Anyone else had thyroid tissue regrowth after a total thyroidectomy?

Such a helpful post, @shelleyd84. I'm sure @avawein appreciated it.

I'm sorry to hear that the nuclear uptake scan show that they thyroid cancer may have returned. Did you find out in the meantime what treatment options are available to you?

Hey,

I had a total thyroid removel in April 2020.
I was on carbimazole but after removed went into thyroxine. 6 months after my bloods showed I was in ti much medication so I was lowered still had the same symptoms of hyperthyroidism and had my bloods repeated and taking off thyroxine.
I am hyperthyroid again jow had a nuclear medicine for the uptake scan this morning and sit shows my thyroid is back again. Unfortunately I also have Graves’ disease watery eyes constantly put lucky not bulging eyes. I am also hoping for a 2nd surgery now.
Hope u all got urs sorted

@lilyann sending prayers your way.

I just had the ultrasound yesterday. Lung issues took priority. I will update when I hear from the docs. Pray you're doing well.

i have not read anything about thyroids growing back. i guess that is why you have to dig really deep and really to people on these forums. thank to all who post. so much more believable than what is written, they make it sound one two three, so now, its really not that simple. the other question is, if they open you up and the air hits the cancer and spreads more? so many questions and not enough answers. thanks everyone. yes, i do sound crazy, just got the results however, not surprised as to what i have read and it all falls in line. lilyann

i just now found out about my neck and soft tissue ultrasound. malignant neoplasm of the thyroid gland (hc). so my next visit will be with the surgeon on january 3, 2023 thanks for listening. lilyann

hi everyone, i have just learned that my brother had his thyroid grow back, had it taken out approximately when he was 50, so he had 2 thyroid surgeries. no one really remembers, he is no longer with us, had a stroke at 52, was wondering if that thyroid surgery had anything to do with his thyroid surgeries. thank you for listening. lilyann

Welcome, @heatherbezzz. Did you have another ultrasound in the meantime? Any updates on the regrowth of thyroid tissue and what steps are next?

I had a total thyroidectomy in 1997, mine grew back as well. I had biopsies of the tissue and it came back as normal thyroid tissue. The new endocrinologist didn't believe I had a total thyroidectomy and asked me to get the records from the surgery. My thinking was yeah right, from over 20 years ago, it's lucky if you find records from 10. I'm supposed to have another ultrasound as well. Mine isn't growing normally, it's more in the left side and back behind my ear area, very strange.
I hope and pray all was well with your situation.

Hi Ava, I was wondering if you had an update about the thyroid biopsy?