too many years of pain

I hope you find something that helps. I am thinking of trying medical cannabis. I need more sleep and less pain at night. The downside is the expense.

Look up Journavx

Yeah don’t give up! That’s the attitude. I just wrote a big old reply to another subject, but it had to do with pain management and having a good attitude during our struggle to have quality of life. You can find joy and blessings in your 45 year relationship with a supportive partner. That is an amazing thing. I can have joy and blessings in that although I am alone on this journey, I am strong and self reliant. I promise everyone that there is some asset they have in their life on the other side of their curse. I believe in the principle of duality over my lifetime and someone once told me that when you are mired in sh*t you reach to the other side. Sometimes that means just being still and breathing deep. “ this too shall pass.” Always rings true for me, weather I am pain-free or in consuming pain, I try to remember that I am a spiritual being. Everything in life is a practice for me, forever the student.

Listening to all my fellow chronic pain sufferers reminds me that the pain and suffering of this world is relatively minor compared to the riches we who are followers of Jesus will experience some day. This is not to minimize anyone's pain at all. I heard an excellent sermon this morning on pain and suffering. This verse from Romans 8 really hit home to me. "I consider that our present sufferings are not worth comparing to the glory that will be in us". Romans 8:18
I pray that you all have a better day today.

look up Journavx

Why? Oh,, I did and there is a specific thread for the generic name. I asked my doctor and she replied that there’s not much information on it and it does seem to be specifically targeted for post surgery operative pain, not long-term chronic pain.

I’m reporting on my experience with Journavx. I am on a beach vacation, which involves flying, walking a lot, walking on sand, balancing my body in the water, etc. My neuropathy pain is not well controlled because we are trying different medications, and I’m not well medicated ( that’s a long story). My wonderful PCP agreed to give me a week of Journavx. My other doctors didn’t feel comfortable using it off-label (chronic pain) for their first patient.
I took the 100 mg loading dose Tuesday night. Within 45 minutes my toes stopped burning! This is day 4 of 50 mg twice a day. I feel very mild small fiber neuropathy pain and burning, but it’s really diminished. I feel like 75 or 100 mg twice a day, or actually more frequent doses (6-8 hours) would be life changing.
I think this medication will be very important for the neuropathy community. Just a few tweaks, and some individual dosing.
My experiment ends in a few days. Not sure if I will be able to get more. And I’m on Medicare, so had to pay $57 for one week. At this point I wouldn’t care about the price!
There is a coupon, but you can’t use coupons on Medicare or Medicaid.
Don’t ask me a lot of questions, because I’m at the beach relaxing!😌

While we all want to stay pain free........and i think i would do anything i could to stop any pain..................please, go on line and ask about all the side effects.
Sometimes, what is great today, can cause more troubles later............I did not check the drug, i just think it would be good for you to know if there are any potential problems by taking the dosage you need, on a long term basis.
I'm thinking sort of like the cortisoid (spelling is wrong) shots they give for knee pain. they work great for a while, then not later, and in the process , seems they create problems after a while..........don't know, just read a little on that..............Knowledge is the best thing to have.............so, be informed, and find some info..............don't expect any dr. to tell you all you need to know.........check out all the info from the different websites.