Triple Negative Breast Cancer: What treatments are you having?
I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?
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Thank you for your tips on constipation. I will try it one day soon! I will check on the nutritionist at my chemo center. It wasn’t too bad yesterday. Fatigue has really hit me hard especially today…So I took it easy all day zzzzz
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1 ReactionI need to add that the NCCN guideline that the oncologist cites and printed from the NCCN guidelines for protocol was for a stage 1 estrogen positive cancer with negative sentinel node biopsy and clean margin lumpectomy. I don't want to inadvertently misinformed anyone.
I've tried to navigate thr NCCN website to give the URL but find it not user-friendly.
Interestingly, Mayo Clinic is one of the participants in this national partnership of cancer treatment centers working to continue to update recommended protocols as they become the current standard.
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2 ReactionsI can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?
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1 ReactionI’m 73 and was diagnosed with triple negative 7 years ago. It is a very aggressive cancer. I have no signs of my cancer returning. I would listen to my doctor if I was diagnosed at 80. My mother lived to be 95, so if I felt healthy at 80, I would do chemo again, maybe one of the newer drugs.
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5 ReactionsSorry to hear of your recurrence. I have the same diagnosis and had a mastectomy in Dec. Of course I worry about recurrence and constantly think, when will it be back? Where did yours show up?
In the same area as your lumpectomy?
I wish you well with your treatments and send hugs for better days to come
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3 ReactionsI am 70 and the same info was shared with me that you referred to. I am happy with my decision of no chemo/rad.
I wish you well in the journey we share
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6 ReactionsThank you for your encouragement...I also felt the treatment would kill me
faster than the cancer would catch up to me.
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3 ReactionsI've never had either, but chemo and radiation can be quite tolerable from what I've heard. It's such a complicated set of decisions to make that the only thing I've learned since a lumpectomy last fall is that there are no right answers, just choices that 'feel more right' than others. And a decision to not endlessly second-guess however it turns out. But it's not easy either way.
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2 ReactionsI agree....at 80 I wouldn't try chemo or radiation either. I would fear the treatment would kill me faster than the cancer.
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1 ReactionStandard treatment is the Red Devil and Taxol no matter what age. I had Lumpectomy, chemo and rads. This time lymph node dissection, started Gemzar/Carboplatin yesterday then I will have rads. First time I was 65. Now 68. Now if you have DMX they may add Keytruda before your surgery or after. Good luck 🍀 and keep me posted🙏🏼
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