Share Your Brain Tumor type & Years since Diagnosis

My name is Dale A Dejnowski my MAYO connect name terridalecasino. I had a brain tumor when I was 11 years old. The Tumor type was a primary,pituitary, benign, astrocytoma, grade I in other words it was a slow growing tumor. According to the neurosurgeon, he told my mother it was about the size of a large size lemon. According to my nedical records [which I have from 1970] it was taken out in piecemeal.
However, I will say I did have symtoms that something was wrong? I just didn't know what? For about a year and half prior to my diagnoses I was experiencing severe headaches. having no idea something was growing inside my head? Especially at such a young age, age (11) years old. The only way we,[my mother, father, and I descovered it was when on the way to a newly built shopping mall I started to go into severe convultions in the car on the way there! After arriving at the E-Room and performing an ANGIOGRAM that's when they discovered this BIG O MASS in the right TEMPORAL, PERIETTAL, OCCIPITAL LOBES!. I also had a PNEUMOENCEPHALOGRAM, VENTRICULOGRAM AND A CRAINIOTOMY!
I truely feel it was because of my very young age (11) that I SURVIVED as well as I did? That and a whole lot of PRAYING. At age 65 now, I am doing so-so I still have TBI symptoms ie. lack of concentration,memory, and attentiveness. Which is why I study and research "NEUROPLASTICITY" MY DEFINITION "IS " THE BRAINS ABILITY TO ADAPT OR CHANGE IN RESPONCE TO WHAT I CALL E.E.I.T. [ENVIRONMENT, EXPERIENCE, INJURY, AND TRAUMA!
In closing all I have to say IS LIVE LIFE TO THE FULLEST YOU CAN AND DON'T BE AFRAID TO LIVE YOUR LIFE AS H.O.P.E. [HELPING: OTHER: PEOPLE: EVERYWHERE! GOD BLESS!!!!

We found a brain tumor in 2015 when I volunteered to be a baseline (none injured brain) for a TBI study. We monitored it for 7 seven with no noticeable change then in 2022 it was growing. It was biopsies in July 2022 and identified as Oligodendroglioma Mutant type II. Because of the location involved the dominant hand and foot area we decided not to remove any move after the biopsy. Started 30 rounds of radiation in October 2022, and then six rounds of chemo starting right after Christmas. Follow up MRIs have shown shrinkage, but still currently there expect to see more shrinkage over the next year. Outside of finding the tumor by accident in 2015 and monitoring it for growth I had no other symptoms of having a tumor.

Menginoma diagnosed in 2005.
2019 two strokes because it stsrting growing. 2029 Gamma knife to stop the growth didn't work and emergency surgery was done to remove the tumor which was a grade 1 cancer. Have recently had another stroke.

I was diagnosed December 13th 2022 with the tumor, went through a craniotomy on Feb 2nd 2023 then waiting for biopsy results which came back as a Oligodendroglioma. Total resection, things are going well, first MRI came back good and will be repeated every 3 months. I did not have to go through Chemo or radiation and feel very blessed for that.

Wishing peace and love as you go through the process. Let your family and friends support you on this journey.

I just found out 2 days ago I have a brain tumor called Ninengioma in the right frontal lobe and possibly MS! It’s 9mm, or .345, or 3/8 inches! It’s tiny! I hope they can take it out through my nose! I’m getting ready to visit a new Neurologist clinic and I will know more! I’m so sad and scared! Thanks! This is my first post!✝️✝️✝️✝️✝️

Good for you honey!

Our daughter was dx with Craniopharyngioma tumor. Partial resection via craniotomy on Jan 29, 2015. Began Proton Beam Therapy radiation on June 22, 2015. Three yrs and no tumor progression. Pheripheral vision loss is now stable following Hyperbaric Oxygen therapy at Mayo. Remains closely followed and treated for loss of pituitary, hypothalamus, and thyroid plus secondary adrenal insufficiency and migraines.

I'm so happy for you!

Hello, I had a grand mal seizure at 4am on my birthday 4/11/2016 and was lucky I had friends with me in my room on vacation. I woke up in hospital in Chicago and my family had already had flown in and were there when I came through. Knew it couldn’t be good! Eleven days later taken home to MN to The Mayo in Rochester by ambulance and they quickly figured out it was a tumor that caused the seizure and two days later I had the craniotomy. A couple weeks after I got the call. Lateral Right temporal lobe AA3. Had standard radiation and chemo ( temadar). MRI every 3 months now and so far so good. I experience some fatigue and tinnitus but I can handle that! Next MRI on 10/2. Thank god for the staff, nurses and doctors at the Mayo! I also love this community and try my best to help and give back what I can.