Share Your Brain Tumor type & Years since Diagnosis

Posted by jstow07 @jstow07, Aug 8, 2018

Hey everyone I was diagnosed almost 7 years ago with a medulloblastoma in my right cerebellum. Completely removed followed by proton radiation. No reoccurrence since. Just curious what everyone else has and how many years and treatment

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Pediatric High Grade Glioma (Grade 4). Normally 1-5 year olds, but hit me at 43.

Surgery, radiation, 6 months of chemo and looking ok. Its been almost a year ago and slowly getting better.

So its been 3 years overall so far and hoping to keep going!

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Hello everyone,
I was diagnosed with glioblastoma brain cancer last September. I have been fighting ever since with surgery, radiation and chemotherapy. It has not been fun but I am doing the best I can while I'm still alive. I have accepted God's will and will do my best until the time comes. We should all accept our faith and future however it proceeds and pray our families accept our future.

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Not preaching regurgitation at the back of my throat...no headaches or vision problem s.

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As well as bit of internal bleeding and preaching at the back of my thr6could that be a tumour?

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I have imbalance and giddyness

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how are you doing? any affects from proton , necrosis ?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@reginamyers1958, experiencing apathy and depression out of the blue must've been confusing at the time, if that was out of character for you. Do you recall if the apathy came on gradually or suddenly?

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It came on gradually. I was diagnosed with a tiny meningioma when I was 45. Neurosurgeon said “nothing to worry about” and made no mention of followup MRI’s. I divorced when I was 55, so naturally I thought I was depressed. The apathy emotion was a gradual thing for sure. Big meningioma discovered at age 64. Very thankful for a top notch neurosurgeon from OSF in Peoria.

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Profile picture for reginamyers1958 @reginamyers1958

I was diagnosed with a brain tumor in late March 2022. On April Fool’s Day, my neurosurgeon removed a very large, thankfully benign, meningioma. The size of a tennis ball. I had no headaches or any symptoms whatsoever that would indicate a problem. I felt depressed and didn’t care whether I experienced joy or not. Thankfully, it was discovered after taking a fall in the shower. Doctor said he couldn’t believe I hadn’t had a stroke. Between God and my neurosurgeon, I’m living my best life (so far). I’m very interested in keeping up with this support group.

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@reginamyers1958, experiencing apathy and depression out of the blue must've been confusing at the time, if that was out of character for you. Do you recall if the apathy came on gradually or suddenly?

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Profile picture for geekwoman @geekwoman

I was diagnosed 7 days ago with a low grade glioma in my temporal lobe. Prior to that, it was presumed to be an acoustic neuroma.
At present I meet with a neurosurgeon tomorrow to discuss treatment. In the meantime, I have dizzy spells, petit Mal seizures, loss of appetite, tinnitus, headaches/migraines and a severe lack of energy. I lose words and can't complete sentences.
I'm a 54 year old woman living alone.

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@geekwoman, this is all so new and I'm sure scary. How did the meeting with neurosurgeon go? Do you have a treatment plan? How are you doing?

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I was diagnosed with a brain tumor in late March 2022. On April Fool’s Day, my neurosurgeon removed a very large, thankfully benign, meningioma. The size of a tennis ball. I had no headaches or any symptoms whatsoever that would indicate a problem. I felt depressed and didn’t care whether I experienced joy or not. Thankfully, it was discovered after taking a fall in the shower. Doctor said he couldn’t believe I hadn’t had a stroke. Between God and my neurosurgeon, I’m living my best life (so far). I’m very interested in keeping up with this support group.

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