I can get an appointment within the next few days.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Maryann | @mkoch | 2 days ago

jcorriv2: A cerebral angiogram with contrast is the gold standard for diagnosing an aneurysm. Given the fact that the angiogram was done after the CT scan I think you can be sure you don't actually have an aneurysm. There is a great video on You Tube by a neurosurgeon who specializes in aneurysms at the University of Pennsylvania. His name is Dr. Omar Chouddhri. (You can google it.) Not too far into the 35 minute video he explains that often patients are referred to him for an aneurysm but he gets to deliver the good news that what they have is something called an INFUNDIBULUM, something that looks like an aneurysm, but isn't and doesn't even need any kind of follow up. So, I think that may explain why the radiologist who read your first scan called out an aneurysm when in actuality what he saw was an infundibulum. I also have a meningioma and have had a situation whereby the size was called out differently by two different radiologists. The good news is you don't have an aneurysm. But when you were told to follow up with neuro surgery, they mean a neurosurgeon. Don't waste your time with a neurologist. Your sensation of thinking you might be having a stroke may be b/c the 9 mm. meningioma is pressing on something in your brain eliciting that sensation. The neurosurgeon should be able to figure out, specifically, what is going on.