Tips for managing chronic Small Bowel Obstructions
Hey everybody!
I joined this group hoping to find tips for managing recurrent/chronic SBOs. I had a Ladd's procedure at 4 days old which left me with scar tissue.
I started having partial SBOs at 25 but they went misdiagnosed as biliary colic because my anatomy is weird so I presented with RUQ pain mimicking gallbladder issues.
Last year in March I was diagnosed with a closed loop bowel obstruction and had emergency surgery. They found that my intestines were adhered to my liver and gallbladder and the surgeon removed my gallbladder an resected a small portion of my small intestine. That resulted in a 21 day stay in the hospital due to post op complications.
This year in June I had yet another SBO that ultimately resulted in another surgery. My surgeon said it looked like someone had dumped super glue in my abdomen the adhesions were so bad. That surgery resulted in a 26 day hospital stay ( my bowels don't like to wake up post surgery).
I am now following a low fiber/no fiber diet, work out regularly, and drink 124 oz of water daily. I have had at least 2 SBOs since being released which were both managed with an NG. I find that eating any food sets me off and have had to stick to mostly liquids.
Any tips for how to manage this thing??
Jennifer
Interested in more discussions like this? Go to the Digestive Health Support Group.
I’ve just had my 3rd rodeo of SBO and am looking for real food advice to possibly prevent this from reoccurring. Of coarse, this is happening d/t appendectomy surgery in 1983 during my first pregnancy....so what could possibly be worse?! I’m looking for serious food advice please. Thanks in advance!
Low residue diet which is low fiber, no more than 2 grams per serving. No raw veggies, fruits with skins, seeds, no nuts etc. Mayo should have access to a complete low residue diet online. Also I lived on Boost Breeze while I had blockages. I have undergone 5 intestinal surgeries in the past 2 years. I ordered it on Amazon, since you can’t find it in stores. It is clear, and has 9 grams of protein in each box. Very tasty as well.
Thank you. I will look up the boost.
Hi everyone. Im new to the groups. I came across the Mayo clinic name from another page. I was diagnosed with Crohn's in 2007 and in 2008 i had surgery. About 30cm of my small intestine was removed it was so inflamed. Since then i have had no active crohns inflammation but i do have a stricture where my surgery was. That started probably 6 or 7 years ago. I have the balloon treatment to open it every time i have terrible flare ups with it. I've been told that there isn't much that can be done for strictures. My last colonoscopy in June 2019 my GI opened the stricture up. 3 weeks ago i had the worst night of my life. I was throwing up the entire night and in terrible stomach pain. I was so dehydrated and dizzy. It wasn't until the morning when i could finally go to the bathroom i felt better. That day i had chunky carrots and other vegetables. I have been told that veggies and fruit raw or not soft enough and can trigger strictures to flare. Ive stayed away from fruit and veg because im terrified of that night happening again. I just don't know what to eat anymore and so afraid of that night happening again. Is there anything other than surgery that can help?
Does your doctor have a registered dietitian in the practice? I ask this because my R.D. daughter worked with a university hospital to provide Dietary information to patients with Crohn’s, Celiac disease, and.....
I hope you find help soon. I cannot eat anything with wheat! Wheat equals pain (and diarrhea)for me!
I have Celiac Disease.
Please consult you doctor. 🙏
Hope to hear from you soon.
Hello thank you for replying to me. Im in Canada but nutritionists are seperate places and i think we have to pay. Most GI here don't have nutritionists but ill ask. He has talked about surgeon or balloon opening in a colonoscopy. He also mentioned it could be gastroenterist infection. I just have been staying away from veggies and fruit right now. Thank you so much. Im just hoping theres another option for strictures
Hi @meggy123 and welcome to Connect. It is tough when dealing with strictures from Crohn's. I did find some information on Mayo's website about diet after the diagnoses of Crohn's that may help reduce the days you have with terrible pain. If you scroll to the middle of the page where it says Lifestyle and Home Remedies there is a fair amount of information. https://www.mayoclinic.org/diseases-conditions/crohns-disease/diagnosis-treatment/drc-20353309
Awesome thank you very much. So helpful
Grandson has been hospitalized several times for small bowel obstruction. Discharge instructions say puréed foods. This is hard for an 18 year old young man. Any recipes would be much appreciated
Hi @vickicustodio and welcome! I noticed that you hadn't had any recipe suggestions so I thought I would connect you with others who have had chronic small bowel obstructions like @meggy123, @stuckonu, and @tigreyes2004
This site is actually really good for pureed foods. You cook the food like you normally would, add a couple of addition ingredients and then blend them.
https://www.oncolink.org/support/nutrition-and-cancer/recipes/dealing-with-side-effects/recipes-for-soft-pureed-foods
How is he currently doing?