Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

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Profile picture for Chris, Volunteer Mentor @auntieoakley

I can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?

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Thank you for your tips on constipation. I will try it one day soon! I will check on the nutritionist at my chemo center. It wasn’t too bad yesterday. Fatigue has really hit me hard especially today…So I took it easy all day zzzzz

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Profile picture for callalloo @callalloo

There are also NCCN guidelines, which one oncologist I saw referred to that don't exactly recommend no radiation for older women with low-stage cancer lumpectomies but suggest that skipping it be considered a viable, accepted protocol.

I kidded my breast surgeon, asking if this is just another economic triage idea (as recommended by Ezekial Emmanual and Cass Sunstein who advocate severely cutting funding for health care for the elderly) and she laughed, being in her late 50s.

And said that it's more a function of three things: there is very, very little data in breast cancer in older women since, until recently, routine mammograms in their case were not even offered; breast cancers in the elderly tend be less virulent and grow considerably more slowly; and the majority of women in that age group have comorbities and other health issues that can increase the risks of poorer outcomes.

She added that a lot of healthy active women also concentrate more on quality of life ("remaining years') issues and are far less likely to willingly tolerate side effects of various treatments.

All of that makes sense to me, variables that affect younger womens' decisions are viewed differently by older women with maybe a differing package of responsibilities.

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I need to add that the NCCN guideline that the oncologist cites and printed from the NCCN guidelines for protocol was for a stage 1 estrogen positive cancer with negative sentinel node biopsy and clean margin lumpectomy. I don't want to inadvertently misinformed anyone.

I've tried to navigate thr NCCN website to give the URL but find it not user-friendly.

Interestingly, Mayo Clinic is one of the participants in this national partnership of cancer treatment centers working to continue to update recommended protocols as they become the current standard.

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Profile picture for leolion811 @leolion811

Apparently my chemo combo of Gemzar and Carboplatin - the biggest side effects is nausea and constipation plus low platelets with low red & white cells. Does anyone know of any foods that could help? Thanks

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I can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?

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I’m 73 and was diagnosed with triple negative 7 years ago. It is a very aggressive cancer. I have no signs of my cancer returning. I would listen to my doctor if I was diagnosed at 80. My mother lived to be 95, so if I felt healthy at 80, I would do chemo again, maybe one of the newer drugs.

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Profile picture for leolion811 @leolion811

TNBC is a beast! I would do both chemo and rads! I am dealing with a reoccurrence and started chemo again today 🙏🏼

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Sorry to hear of your recurrence. I have the same diagnosis and had a mastectomy in Dec. Of course I worry about recurrence and constantly think, when will it be back? Where did yours show up?
In the same area as your lumpectomy?
I wish you well with your treatments and send hugs for better days to come

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Profile picture for callalloo @callalloo

There are also NCCN guidelines, which one oncologist I saw referred to that don't exactly recommend no radiation for older women with low-stage cancer lumpectomies but suggest that skipping it be considered a viable, accepted protocol.

I kidded my breast surgeon, asking if this is just another economic triage idea (as recommended by Ezekial Emmanual and Cass Sunstein who advocate severely cutting funding for health care for the elderly) and she laughed, being in her late 50s.

And said that it's more a function of three things: there is very, very little data in breast cancer in older women since, until recently, routine mammograms in their case were not even offered; breast cancers in the elderly tend be less virulent and grow considerably more slowly; and the majority of women in that age group have comorbities and other health issues that can increase the risks of poorer outcomes.

She added that a lot of healthy active women also concentrate more on quality of life ("remaining years') issues and are far less likely to willingly tolerate side effects of various treatments.

All of that makes sense to me, variables that affect younger womens' decisions are viewed differently by older women with maybe a differing package of responsibilities.

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I am 70 and the same info was shared with me that you referred to. I am happy with my decision of no chemo/rad.
I wish you well in the journey we share

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Profile picture for dedehans @dedehans

I agree....at 80 I wouldn't try chemo or radiation either. I would fear the treatment would kill me faster than the cancer.

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Thank you for your encouragement...I also felt the treatment would kill me
faster than the cancer would catch up to me.

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Profile picture for dedehans @dedehans

I agree....at 80 I wouldn't try chemo or radiation either. I would fear the treatment would kill me faster than the cancer.

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I've never had either, but chemo and radiation can be quite tolerable from what I've heard. It's such a complicated set of decisions to make that the only thing I've learned since a lumpectomy last fall is that there are no right answers, just choices that 'feel more right' than others. And a decision to not endlessly second-guess however it turns out. But it's not easy either way.

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Profile picture for jjhhdd @jjhhdd

I was diagnosed with invasive carcinoma, triple negative breast cancer in January. I had a lumpectomy in February. I had clear margins and clear lymph nodes. Because I am 80 years old I didn't feel it was right for me to get chemo or radiation. The study which I read ( JAMA Oncology) suggesting treatment, were done on much younger women (average age 51).

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I agree....at 80 I wouldn't try chemo or radiation either. I would fear the treatment would kill me faster than the cancer.

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Profile picture for jjhhdd @jjhhdd

May I ask what your age is? My decision would be different if I were younger and hadn’t had clear lymph nodes.

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Standard treatment is the Red Devil and Taxol no matter what age. I had Lumpectomy, chemo and rads. This time lymph node dissection, started Gemzar/Carboplatin yesterday then I will have rads. First time I was 65. Now 68. Now if you have DMX they may add Keytruda before your surgery or after. Good luck 🍀 and keep me posted🙏🏼

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