Tulsa Pro Experience, Mayo Clinic MN – July 2024

Posted by jcf58 @jcf58, Jul 19, 2024

Gleason 7 (4+3). I was treated Wednesday July 17, 2024. I checked in at 7am, entered the MRI/Tulsa suite at 8:15, and woke up in the recovery room around 11:30am. Approximately 30% of my prostate was ablated. I woke up with no pain and catheter in. The first 5-6 hours of the catheter were a little tough as I felt an urgent need to pee, but you can’t because you have the catheter in. Was fine after that. I did take Oxybutynin for bladder spasms at night. At 12:30pm, I walked out of the hospital and 2 blocks to my car to be driven home to Minneapolis.
Over the course of the next 40 hours, I just needed to regularly empty the catheter bag and continued to have no pain. Didn’t even take a Tylenol. The morning after TULSA I took my normal 2 mile walk. Catheter was removed at 7:45 Friday morning and I was good to go home. Catheter removal was not bad and they had to ensure I could pee on my own before release. Urine stream is about half of normal but will improve as inflammation of urethra declines. No medication needed at this point.
I did a ton of research before deciding on TULSA Pro. I talked to 7 different doctors. 4 current and 3 retired (1 had RP and another had radiation). The technology and low risk of side effects made this an easy choice for me. I was also fortunate to have the cancer contained in a fairly small lesion.
I couldn’t be more pleased with the procedure and my care at Mayo.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I only had 30% of my prostate ablated. I walked out of Mayo at 12:30 pm and walked 3 blocks to my car. I felt like I could have driven home. Went for a 2 mile walk the next morning. My recovery may not be the norm though.

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Will I feel like flying home later the same day or next day? I have to fly into town the day before for treatment. Then I have treatment at 8am. I'll have a catheter for a few days. Will I feel like flying home later that day? Or the next day. Thanks folks.

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Mine was covered under Medicare in 2024 (had to be done in a hospital— I did Mayo Rochester).

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What did it cost and does Medicare now cover

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Profile picture for etafkj12345 @etafkj12345

I am 66 and considering the TULSA as well. I am a little concerned as some of the report of unreliable post treatment monitoring ie. is PSA still accurate after treatment. Also, how do you know the biopsy done is not missing cancerous tissue? I have on spot Gleason 6 and one spot Gleason 3+4=7. I am a good candidate by recommendation of Dr. Woodrum's Team.

Worried about post treatment assessment and return for possible other cancer. Curious about percentage of people who have recurring cancer but like minimal side effects.

I know this is a newer therapy.

Appreciate any feedback.

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I had TULSA done at 68 years of age. Total gland ablation was performed for a 3+3 Gleason, with nine out of 30 cores positive for cancer. At 3 months post-TULSA, my PSA was 0.10, and my MRI results at 6 months ( see above ) show no cancer. My PSMA before TULSA showed no uptake, not even in the prostate, though the biopsy indicated cancer. I had two tumors and some mild BPH. It looks like TULSA resolved all of those issues.

Post-TULSA experience was zero pain, seriously, zero pain from the treatment. I had two medications for bladder spasm and the feeling that I sometimes needed to pee. I rarely took those for the 12 days I had a catheter.

You can have your prostate removed, and still have a chance of cancer returning. I looked for a procedure that was minimally invasive, low pain, quick recovery, did not limit any future treatment that hopefully I would not need, and did not require me to have the prostate removed. TULSA was the answer for me. At 6 months, I appear to be cancer-free. I will see what my URO wants to do, maybe another MRI at 1 year post-TULSA. I'm not sure what he will want to do, but right now I am delighted and grateful.

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Here is my 6-month post-TULSA MRI W/WO contrast. I deleted the non-prostate findings. PSA at 3 months post-TULSA was 0.10. Looks like TULSA was a success for me.

I did the total gland ablation as there was no sense in a focal ablation that would have almost been a guarantee to return at some time in the future for further treatments. I wanted this taken care of now, and to be done with it.

Healing has taken longer than I hoped. Only now has my stream really improved to what I would consider normal. My Testosterone is low-normal, so I have no sex drive and very mild ED. All in all, at 69 years of age, I think I don't even care about that at all.

FINDINGS:

Localizer/T2 coronal: No acute abnormality.

Prostate: Post ablation changes of the peripheral zone of gland. Residual
transition zone is measuring 3.0 x 2.8 x 2.6 cm = 11.4 ml. No findings of
high-grade tumor.

IMPRESSION:
1. Post ablation changes of peripheral zone of prostate gland. No
recurrent disease or findings of new high-grade tumor. No pelvic
lymphadenopathy.

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Profile picture for etafkj12345 @etafkj12345

One other question regarding TULSA. If cancer does return what do we do? Also is monitoring possible?

More focal?
Whole gland treatment?
(Essentially like a Rad. pros. ?)
Radiation?
Da Vinci Rad Prosectomy? (Sounds iffy)

Appreciate your input.

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My Mayo Doctor told me all options are on the table if it returns. Really depends on how and where it comes back.

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Profile picture for etafkj12345 @etafkj12345

One other question regarding TULSA. If cancer does return what do we do? Also is monitoring possible?

More focal?
Whole gland treatment?
(Essentially like a Rad. pros. ?)
Radiation?
Da Vinci Rad Prosectomy? (Sounds iffy)

Appreciate your input.

Jump to this post

Normally, what you would do is radiation. The question is what does the PSMA PET scan show. Does it find any metastasis if so, they can be radiated with SBRT normally. If nothing can be found, they might want to radiate the prostate bed and the lymph nodes. This type of radiation usually works for a few years at least.

Another option is you just can wait until something pops up and then zap it. Some doctors believe in that strongly.

It’s the focal treatment concentrated on the prostate then it’s not there to do surgery on or have continued spread from that spot. It’s more likely that mini metastasis got away before the focal therapy was done, Could not be seen so they could not be treated.

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One other question regarding TULSA. If cancer does return what do we do? Also is monitoring possible?

More focal?
Whole gland treatment?
(Essentially like a Rad. pros. ?)
Radiation?
Da Vinci Rad Prosectomy? (Sounds iffy)

Appreciate your input.

REPLY
Profile picture for jcf58 @jcf58

Regardless of what treatment you choose, you’re going to have the 20 to 40% chance of recurrence that Jeff mentions in his reply. I asked Doctor Woodrum that question about Tulsa at my one year follow up. He had just come back from an ablation conference and said the early results look very good with a 15 to 20% recurrence. I know that is not long-term data yet, but it is right in line with what other treatments are at three years out. I have never heard about any unreliable PSA test after Tulsa. My extensive monitoring after the procedure is what gave me complete confidence in trying Tulsa.

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Thanks so much.

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