Share Your Brain Tumor type & Years since Diagnosis

This gives me some hope. My husband is 77. Diagnosed in January, this year, with stage 4 glioblastoma. Had surgery and starts radiation and TMZ tomorrow. He mall walks, but feeling more tired. Can do the stairs and showers without help. Speech a bit slurred and some short term memory loss. Great appetite. Has virtually no medical history other than borderline high blood pressure and slightly elevated cholesterol. He was told 12-18 months. Looking forward to milder weather so we can walk outside more.
Yes. One day at a time. Praying for you and your husband.

My husband was diagnosed with glioblastoma stage 4 wild rose in November 2024. At that time he was given 6-9 no the to live. Resection of the tumor left a small nodule with too many blood vessels to remove. MGMT was minimal. Radiation and Temodar started in January 2025. After radiation and initial dosage of Temodar has been doing 28 day cycles 21 days on and 7 days off. Tolerates it well. Had gamma knife on remaining nodule in July 2025. MRI in November had no tumor growth. MRI on March 10 small enhanced area probably from radiation. He is doing well just needs to be more active. Some speech aphasia and short term memory loss. He turned 77 in January. We take it a day at a time and are waiting for warmer weather so we can get out more.

GBM in right thalamus diagnosed in January 2021. TMZ chemo and IMRT radiation completed in 2021. Adjuvant chemo for another year. Also took and still taking fluoxetine per Dr. Paul Mischel of Stanford. Look him up. He has a trial underway to add fluoxetine to the standard Stupp protocol

@sorenjal
Prayers for you and your husband

@adrian092
Prayers for you in your journey and recovery

My son at 22 was diagnosed with Medulloblastoma in June of 2025, had surgery to remove the big tumor, completed proton radiation and almost complete with cisplatin chemo.

This month will mark the 13TH year since my wife was diagnosed with stage 4 GBM. As an instinctive helper, I spent two weeks searching the internet for options. As you also know there isn’t much to find. An article about the keto diet looked interesting . It wasn’t easy, but we followed the diet religiously for five weeks. During that time I tested her blood and saw she was making ketones as intended. When reading the prognosis for GBM patients I decided we should enjoy the time left and travel each month. It was short trips at first. Over the years we toured Costa Rica in a 4 wheel drive, a photo trip in Iceland, toured the Rideau Canal in a houseboat in Onterio Canada, Nashville, New Orleans and many other wonderful trips. Each winter we spent a week in Florida. Twice we happened to be in Titusville and saw two rocket launches. Of course no one can determine with certain why she has done so well. I believe her mental state was a major factor protecting her brain. At no time did we feel helpless. We always had something to look forward to. A couple of time her oncologist credited me for why she is still with us. Unfortunately, recently she has been diagnosed with radiotherapy necrosis. But that’s another story.

@hopeforus Hopefully all the treatment schedule has worked for you. Mine was in a spot that was ok for surgery so they took as much as they could before radiation. Chemo wasn't required but I did get it done and super regret it. So many new issues have popped up. The Moffitt visit even said chemo wasn't needed but can help.

Hopefully all the treatment she has had gets her in a good place and the Optune works for her if needed.

@coreythomas Hi my 22 year old daughter was diagnosed last December, with Pediatric diffuse type high grade glioma who 4 un methylated wild type. This Friday would finish radiation therapy and temozolamide, her oncologist recommended Optune device,

Pediatric High Grade Glioma (Grade 4). Normally 1-5 year olds, but hit me at 43.

Surgery, radiation, 6 months of chemo and looking ok. Its been almost a year ago and slowly getting better.

So its been 3 years overall so far and hoping to keep going!