Tips for managing chronic Small Bowel Obstructions

Posted by jljacoby @jljacoby, Dec 10, 2018

Hey everybody!
I joined this group hoping to find tips for managing recurrent/chronic SBOs. I had a Ladd's procedure at 4 days old which left me with scar tissue.
I started having partial SBOs at 25 but they went misdiagnosed as biliary colic because my anatomy is weird so I presented with RUQ pain mimicking gallbladder issues.
Last year in March I was diagnosed with a closed loop bowel obstruction and had emergency surgery. They found that my intestines were adhered to my liver and gallbladder and the surgeon removed my gallbladder an resected a small portion of my small intestine. That resulted in a 21 day stay in the hospital due to post op complications.
This year in June I had yet another SBO that ultimately resulted in another surgery. My surgeon said it looked like someone had dumped super glue in my abdomen the adhesions were so bad. That surgery resulted in a 26 day hospital stay ( my bowels don't like to wake up post surgery).
I am now following a low fiber/no fiber diet, work out regularly, and drink 124 oz of water daily. I have had at least 2 SBOs since being released which were both managed with an NG. I find that eating any food sets me off and have had to stick to mostly liquids.
Any tips for how to manage this thing??
Jennifer

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for Amanda Burnett @amandaa

Hi @vickicustodio and welcome! I noticed that you hadn't had any recipe suggestions so I thought I would connect you with others who have had chronic small bowel obstructions like @meggy123, @stuckonu, and @tigreyes2004

This site is actually really good for pureed foods. You cook the food like you normally would, add a couple of addition ingredients and then blend them.
https://www.oncolink.org/support/nutrition-and-cancer/recipes/dealing-with-side-effects/recipes-for-soft-pureed-foods
How is he currently doing?

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Thank you Amanda. I appreciate your recipes. Grandson doing “ok” No more ER visits/hospital admissions but he is getting bored with the few recipes we have. I am excited to share with his mom

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Profile picture for meggy123 @meggy123

Hi everyone. Im new to the groups. I came across the Mayo clinic name from another page. I was diagnosed with Crohn's in 2007 and in 2008 i had surgery. About 30cm of my small intestine was removed it was so inflamed. Since then i have had no active crohns inflammation but i do have a stricture where my surgery was. That started probably 6 or 7 years ago. I have the balloon treatment to open it every time i have terrible flare ups with it. I've been told that there isn't much that can be done for strictures. My last colonoscopy in June 2019 my GI opened the stricture up. 3 weeks ago i had the worst night of my life. I was throwing up the entire night and in terrible stomach pain. I was so dehydrated and dizzy. It wasn't until the morning when i could finally go to the bathroom i felt better. That day i had chunky carrots and other vegetables. I have been told that veggies and fruit raw or not soft enough and can trigger strictures to flare. Ive stayed away from fruit and veg because im terrified of that night happening again. I just don't know what to eat anymore and so afraid of that night happening again. Is there anything other than surgery that can help?

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Balloon treatment once a year works for me. Also, fruits and vegetables, especially raw are a major problem. I have a great doctor who told me that you have to be careful of the skin of things like tomatoes, grapes, blueberries and also lettuce which can ball up ( even well chewed) and cause a blockage. IfI feel as if I might have a twisted intestine or a temporary blockage- I immediately switch to liquids only, especially warm ones and it usually works in a few hours. Everyone is different, so you have to experiment. BTW- mushrooms are a major no- no for me. Trial and error. Hope this helps

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Profile picture for sbr270 @sbr270

Balloon treatment once a year works for me. Also, fruits and vegetables, especially raw are a major problem. I have a great doctor who told me that you have to be careful of the skin of things like tomatoes, grapes, blueberries and also lettuce which can ball up ( even well chewed) and cause a blockage. IfI feel as if I might have a twisted intestine or a temporary blockage- I immediately switch to liquids only, especially warm ones and it usually works in a few hours. Everyone is different, so you have to experiment. BTW- mushrooms are a major no- no for me. Trial and error. Hope this helps

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What is balloon treatment?

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Profile picture for beckyt @beckyt

What is balloon treatment?

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It is a procedure done to stretch strictures with a balloon inserted during a colonoscopy/sigmoidoscopy to prevent a blockage. I have it done once a year and at that time they check for activity and polyps as well. My insurance requires it is done at the hospital, rather than at at the doctors office to be covered. I think I have been having this for almost 10 years and it has worked for me. I do not have active Crohn's, not on any medication. The stricture from 2 previous surgeries is my problem

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Profile picture for sbr270 @sbr270

It is a procedure done to stretch strictures with a balloon inserted during a colonoscopy/sigmoidoscopy to prevent a blockage. I have it done once a year and at that time they check for activity and polyps as well. My insurance requires it is done at the hospital, rather than at at the doctors office to be covered. I think I have been having this for almost 10 years and it has worked for me. I do not have active Crohn's, not on any medication. The stricture from 2 previous surgeries is my problem

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Thanks, I wonder why my Dr never mentioned it. I had 4 admissions for sbo within 6 months. NG all 4 times and sent home days later. Last admission they decided to do another surgery to remove some scar tissue. It had been 2 yrs since the previous surgery.

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Hi all. I have not posted for a while; I thought I had my SBO under control, but after emergency surgery for a femoral hernia and an overnight in the hospital with an NG tube for another incident... (2021 was not a great year!) I find that I am almost totally on a low residue diet and watching every bite of food I take. As a result, I am frequently anxious about eating and find myself feeling constipated and bloated (and worried). Any advice on how I can eat better and feel less sluggish? Thanks in advance. This site is so helpful.

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Profile picture for marciakeren @marciakeren

Hi all. I have not posted for a while; I thought I had my SBO under control, but after emergency surgery for a femoral hernia and an overnight in the hospital with an NG tube for another incident... (2021 was not a great year!) I find that I am almost totally on a low residue diet and watching every bite of food I take. As a result, I am frequently anxious about eating and find myself feeling constipated and bloated (and worried). Any advice on how I can eat better and feel less sluggish? Thanks in advance. This site is so helpful.

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@marciakeren I understand how your experiences could make you nervous about eating foods. I was wondering if there could be other contributing factors that could cause constipation like perhaps other prescription drugs or antibiotics? It may be worth talking to your pharmacist for information. Have you been on antibiotics that would be killing off your normal healthy gut bacteria? You can re-establish beneficial gut bacteria with supplements or foods like yogurt. These would be questions to ask your doctor as to what is right in your situation. Water consumption is also important because your body will reabsorb it from the colon if you are dehydrated. Your body needs water for kidney function in removing waste products from the blood stream. Ask your doctor how much you should be drinking on a daily basis, and remember caffeine is a diuretic and removes water from your body.

This is from Harvard about gut bacteria https://www.hsph.harvard.edu/nutritionsource/microbiome/

Has your thyroid function been checked? A low functioning thyroid does cause constipation and I have experienced that myself. I had Hashimoto's thyroiditis which can cause hormone levels to fluctuate and eventually the thyroid will have low levels of its normal output. I do take a prescription of natural desiccated pig thyroid and if I do not get enough, I get constipated and tired. When my dose is right, all is well.

Here is a link.
https://www.mayoclinic.org/diseases-conditions/hypothyroidism/symptoms-causes/syc-20350284
Has your doctor discussed any of these possible issues with you?

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Profile picture for marciakeren @marciakeren

Hi all. I have not posted for a while; I thought I had my SBO under control, but after emergency surgery for a femoral hernia and an overnight in the hospital with an NG tube for another incident... (2021 was not a great year!) I find that I am almost totally on a low residue diet and watching every bite of food I take. As a result, I am frequently anxious about eating and find myself feeling constipated and bloated (and worried). Any advice on how I can eat better and feel less sluggish? Thanks in advance. This site is so helpful.

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Hello @marciakeren

I can empathize with you about fearing food. I have had three surgeries of the upper digestive tract and the first two surgeries involved a 6-day hospital stay for each surgery. During that time, I was dependent on an IV for hydration, I had an NG tube so I had nothing by mouth for 4 -to 5 days.

I also found it difficult getting back to eating because it was hard to know which foods would cause other digestive tract symptoms. What was helpful for me was getting a referral to a registered dietician at the hospital. Dieticians can be very helpful and supportive in working out a food plan to help in these types of situations.

Have you seen a dietician yet?

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@marciakeren I understand how your experiences could make you nervous about eating foods. I was wondering if there could be other contributing factors that could cause constipation like perhaps other prescription drugs or antibiotics? It may be worth talking to your pharmacist for information. Have you been on antibiotics that would be killing off your normal healthy gut bacteria? You can re-establish beneficial gut bacteria with supplements or foods like yogurt. These would be questions to ask your doctor as to what is right in your situation. Water consumption is also important because your body will reabsorb it from the colon if you are dehydrated. Your body needs water for kidney function in removing waste products from the blood stream. Ask your doctor how much you should be drinking on a daily basis, and remember caffeine is a diuretic and removes water from your body.

This is from Harvard about gut bacteria https://www.hsph.harvard.edu/nutritionsource/microbiome/

Has your thyroid function been checked? A low functioning thyroid does cause constipation and I have experienced that myself. I had Hashimoto's thyroiditis which can cause hormone levels to fluctuate and eventually the thyroid will have low levels of its normal output. I do take a prescription of natural desiccated pig thyroid and if I do not get enough, I get constipated and tired. When my dose is right, all is well.

Here is a link.
https://www.mayoclinic.org/diseases-conditions/hypothyroidism/symptoms-causes/syc-20350284
Has your doctor discussed any of these possible issues with you?

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Thank you for your advice. My thyroid is fine, I hope! ; dr checks it every year, so thank goodness that is not one of my problems. It is just the intermittent SBO caused by adhesions that is my issue. I find that I am hyper aware of everything I am thinking of eating now and scared of "the wrong thing." But I will ask the dr about potential thyroid issues.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @marciakeren

I can empathize with you about fearing food. I have had three surgeries of the upper digestive tract and the first two surgeries involved a 6-day hospital stay for each surgery. During that time, I was dependent on an IV for hydration, I had an NG tube so I had nothing by mouth for 4 -to 5 days.

I also found it difficult getting back to eating because it was hard to know which foods would cause other digestive tract symptoms. What was helpful for me was getting a referral to a registered dietician at the hospital. Dieticians can be very helpful and supportive in working out a food plan to help in these types of situations.

Have you seen a dietician yet?

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Thank you for the advice. Unfortunately I have not been able to find a dietician here who understands the issues.. still looking. And your encouragement is sending me back to the hunt!

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