Triple negative - newly diagnosed and looking for your experiences

Posted by roxy66 @roxy66, Oct 26, 2025

Im just diagnosed and frightened as hell. Please chime in with your experiences and lessons learned. Also any info you can share to help me prepare for chemotherapy, etc. 🙏🏻 Thanks

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Profile picture for dolphina3 @dolphina3

I had triple negative and am four years past treatment
It is scary at first not knowing what to expect. . You will meet your oncologist or in my case surgeon who told me my biopsy results.
They will run alot of tests at first to tell you what stage your cancer is to give you the best treatments . Mine, 4 years ago in canada, we're a CT can and bone scan. Once you talk to your oncologist you will find what your treatment will be. My regular Dr, told me to eat healthy to get ready for reatment. I added more vegetables and fruit to my diet.
Family and friends right now can really help, also walking or doing things you enjoy.
My cancer was stage 2.
Sending hugs and glad you found this web site, it is very helpful.

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Thank you for your response. I really appreciate your insights. I think I
am most anxious about the chemo Therapy at the moment. Did you have to have
chemotherapy and what was it like and what did you experience as far as
side effects hair loss, etc. thank you.

REPLY

I was diagnosed TNBC in early 2019 at age 66. Underwent chemo, lumpectomy and radiation which was completed at the end of that year.

I’ll let others chime in on the details, but I’m writing for two reasons. One, I’m still here at age 73, as are many other TNBC patients and two, please don’t read too much about this type. I’m a person who likes to know things so I was constantly reading. There are many advancements even since I was treated and everyone is different so please try to set the scary stuff aside and focus on putting one foot in front of the other.

Best wishes to you and all on this forum.

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Forgot to mention about chemo.
They will give meds to help with not getting sick from chemo.
I brought water and biosteel, a healthier type of Gatorade and sometimes a snack to eat.
I brought a lap blanket and slippers to be cozy. When I got treatment it was a saline solution first and then the chemo. So you are there a few hours.
I had a picline put in that they used for the chemo. Some have a port under the skin in upper chest. They use that each time for administering the chemo. Some clinics have cold caps to keep hair loss lower, ours didn't so I bought chemo caps thru Amazon, they have different kinds, some clinics have them for free, people donated some. I also bought a wig, I used it a few times but was more comfortable with the caps.
It effected my stomach so I needed to find food that helped.
Some clinics have dietitians that help with that as well.
Stay well hydrated through your treatment is important.
Ask the nurses any questions you have during chemo, they are very helpful.

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I had triple negative and am four years past treatment
It is scary at first not knowing what to expect. . You will meet your oncologist or in my case surgeon who told me my biopsy results.
They will run alot of tests at first to tell you what stage your cancer is to give you the best treatments . Mine, 4 years ago in canada, we're a CT can and bone scan. Once you talk to your oncologist you will find what your treatment will be. My regular Dr, told me to eat healthy to get ready for reatment. I added more vegetables and fruit to my diet.
Family and friends right now can really help, also walking or doing things you enjoy.
My cancer was stage 2.
Sending hugs and glad you found this web site, it is very helpful.

REPLY
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