Trying to find answers after cecopexy - tortuous colon - mobile cecum
It’s been 7 years since my cecopexy. The first couple of years I felt quite well. I had suffered from constipation, bloating, cramping and Auden sharp pain in my abdomen for years. I consulted with several doctors in NYC and all I could get was an IBS diagnosis. On one of my trip to Cuba to visit my family, I visited a colon surgeon that told me my symptoms more likely were caused by a mobile cecum which causes people to have appendicitis-liked episodes. Upon a barium x-ray (one laying down and one standing) the surgeon could confirm that not only my cecum was mobile but my colon was elongated and in fact most of the transversal colon was on the lower part of my abdomen. The week later I got surgery. A cecopexy i which they also attached part of my colon to my right abdominal muscle. After a month that it took me to recover I felt 80 better. No more bloating or cramping, no more extreme fatigue and cold feet and hands. Now 4 years after pregnancy, I find myself with more symptoms than ever. Nausea, malaise, bloating, fatigue, poor sleep, cramping… I have visited some GI doctors in NyC and they have informed me they have never heard of the surgery I got and that my symptoms might be caused by IBS and stress … I can’t go back to Cuba to visit my doctor there who assures me my symptoms are most likely caused by the elongated colon that had stretched even more during my pregnancy. I can’t find a specialist in the US that is familiar with this condition and I am really frustrated and worried. Any recommendation you could give me as were to find a specialist?