Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

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@leolion811

I just had 1/2 of the oatmeal mixture that I made last nite. It sure was a lot to eat. Hopefully it will stay tasty to finish later! Very filling and tasty 😋 I don’t have a lot of appetite this morning and I feel like I am coming down with a head cold 😢 Thank you 😊 ( I hope I can go 💩)

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I am glad you liked your oatmeal. I have been thinking about you.
How are you doing?

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@auntieoakley

I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

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I just had 1/2 of the oatmeal mixture that I made last nite. It sure was a lot to eat. Hopefully it will stay tasty to finish later! Very filling and tasty 😋 I don’t have a lot of appetite this morning and I feel like I am coming down with a head cold 😢 Thank you 😊 ( I hope I can go 💩)

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@auntieoakley

I will be thinking about you, let me know how it goes.

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I sure will 😊

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@leolion811

Thanks for your update. I didn’t know what flavor to buy for the Kefir so I bought plain. Oh well. Once I add the oats, blueberries, touch of honey, almonds and milk, it should be good. Also picked up some flaxseed, date bites, diced pears, Colace too. I also bought Fig Newtons but I forgot prunes. I plan on putting it all together tonite and eat it in the morning and I will let you know! Thank you ☺️ My next treatment is next Tuesday.

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I will be thinking about you, let me know how it goes.

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@auntieoakley

I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

Jump to this post

Thanks for your update. I didn’t know what flavor to buy for the Kefir so I bought plain. Oh well. Once I add the oats, blueberries, touch of honey, almonds and milk, it should be good. Also picked up some flaxseed, date bites, diced pears, Colace too. I also bought Fig Newtons but I forgot prunes. I plan on putting it all together tonite and eat it in the morning and I will let you know! Thank you ☺️ My next treatment is next Tuesday.

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@leolion811

How much Kefir do you add? Picking up a few items at the store today, the Miralax is not working for me.

Jump to this post

I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

REPLY
@auntieoakley

I can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?

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How much Kefir do you add? Picking up a few items at the store today, the Miralax is not working for me.

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@leolion811

Yes I had 4 weeks of rads including 5 boosts. This time I will have 5 weeks of rads with no boosts. The tentative timeframe will be in September. I pray that your cancer doesn’t come back 🙏🏼 I hate cancer 😡

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Cancer is a very wily opponent indeed. There is the philosophical view that I took that, had I died at a younger age if something else, I'd have dodged it but that doesn't help me much ;-). For what it's worth, and I have a good track record with this stuff, I believe you'll come through this just fine. Tired, but fine. Prayers up for all of us and the people who love us.

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@callalloo

Did they do radiation on that same site after the lumpectomy? It was suggested that I have post-lumpectomy site-specific radiation as a kind of "clean up the area in case of missed cancer cells" but I was past the 6-week optimal time and declined. I was on the fence about it anyway so likely would have declined but this was an ER+, PR+ HER2- tumor, which I understand is a whole different animal.

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Yes I had 4 weeks of rads including 5 boosts. This time I will have 5 weeks of rads with no boosts. The tentative timeframe will be in September. I pray that your cancer doesn’t come back 🙏🏼 I hate cancer 😡

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@leolion811

My reoccurrence showed up from my ultrasound not mammogram. It was found in the fibroadipose tissue, localized (1.5cm) and they removed that with my Level 1 and 2 lymph nodes. It was right next to my lumpectomy. Thank you very much🥰

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Did they do radiation on that same site after the lumpectomy? It was suggested that I have post-lumpectomy site-specific radiation as a kind of "clean up the area in case of missed cancer cells" but I was past the 6-week optimal time and declined. I was on the fence about it anyway so likely would have declined but this was an ER+, PR+ HER2- tumor, which I understand is a whole different animal.

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