Triple Negative Breast Cancer: What treatments are you having?
I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?
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To @ milk thanks for your feedback. I too think I had too much radiation I had third-degree burns I made the radiologist stop for a week he insisted I continue the last five days and now I have extreme fatigue hard lumps on my breast that I’ve never experienced before the breast is double what size and I feel like I’m caring a gallon of water in place of my breast and I have no feelings so I think the nerve was also destroyed it’s numb and swollen all the way around to my back
I just had a mastectomy, my 1 cm tumor was 3N, but otherwise am ALL CLEAR!!! I DO NOT want to do chemo…I used to live in Mass. and would love to consult with that acupuncturist. thank you. not healing well due to too much radiation 3 yrs ago (IORT and adjutant)
I know you have had a very difficult journey, I thought you might benefit from this.
Sorry for the typo. It is Tom Tam
I was diagnosed with triple negative invasive carcinoma the breast at age 75. We wanted to give me chemo but I couldn’t get an egg because of the worker shortage trade 15 agencies they were all short of people I did the radiation I also did alternative treatment and Quincy mass with a Chinese acupuncturist who has healed people of cancer. I don’t know where you’re located but he’s located in Boston Quincy mass his name is Tom Rhen.If you don’t have any alternative to chemo you might try that and visualization I will keep you in my prayers
I know that this is a very difficult decision. I know you have agonized from the time you were diagnosed. We all have the right to make our own choices about treatment. I do hope you have a doctor you trust. Do you have family support?
At my oncologist yesterday and found out my new tumour is triple neg. I am 70 and doc talked with me about the effects of the type of chemo that would be used to treat this. She said anyone 65+ needs to understand this chemo really knocks you down and sometimes you can't get back up! Looked at the current stats with or without this chemo and decided I will NOT have chemo. I believe it is the right decision
Hope on the horizon.💕 there is a stage 2 trial being conducted and studied right now. There is an inducible target that can then be targeted with a new compound along side docetaxel. This is showing promising results in a very small trial. This is researchers finding a druggable target. I can’t say it will work out but I can say this is exactly the kind of work that is needed and ongoing for TNBC.
Imlistening, you might also be interested in this related discussion that @pattycron started and others like @kk57 @old @omaegg @jackiestack took part in.
– Capecitabine (Xeloda) side effects: how do you manage them? https://connect.mayoclinic.org/discussion/xeloda-oral-chemo/
Patty too has triple negative breast cancer and had chemo, surgery and radiation.
This is just heartbreaking, I know his happens because we have all been talking about it, but to feel like you beat it and have all that time go by and then be diagnosed with TNBC. Deep sigh!
Please take some deep breaths and get truly informed, before you decide. I know the thought of going through chemo again is hard. I personally have had to make this decision a couple times with her2+. Everyone has to choose their own path but the best thing my friend the surgeon who saved me in my 30’s ever told me was “The only good decision is a fully informed decision.” Make sure you have all the information and then make your decision. I will certainly be thinking about you. Has your doctor talked to about what he would recommend yet? Have you been information gathering?