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Treatment for LCIS (Lobular Carcinoma In Situ)

Posted by ach77 @ach77, 5 days ago

Has anyone here tried alternative treatments or medications other than tamoxifen for classic LCIS (Lobular Carcinoma In Situ) that might be effective and have fewer side effects?

Recently, I (F47) was diagnosed with LCIS and underwent a lumpectomy. The pathology report confirmed LCIS.

My doctor recommended tamoxifen (20mg for 5/ 10 yrs) to reduce the risk of breast cancer, but I'm concerned about its side effects, including the risk of uterine cancer.

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Mentor
Chris, Volunteer Mentor | @auntieoakley | 4 days ago

Hello @ach77 there is a discussion about this very topic that has been ongoing for a while and has other members with LCIS.
I think you will find some kindred spirits here.
https://connect.mayoclinic.org/discussion/lcis/

REPLY
christylv | @christylv | 3 days ago

Hi! I am on tamoxifen and my oncologist let me reduce my dose to 10 mg and then 5 mg. I take it at night right before bed. Honestly i really do not have any side effects that truly bother me. My periods are a little bit weird and some bladder issues sometimes but other than that I am good. You should at least try it. See if your oncologist will let you reduce your dose if 20 mg is to strong.

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1 reply
splutz | @splutz | 3 days ago

I was diagnosed 2 years ago with LCIS. I waited adit was very slow growing. I finally had a lumpectomy last November followed by radiation. I am not going to take any drugs but instead decided to try Mistletoe injections. They have very good results in Europe. A friend of mine had an aggressive breast cancer 7 years ago and after a mastectomy she began mistletoe therapy with other alternative supplements. She has a clean bill of health, while still undergoing the shots of mistletoe. It’s a personal decision but I believe there are alternatives out there without having to take tamoxifen.

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1 reply
ach77 | @ach77 | 1 day ago
In reply to @christylv "Hi! I am on tamoxifen and my oncologist let me reduce my dose to 10 mg..." + (show)
@christylv

Hi! I am on tamoxifen and my oncologist let me reduce my dose to 10 mg and then 5 mg. I take it at night right before bed. Honestly i really do not have any side effects that truly bother me. My periods are a little bit weird and some bladder issues sometimes but other than that I am good. You should at least try it. See if your oncologist will let you reduce your dose if 20 mg is to strong.

Jump to this post

Hello @christylv ...thanks for the reply.
Just wanted to know if you also had LCIS (classic type)?
For how long did you take 20mg and then it got reduced to 10mg and 5mg?

My oncologist has told me to start off with 20mg . I did google online and found that 5mg for 3yrs is equally effective with lesser side effects and especially for LCIS like mine which is non invasive .

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1 reply
ach77 | @ach77 | 1 day ago
In reply to @splutz "I was diagnosed 2 years ago with LCIS. I waited adit was very slow growing. I..." + (show)
@splutz

I was diagnosed 2 years ago with LCIS. I waited adit was very slow growing. I finally had a lumpectomy last November followed by radiation. I am not going to take any drugs but instead decided to try Mistletoe injections. They have very good results in Europe. A friend of mine had an aggressive breast cancer 7 years ago and after a mastectomy she began mistletoe therapy with other alternative supplements. She has a clean bill of health, while still undergoing the shots of mistletoe. It’s a personal decision but I believe there are alternatives out there without having to take tamoxifen.

Jump to this post

Thanks for letting know.
Was totally unaware of this injection.

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christylv | @christylv | 1 day ago
In reply to @ach77 "Hello @christylv ...thanks for the reply. Just wanted to know if you also had LCIS (classic..." + (show)
@ach77

Hello @christylv ...thanks for the reply.
Just wanted to know if you also had LCIS (classic type)?
For how long did you take 20mg and then it got reduced to 10mg and 5mg?

My oncologist has told me to start off with 20mg . I did google online and found that 5mg for 3yrs is equally effective with lesser side effects and especially for LCIS like mine which is non invasive .

Jump to this post

Hi! No, I had dcis. My oncologist did want me to start off with the 20mg first so I did. I was on it about three weeks before I called her. I had some back pain and cramping like my period was coming everyday. So when I called her she told me to take a week off then go to 10mg. I did that for 4 months . Then staring having some bladder pains/ cramps. So I just decided to go down to the 5mg. I have a follow up appointment with her in a few weeks. So we will see what she suggests. But so far the 5mg is very manageable. My bladder still acts up but not as much. No back pain at all any more. Although when I went to the 10mg my back felt a whole lot better than the 20mg. The 20mg just seemed way way way to strong for me.

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