Tulsa Pro Experience, Mayo Clinic MN – July 2024

Posted by jcf58 @jcf58, Jul 19, 2024

Gleason 7 (4+3). I was treated Wednesday July 17, 2024. I checked in at 7am, entered the MRI/Tulsa suite at 8:15, and woke up in the recovery room around 11:30am. Approximately 30% of my prostate was ablated. I woke up with no pain and catheter in. The first 5-6 hours of the catheter were a little tough as I felt an urgent need to pee, but you can’t because you have the catheter in. Was fine after that. I did take Oxybutynin for bladder spasms at night. At 12:30pm, I walked out of the hospital and 2 blocks to my car to be driven home to Minneapolis.
Over the course of the next 40 hours, I just needed to regularly empty the catheter bag and continued to have no pain. Didn’t even take a Tylenol. The morning after TULSA I took my normal 2 mile walk. Catheter was removed at 7:45 Friday morning and I was good to go home. Catheter removal was not bad and they had to ensure I could pee on my own before release. Urine stream is about half of normal but will improve as inflammation of urethra declines. No medication needed at this point.
I did a ton of research before deciding on TULSA Pro. I talked to 7 different doctors. 4 current and 3 retired (1 had RP and another had radiation). The technology and low risk of side effects made this an easy choice for me. I was also fortunate to have the cancer contained in a fairly small lesion.
I couldn’t be more pleased with the procedure and my care at Mayo.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

My description is too long to copy and paste here. Please see the attached .pdf file.

Shared files

Prostate Cancer - My Personal Journey (Prostate-Cancer-My-Personal-Journey.pdf)

REPLY

Thanks .
I was confused by another member referring to FUSION -- He may have been mixed up with MRI Fusion Biopsy .
Many centers are now moving to REAL TIME Biopsies : In - Bore or Gantry Biopsies .

REPLY
@clandeboye1

All great information , however :
It was my impression that TULSA-PRO was a REAL TIME , procedure . NO MRI Fusion involved .
Am I correct ?

Jump to this post

you are correct. TULSA-PRO is in-bore MRI utilizing MRI images in real time to guide computer controlled ablation

REPLY

All great information , however :
It was my impression that TULSA-PRO was a REAL TIME , procedure . NO MRI Fusion involved .
Am I correct ?

REPLY
@mrdennyb

I had TULSA procedure in April 2024, just had my 6 month exam and the results were very good. I am 80 years old in a couple of months and was more concerned about the "bathroom and bedroom" and not so much longevity. My PSA was 2.7 this time and MRI showed no bone or adjacent migration. I feel great, Mayo JAX care team was wonderful through it all!

Jump to this post

Awesome. I just got my 3 month PSA from Nayo Rochester yesterday. PSA down to 0.68. Was 8.3 prior to treatment. I have had zero side effects and am very grateful.

REPLY

I had TULSA procedure in April 2024, just had my 6 month exam and the results were very good. I am 80 years old in a couple of months and was more concerned about the "bathroom and bedroom" and not so much longevity. My PSA was 2.7 this time and MRI showed no bone or adjacent migration. I feel great, Mayo JAX care team was wonderful through it all!

REPLY
@pdcar4756

thank you! Mayo got back to me. Told me this adema is not uncommon and as long as I was in no pain or had no fever it was a normal response in some cases. I had 60cc of a 100cc prostate ablated including the lesion, so my prostate took a big hit. They also gave me 14 days of prednisone and 1 month of flomax to help with swelling and urination. So far my stream is adequate to keep my bladder happy. The swelling is diminishing gradually so I'm feeling assured things are progressing as planned. Thanks for the 5-7 weeks sluffing information. So far my urine has shown no signs of that process. I had my procedure on Oct 9, so it's still very early in my case. How long did you wait before clearing out the pipes?

Jump to this post

I waited a little over three weeks before I masturbated the first time. Lots of blood and clotting in that one.

REPLY

I only waited 1 week before clearing the pipes. Have been having sex twice a week since. Blood in semen lasted about 5 weeks.

REPLY
@glentaybow

My TULSA procedure was done on 9-11. After having my catheter removed one week post procedure, I was having a tough time eliminating urine. I don't live in the immediate area of the Jacksonville clinic, so they taught me CIC (Clean Intermittent Catheterization), gave me a bunch of catheters and send me on my way. I didn't get clear instructions regarding when to use them, so I just assumed they wanted me to use them as needed to clear my bladder. I mostly used them at night to measure how much was left after I urinated before bed. (My CIC teacher told it should be less than 100 ml) That accumulation you've noticed on the pubic mound could be a side effect of those drugs you mentioned. I was not subscribed any drugs and did not have any retention in that region. And hardly any bladder retention a few days after catheter removal. I was told to expect some sluffing off of dead tissue starting about 5-7 weeks post procedure. I would see this as smallish solid pieces in my urine. I did see a small clump of tissue in my urine last night before bed. I have masturbated a couple times to "clear out the pipes". Ejaculate is bloody as expected. Getting less so.

Jump to this post

thank you! Mayo got back to me. Told me this adema is not uncommon and as long as I was in no pain or had no fever it was a normal response in some cases. I had 60cc of a 100cc prostate ablated including the lesion, so my prostate took a big hit. They also gave me 14 days of prednisone and 1 month of flomax to help with swelling and urination. So far my stream is adequate to keep my bladder happy. The swelling is diminishing gradually so I'm feeling assured things are progressing as planned. Thanks for the 5-7 weeks sluffing information. So far my urine has shown no signs of that process. I had my procedure on Oct 9, so it's still very early in my case. How long did you wait before clearing out the pipes?

REPLY
@pdcar4756

I had my procedure on October 9, stayed on campus until I was released on Oct 12. I have now returned to a small town in Colorado. I've never been under general anesthesia so I don't know how long it takes for the body to rid itself of whatever chemicals they used. I'm still feeling off the mark and my stomach is queasy. They also gave me prednisone and flomax which I've never taken before either. One thing I've noticed which is alarming me and if it's not better tomorrow I will be contacting Mayo. I was wondering, after your procedure did you notice any fluid retention below the surface, above your penis, on your pubic mound? I believe I'm experiencing a pretty significant accumulation of something there which was not there prior to the procedure. Maybe this is just part of the healing process, but it has me a bit worried, since medical care where I now am is limited. It's not causing any discomfort that I can tell, but it strikes me as odd, since they didn't mention it to me at Mayo as part of any normal healing process. They ablated 60 cc of my 100 cc prostate, so I expect my body has some work to do to get rid of the dead cells. I was just wondering what was your experience. Thanks much!

Jump to this post

My TULSA procedure was done on 9-11. After having my catheter removed one week post procedure, I was having a tough time eliminating urine. I don't live in the immediate area of the Jacksonville clinic, so they taught me CIC (Clean Intermittent Catheterization), gave me a bunch of catheters and send me on my way. I didn't get clear instructions regarding when to use them, so I just assumed they wanted me to use them as needed to clear my bladder. I mostly used them at night to measure how much was left after I urinated before bed. (My CIC teacher told it should be less than 100 ml) That accumulation you've noticed on the pubic mound could be a side effect of those drugs you mentioned. I was not subscribed any drugs and did not have any retention in that region. And hardly any bladder retention a few days after catheter removal. I was told to expect some sluffing off of dead tissue starting about 5-7 weeks post procedure. I would see this as smallish solid pieces in my urine. I did see a small clump of tissue in my urine last night before bed. I have masturbated a couple times to "clear out the pipes". Ejaculate is bloody as expected. Getting less so.

REPLY
Please sign in or register to post a reply.