Treatment for Prostate Cancer Metastasized to Bones

Thanks for your reply..
The more I watch Eugene Kwon's, the more I don't understand the Urologist..
He just told me that there were some very bad side effects with the chemo..
When I asked about where the bone metasis was, he said everywhere...but then didn't offer me the report...
I think you are right, and to get my family Dr. to refer me to the Cancer Clinic and at least get a second opinion there.
I was thinking of sending all my reports to Dr. Kwon to get his opinion, but not sure he will consult over the phone..
Thanks again for your info..

Hi All, I am Patrick and new to sharing, My Prostate Cancer has spread to 2nd and 6th ribs. I had the treatment's and am now on Enzalutamide tablets daily, I am 82 yo and have broken sleeps every night, whilst I don't share often, It's lovely to follow and know that I am not alone. I had a prostate operation about 4 yrs ago and they found (PC). PSA reading was above 10. I Had the treatments and PSA dropped down to 008, unfortunately it is now back up to 4.78 so they are keeping an eye on me, I am in no pain yet TG. Thank You for reading, and I wish you all a very happy Christmas and New Year and like You all I will keep exercising and searching for recovery. Much Love to all and God Bless.

Thank you for your reply. Coincidentally, this morning my spouse was just going over her notes from the first few weeks after my diagnosis and surgery, when I was in a pretty bad place. The oncology team at our Cancer Centre told her that in a case like mine (single metastasis to the spine, though a big enough one to leave me temporarily paraplegic), I could expect 5 to 10 years before organ involvement, and even that might also be easily treatable depending on where the cancer moved. I assume that estimate was based on ADT alone, because we don't have 10 years of data for androgen-receptor inhibitors like Erleada yet, but it might also be an educated guess taking Erleada into account.

No, I haven't.

Yes, with widespread metastases, Dr Kwon's triple approach would apply (from my layperson's understanding of his videos).

At my cancer centre (in a different Canadian province), I've been closely consulted and offered information and choices for every stage of my treatment. I know it's hard when you're already sick and low on energy, but I suggest moving heaven and earth to get into your cancer centre in Calgary — a team approach is always better than one (possibly-opinionated) urologist. You could even cold call the cancer centre to find out what referrals you need.

I'd hate for you to spend your retirement savings getting treatment in the US. What you want is available free here in Canada, probably even in your own city — my friend with lymphoma in my city was offered every available treatment, up to and including some brand-new genetic stuff and CAR-T (oncology's last, desperate Hail-Mary pass).

You deserve at least a good explanation of why your urologist is not offering you the option of chemo together with your ADT and radiation (they might have a good reason, but they don't seem to be communicating it to you if they do).

Best of luck, and remember that you're your own best advocate. DM me if you want to discuss further.

According to my hospital charts (which I can access online), my PSA was 67.90 on 13 October 2021 right before I started on Firmagon and Erleada. It fell to 11.60 by 4 November, a couple of weeks after starting on ADT and Erleada, then was detectable (< 0.01) at the next check on 4 February 2022, where it has stayed (last check was yesterday).

YMMV

Unscientific experience:
PSA dropped to undetectable after about 6 wks on Orgovyx.
Best wishes.

I think that the recognized Standard of care is presently more accepted and less effective than Dr Keon’s triple therapy. If the cancer is visible in multiple areas and if the patient is healthy enough then I think that the triple therapy is best

When I watched Eugene Kwan's video, it sounded like the Triple Therapy was the 'cure'...That you do the therapy for 18 weeks, and then you're off the Eligard and Apalutamide...
He's at the Mayo Clinic. You'd think other doctors would all be doing the same ...
My bone metasis is widespread...PSA levels now after 8 months of Hormone therapy are .2, so they tell me that's low...
I asked about a PET scan, and they told me they'd do a bone scan in a year...
I don't understand why all Doctors aren't doing the same standard treatment that apparently works...
Do I have to go to the Mayo Clinic to get treatment? I'm in Canada...so not as easy to go down there for treatment...
Is there a cure for Stage 4 prostate cancer, or do the treatments just give you a few extra months...
Frustrating...

May be SoC varies from one doctor to another, depending on their experience. As one doctor on a different disease put it, if the only tool you have is a hammer, then everything is a nail.
Doctor Schulz puts it another way. It would take many years for the benefits of one treatment to be proved. Even then, there may be no 'formal' or official statistical study for many years. Given the treatment, scanning etc have been moving so fast, it may be well advised not to dwell too much on all these studies.
For example, PSMA PET scan finds the bad cells much earlier than ever before. It is possible to eliminate them before it becomes a problem.
Beyond that, we are not testing a radioactive drug that both finds the bad cells and kills it at the same time.
So the chances or probabably of eliminating the cancer is much higher.
Does that help?
Dont mind me. I am just another layman trying to make some sense of the the whole thing.