Tips for managing chronic Small Bowel Obstructions
Hey everybody!
I joined this group hoping to find tips for managing recurrent/chronic SBOs. I had a Ladd's procedure at 4 days old which left me with scar tissue.
I started having partial SBOs at 25 but they went misdiagnosed as biliary colic because my anatomy is weird so I presented with RUQ pain mimicking gallbladder issues.
Last year in March I was diagnosed with a closed loop bowel obstruction and had emergency surgery. They found that my intestines were adhered to my liver and gallbladder and the surgeon removed my gallbladder an resected a small portion of my small intestine. That resulted in a 21 day stay in the hospital due to post op complications.
This year in June I had yet another SBO that ultimately resulted in another surgery. My surgeon said it looked like someone had dumped super glue in my abdomen the adhesions were so bad. That surgery resulted in a 26 day hospital stay ( my bowels don't like to wake up post surgery).
I am now following a low fiber/no fiber diet, work out regularly, and drink 124 oz of water daily. I have had at least 2 SBOs since being released which were both managed with an NG. I find that eating any food sets me off and have had to stick to mostly liquids.
Any tips for how to manage this thing??
Jennifer
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Thank you for your reply. Sorry that you’ve been through this as well and with even longer duration of abdominal soreness after.
Thank you for your reply and sorry to hear about your long hospital stay. I have no concerns with constipation and have not changed my diet. Unfortunately for me SBO has come back as I’ve had several episodes. Perhaps the GI doctor will recommend a change in diet. We will see. I am just anxious to find out why these recurring SBO episodes are happening.
I do hope you have some success in finding out why this is happening, I am sure your GI doctor will be able to help. Keep us posted!
I've had multiple SBO due to adhesions myself but my aunt started having them about 10-15 years ago without history of abdominal adhesions. The first one seemed like a fluke to her doctor but over the years they became more frequent, just like in your case. About 2-3 years ago she had another one and they decided to do small bowel resection surgery. Afterwards her doctor told her that he believes that what caused the strictures in her intestines was the prescription NSAID med she had been on for years for psoriatic arthritis. I think it may have been methotrexate. Really surprising that such an innocuous medication could have played a role in damaging her intestines this way, although I guess we never really know what the long term effects of any drug are until they arrive. Maybe you can discuss any medications or supplements with your GI that might be involved. I also highly recommend researching online any meds or supplements that you take on a regular basis to see if there are any mentions of digestive system or intestinal side effects. Praying you get some answers!
I am 77 years old and started having bowel problems several years ago. I had 3 inpatient trips to hospital with obstructed small bowel. Last one was 6 months ago. GI doctors call it a pseudo small bowel obstruction and I have been on 2 prescriptions for over a year. They must help but I still had my last obstruction after being on those meds. GI doctors tell me to eat whatever I want. They say there is nothing further they can do and will see me in a year. They did say if I am passing gas it isnt an obstruction so if I get the terrible pain but am passing gas I dont go to the hospital but take as much pain meds as possible and hope thecpain goes away eventually.
I'm so sorry that you're going through this. May I ask what medication they prescribe for pseudo SBO?
Hi Sarah! I had a small bowel obstruction twenty years ago, which required surgery. Turned out to be malrotation of the intestines, which is a genetic defect. I was lucky enough to have a surgeon who recognized the condition upon doing exploratory surgery. I doubt that this is what you have (it's very rare), but worth asking about. I'm sorry you are having to go through this, and wishing you the best of luck!
Jamp pyridostigmine 60 mg and jamp Prucalopr8de 2 mg.
Prucalopride
Thank you. I'm also on prucalopride.