Anyone else had thyroid tissue regrowth after a total thyroidectomy?

Posted by avawein @avawein, Sep 12, 2021

Hi All. In 2004 I had a total thyroidectomy for nodules that were suddenly growing quite rapidly (non-cancerous). Two years ago I was diagnosed with a neuroendocrine tumor in my terminal ileum which was surgically removed. In the last month, they found two stable tumors in my liver but the CT scan and subsequent PET scan also showed what appears to be thyroid tissue (3+ cm long) in the left thyroid bed. My doctors showed skepticism that I had a total thyroidectomy but I have records to prove it. Has anyone else had thyroid tissue regrowth after a total thyroidectomy? I have a biopsy scheduled in two days. Thanks.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

avawein | @avawein | Sep 12, 2021

In reply to @amandajro "@avawein I want to connect you with @millis who shared that they had regrowth as well..." + (show)

Hi Amanda. Thank you for the links. The doctor reassured me that an ultrasound was better for imaging thyroid tissue than a CT scan. A biopsy will provide answers whatever the outcome so I should know more this week.

Amanda Roe | @amandajro | Sep 12, 2021

@avawein I want to connect you with @millis who shared that they had regrowth as well in this comment: https://connect.mayoclinic.org/discussion/frustrated-could-i-have-small-fiber-neuropathy/?pg=1#comment-604361

I also found this and thought you may find it valuable.

- Thyroid tissue remnants after "total thyroidectomy":
https://pubmed.ncbi.nlm.nih.gov/19735611/

Despite their skepticism, did they share what it could mean for you?

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