Transverse myeolitis

Posted by roxiesmom13 @roxiesmom13, 2 hours ago

It’s been a while since I’ve posted but wanted to share my husbands journey. Five years ago he had neuropathy in his feet. Eventually it traveled up his body to his chest and hands. Last July he suddenly lost the ability to stand or walk. He was sent to ucsf for testing then rehab for a month. His diagnosis was transverse myelitis and a rare b12 deficiency which caused his brain/ body connection to not get the B12 into spinal fluid. He passed away the end of Feb from TM. My point is TM needs to be aggressively treated and B12 checked not with just a blood test that shows it’s ok. There are only a few hospitals that test for the condition UC San Francisco being one of them. Only one neurologist ( out of 5) he saw knew about this so if you have questions and they don’t know about it ask them to check. Even though it was too late for my husband I am thankful the one neurologist had read about the b12 connection.

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@roxiemom13, I am saddened to learn of your husband's passing. Hearing that only one of five neurologists knew of his condition seems unacceptable. It's no wonder that the public's confidence in the medical community is dropping year by year. I have experienced similar situations in which several "experts" told me that there was nothing else that could be done for me. Then, I continued searching, only to eventually find someone who was able to help me. I hope you are doing well. Let me say a prayer for you.

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