Toupet Fundoplication post op problem

Posted by nikki0120 @nikki0120, Oct 8, 2022

I am four weeks post and was doing very well advancing my diet. I was even able to eat some chicken in very small bites. The last few days it seems my progress is going backwards. I have been drinking more of the meal replacement shakes because I am struggling to swallow anything. Today I tried to eat some scrambled eggs and after taking one small bite I can feel it stuck at the bottom of my throat. I contacted my surgeon and said just to continue drinking small sips and try to push the egg down and he will do a UGI study next week. Has anyone else experienced this? It’s very discouraging since I was doing so well.

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I had a Toupet fundoplication 3.5 months ago bc my stomach was completely above my diaphragm. I did well following the diet but about 6 weeks ago, I started having burning in my chest, gas, and stomach pain. My doctor has me taking 80mg of Prilosec a day, plus I take Gas-X, Gaviscon, and Mylanta liquid. That’s a lot of medication, and I’m wondering if this is normal. I’m careful not to eat fats, tomato sauce, certain fruits and veggies, sodas, and beef. I’m discouraged. Anyone have a suggestion? Thanks!

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Profile picture for mpool @mpool

I had a Toupet fundoplication 3.5 months ago bc my stomach was completely above my diaphragm. I did well following the diet but about 6 weeks ago, I started having burning in my chest, gas, and stomach pain. My doctor has me taking 80mg of Prilosec a day, plus I take Gas-X, Gaviscon, and Mylanta liquid. That’s a lot of medication, and I’m wondering if this is normal. I’m careful not to eat fats, tomato sauce, certain fruits and veggies, sodas, and beef. I’m discouraged. Anyone have a suggestion? Thanks!

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Sorry, I don't have a suggestion. I'm here looking for info, I'm having the surgery next month and getting a little anxious about life after the surgery. Your experience sounds terrible. I probably shouldn't be looking for support for this on the internet, lol, I'll talk myself out of it.

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Profile picture for mpool @mpool

I had a Toupet fundoplication 3.5 months ago bc my stomach was completely above my diaphragm. I did well following the diet but about 6 weeks ago, I started having burning in my chest, gas, and stomach pain. My doctor has me taking 80mg of Prilosec a day, plus I take Gas-X, Gaviscon, and Mylanta liquid. That’s a lot of medication, and I’m wondering if this is normal. I’m careful not to eat fats, tomato sauce, certain fruits and veggies, sodas, and beef. I’m discouraged. Anyone have a suggestion? Thanks!

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Has any of this cleared up for you? HOw are you doing now? I'm having the surgery next month and beginning to overthink it.

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Profile picture for christina1508 @christina1508

HiI had my toupet ( partial wrap) fundoplication on the 26th of May. I am now 4 days post op and I'm back home.So I'm not going to lie and I want to give my honest opinion of my story but remember everyone is different and copes differently.when I woke in recovery room I was obviously highly dosed on drugs and didn't feel any pain.back on the ward pretty sure I just dosed on and off. I realised pretty soon I could swallow with no issues despite having a gastric tube in my nose down in to my stomach. This was in place attached to a bag to drain contents and gas from the stomach. At first it wasn't bothering me but I was soon begging for it to be taken out. It was so thick and everytime I moved or spoke it was rubbing on my throat causing me to retch.. this hurt my stomach area. it was also causing me to swallow therfore filling me with more air. Had it removed later in the morning and that was such a relief.Had to have help to get out of bed and was up walking round the day after.The gas they use to bloat you up to be able to do the surgery is very uncomfortable in your chest and shoulders and it does feel like it very hard to breathe. you can breathe but it's uncomfortable... heavy.walking around definitely helps get rid of this.laxatives are a must as you get bunged up and can make you feel very sick and of course you can't be sick after this operation.Day 4 I feel pretty okay actually. I'm resting and tired. Not got much of an appetite but swallowing as not been an issue and I am able to burp. little burps.the gas bloat is real though but totally normally and I've told that will calm down after 2 to 3 months

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Everyone’s esophageal physiology is different. I needed the Toupet due to uncontrolled GERD, that worked, I had a second surgery to take down the Toupet to a Dor in the hope that would help my dysphagia. It did not. After having gone through that, plus two more dilations, the conclusion is that my problem is not structural but a functional problem with ineffective motility. It’s taken weeks to get a referral but I am seeing a motility specialist next week. Don’t give up on the Toupet if you need it, especially if you have Barrett’s like me. But I would make sure that is your only realistic option. There is a new class of drugs the FDA just approved for esophagitis called P-CABs that might help in the future for folks that can’t tolerate the adverse effects of PPIs, like me. I learned through this yearlong process that surgeons think like surgeons, so make sure your general GI is on board. Cheers

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Profile picture for christina1508 @christina1508

HiI had my toupet ( partial wrap) fundoplication on the 26th of May. I am now 4 days post op and I'm back home.So I'm not going to lie and I want to give my honest opinion of my story but remember everyone is different and copes differently.when I woke in recovery room I was obviously highly dosed on drugs and didn't feel any pain.back on the ward pretty sure I just dosed on and off. I realised pretty soon I could swallow with no issues despite having a gastric tube in my nose down in to my stomach. This was in place attached to a bag to drain contents and gas from the stomach. At first it wasn't bothering me but I was soon begging for it to be taken out. It was so thick and everytime I moved or spoke it was rubbing on my throat causing me to retch.. this hurt my stomach area. it was also causing me to swallow therfore filling me with more air. Had it removed later in the morning and that was such a relief.Had to have help to get out of bed and was up walking round the day after.The gas they use to bloat you up to be able to do the surgery is very uncomfortable in your chest and shoulders and it does feel like it very hard to breathe. you can breathe but it's uncomfortable... heavy.walking around definitely helps get rid of this.laxatives are a must as you get bunged up and can make you feel very sick and of course you can't be sick after this operation.Day 4 I feel pretty okay actually. I'm resting and tired. Not got much of an appetite but swallowing as not been an issue and I am able to burp. little burps.the gas bloat is real though but totally normally and I've told that will calm down after 2 to 3 months

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None. I joined the thread bc i was desperate for info. Then I dropped out bc it was too depressing.

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Profile picture for christina1508 @christina1508

HiI had my toupet ( partial wrap) fundoplication on the 26th of May. I am now 4 days post op and I'm back home.So I'm not going to lie and I want to give my honest opinion of my story but remember everyone is different and copes differently.when I woke in recovery room I was obviously highly dosed on drugs and didn't feel any pain.back on the ward pretty sure I just dosed on and off. I realised pretty soon I could swallow with no issues despite having a gastric tube in my nose down in to my stomach. This was in place attached to a bag to drain contents and gas from the stomach. At first it wasn't bothering me but I was soon begging for it to be taken out. It was so thick and everytime I moved or spoke it was rubbing on my throat causing me to retch.. this hurt my stomach area. it was also causing me to swallow therfore filling me with more air. Had it removed later in the morning and that was such a relief.Had to have help to get out of bed and was up walking round the day after.The gas they use to bloat you up to be able to do the surgery is very uncomfortable in your chest and shoulders and it does feel like it very hard to breathe. you can breathe but it's uncomfortable... heavy.walking around definitely helps get rid of this.laxatives are a must as you get bunged up and can make you feel very sick and of course you can't be sick after this operation.Day 4 I feel pretty okay actually. I'm resting and tired. Not got much of an appetite but swallowing as not been an issue and I am able to burp. little burps.the gas bloat is real though but totally normally and I've told that will calm down after 2 to 3 months

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where did you get your surgery ? And who was you doctor?And how are you doing now?

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Profile picture for isaumur @isaumur

Has any of this cleared up for you? HOw are you doing now? I'm having the surgery next month and beginning to overthink it.

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I'm trying to find out information too .It seems like people are only on these chats for a short time where do they go . Is there a way we can get in contact with them to see if they got better?

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I had the operation at Mayo in June. Dr Edwards. Best experience I have had. I was on morphine
for a couple of days and had no pain. Because the operation was done late in the day, I stayed over night 2 days. After getting food that I should not have had (too big of a bite not enough chewing) a few times I learned to eat small bites and chew. I stayed on liquid protein shakes. The last thing he said is stay on soft foods for life. Steak, Chicken, Bread will be difficult and ya know what he was right. My esophagus does not push food down very well. That said other than more gas than I would like to have, the operation was a raving success. Give your self several months to adapt.

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Profile picture for stoclady @stoclady

I had the operation at Mayo in June. Dr Edwards. Best experience I have had. I was on morphine
for a couple of days and had no pain. Because the operation was done late in the day, I stayed over night 2 days. After getting food that I should not have had (too big of a bite not enough chewing) a few times I learned to eat small bites and chew. I stayed on liquid protein shakes. The last thing he said is stay on soft foods for life. Steak, Chicken, Bread will be difficult and ya know what he was right. My esophagus does not push food down very well. That said other than more gas than I would like to have, the operation was a raving success. Give your self several months to adapt.

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I forgot to mention I also got a partial mesh implant

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Profile picture for stoclady @stoclady

I forgot to mention I also got a partial mesh implant

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what operation did you get? And which mayo clinic is dr. Edwards at did it take long to get an appointment. I'm having extreme acid reflux my doctor has me on 80mg omeprazole.It's working but I still can't lay down without having stomach discomfort. And the medicine is giving me extreme anxiety. I can't eat much food it makes the acid come up this has been going on for 3 months now. My quality of life is awful I'm so unwell I can hardly leave the house because I feel so ill. I live in Reno Nv I'm thinking about going to Stanford to see if someone can help me or is it faster to get into the mayo clinic. My insurance won't go to either places so I'm going to pay out of pocket. Does any one have any advice what to do has anyone been this ill. It all started when I got off my ppi now I'm on 80 mg and I'm still having issues. I feel like I need a team of doctors to help figure out what's going on with my body .

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