Triple Negative Breast Cancer: What treatments are you having?

OOPS!! You're so right! I won't analyze the psych loose associations there. I wish everyone well with these decisions. Never hesitate to request a second opinion on anything!

Theilmann1- you asked about course of treatment. I was stage 2A with 2.4 cm tumor. I was told that if over 2cm, the treatment was chemo, then surgery. I also learned that I had the ATM gene. I wanted to avoid radiation, so I did a double mastectomy with no reconstruction. I had clear nodes and clear margins and minimal lymphovascular invasion. I was told that the removal of all the breast tissue was a positive thing for the lymphovascular invasion. I did not reconstruct because I wanted to be able to easily feel any abnormality. The worry of reoccurrence will always be with me. That said, I felt good through all the treatments, the surgery and follow up. I have read of your journey and you have been through a lot. Wishing you the very best.

Hi I am on the zometa infusion, too. My question is after TNBC how often are your check ups after treatment is done. I was recently told somd are doing virtual appointments which is crazy. I want somebody checking my masectomy sight because I could miss something. My appts so far have been with the Dr.
Good luck to all.

Thank you

(I'm pretty sure you meant DEcrease, not increase…and I totally agree with your sentiment about doing anything, anywhere, anytime!) 🙂

I am a firm believer in Zometa (let me just say that out of the gate). I had the attitude that I would do anything to increase the risk of recurrence, anytime, anywhere (and that's one of them). The major downside is the inability to receive dental care while on it (at least around here). I finished my 6th infusion 6 months ago, and will be going to a med/dental hospital for overdue oral surgery (secondary to the chemo I had in 2019). My oncologist wanted me to wait a full 6 mos. Yes, Zometa has recently been shown to have tumor suppression properties in the bone. Initially it was prescribed for bone strength.

Welcome @clarke, I moved your message to this existing discussion:
– Triple Negative Breast Cancer: What treatments are you having? https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/

I did this so you can read through some of the previous posts and connect easily with other women living with triple negative breast cancer like @thielmann1 @olg1 @imlistening21 @lindaheard @mlk @gbnana @kk57 @leolion811 @seathink @jjhhdd @markagottlieb @kimann @sharonemma @asa13 and more.

Clarke, can you share more about you? What treatment is being suggested for you?

What meds for infusion were you given for stage 4 tnbc ?

I don’t know much about these magnetic treatments, but there is a page where you can connect with other TNBC patients here on connect.
This diagnosis carries with it shock and grief, and I hope that you have a good support system. Connect can help with that. Here is a link.
https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/
Have you discussed treatments with your doctor? Are you looking to PEMF as an additional treatment?

Seeking info on PEMF treatments but have expander. Confused by info I've found on various sites, some suggest no issue, others advise not to have this. Looking for answer.
Thank you, PSD

I agree with you about chemo. If you are healthy chemo is doable. I was 68 when diagnosed after testing they said I was okay for chemo and it wasn't that bad. They give you pills for nausea and you will feel fatigued. I would have chemo again if I have a recurrence. Mine was stage 2A no lymph nodes size 5.8 cm.
Good luck and best wishes for all going thru this journey.