Tomorrow is Surgery Day: NETs in pancreas tail

Posted by billyfeet @billyfeet, May 25, 2023

After a surprise CT Scan revealed a 2CM Neuroendocrine Tumor on the tail of my pancreas in February I am finally going in for surgery to remove it tomorrow. I have benefitted from the information gathered in the posts on this forum provided by the folks suffering from similar fates. I feel so much better prepared mentally for what lies ahead since joining this group. Thanks to all who participate in sharing experiences and knowledge. I hope to be able to provide some recovery experience posts as time goes by. Looking forward to having this behind me.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

billyfeet | @billyfeet | Jun 2, 2023

In reply to @michellesimpson10 "I had the same surgery on May 8. It’s quite the surgery and the pain can..." + (show)

What pain meds are you currently taking at home? I may go home today. Pain is almost at nothing with what I a, getting in hospital. Forget the name….it is a NSAID….been off narcotics for days. How are you feeling at this point? Eating?

michellesimpson10 | @michellesimpson10 | Jun 1, 2023

I had the same surgery on May 8. It’s quite the surgery and the pain can be a bit much but as others have said, please stay ahead of the pain. I missed 2 doses at home and had to play catch up. Each day will get better. Just pace yourself and don’t over do anything. Listen to your body and rest. Let your body heal. Big hugs and prayers 💜💜

jadedprincess | @jadedprincess | May 31, 2023

In reply to @billyfeet "Day2 of recovery has been trying. Bloating, breathing issues and pain are the order of the..." + (show)

Your body needs time to heal. I've been through this surgery myself. You will likely have good days and bad days but even on the bad days, your body is busy at work with it's healing process. Please take the pain meds if you need them. It's best not to let the pain get out of control, then it's harder to manage. You are in my thoughts. You can do this! 🙂

pavlina60 | @pavlina60 | May 30, 2023

In reply to @billyfeet "Day2 of recovery has been trying. Bloating, breathing issues and pain are the order of the..." + (show)

As much as it sounds impossible - it gets better every day! Try to move, walk! You got this!! Prayers!🦓💜

kim1965 | @kim1965 | May 30, 2023

In reply to @ahtaylor "Keep hanging in there. . . It does get easier!!" + (show)

Day 1 was good for us, then day 2 was also difficult for Kim. But hopefully your through the worst of it. I know when she started walking even just distances down the hallway, she felt so much better. As much as it hurts somehow it tells the body, time to start healing on your next journey in this process against NET. Hang in there you got this. Keep us updated as your able please.

ahtaylor | @ahtaylor | May 29, 2023

Keep hanging in there. . . It does get easier!!

billyfeet | @billyfeet | May 29, 2023

Day2 of recovery has been trying. Bloating, breathing issues and pain are the order of the day. Pain got worse as day wore on…this was expected as I had a spinal injection of Morphene that was set to last 24 hours. Weird dreams, shortness of breath and pain filled the night. Going to drop all pain meds today…..hope for a BM!