Anyone else had thyroid tissue regrowth after a total thyroidectomy?

Yes! Thank you, Colleen.

Hi @bevr, you may also be interested in joining this discussion:
- Anyone here with Hurthle Cell (Oncocytic) Carcinoma? https://connect.mayoclinic.org/discussion/anyone-here-with-hurthle-cell-carcinoma/

In 2000 I had a thyroid nodule that was growing pretty quickly. The endocrinologist said it was "precancerous" and needed to come out. My entire thyroid was removed. The surgeon said "we got it all", but I was never told definitively whether it was cancer or not. Since then I've been taking synthroid or levoxyl. My T4/T3 seemed OK and I was feeling OK, but I wasn't being followed for any sort of cancer. Last October I noticed a growth in my neck in the thyroid bed. The results of an ultrasound looked pretty scary, but two biopsies didn't detect anything. After surgery in January, the 3.5 cm lump was found to be solid Hurthle Cell Cancer. IRT last week showed a very small invasion in the neck area, and I'll find out if any of it was killed by the radiation in two days. I'm hoping against hope that the radiation worked, because HCC is very stubborn.

In my opinion, when my "thyroid grew back", the lump should have been removed immediately. If my thyroid was completely removed 20 years ago, what else could it be but cancer? Even if non-malignant, you don't want extra tissue hanging around. Additionally, HCC is difficult to detect vis biopsy. Whatever it was, I would have chosen to remove it. As a good friend of mine always says, "why fool around?"

Thanks for listening and good luck everyone!

Thank you for your response. That’s so interesting that your Doc said meds suppress gland growth. That kind of makes sense in my case.

I had partial removed in May 1988 never took medication. Than in May 2006 they found another lump on my thyroid went in to remove the rest of the gland and discovered the other half was growing back. Doc said meds suppress gland growth and that it is one of many that grows back. Also each surgery involved taking gland out to test for cancer (found none). Fyi 50 % of autopsies show non cancerous lumps on thyroid glands of all ages. Can you say pharma scam🤪

I have had another sono, it showed negative for anything. With thyroid tissues except residual.
However I am now having scans of my entire spine, marrow, everything with and without contrast. Pet didn't show anything on the spine but still looking for what is causing the rest.
Bone tissue has many lesions. I pray you all have great results. I'm sure mine will be ok.
Im not sure I'll be back soon to respond.

God bless all of you and the doctors hands you are in.

Heather

Such a helpful post, @shelleyd84. I'm sure @avawein appreciated it.

I'm sorry to hear that the nuclear uptake scan show that they thyroid cancer may have returned. Did you find out in the meantime what treatment options are available to you?

Hey,

I had a total thyroid removel in April 2020.
I was on carbimazole but after removed went into thyroxine. 6 months after my bloods showed I was in ti much medication so I was lowered still had the same symptoms of hyperthyroidism and had my bloods repeated and taking off thyroxine.
I am hyperthyroid again jow had a nuclear medicine for the uptake scan this morning and sit shows my thyroid is back again. Unfortunately I also have Graves’ disease watery eyes constantly put lucky not bulging eyes. I am also hoping for a 2nd surgery now.
Hope u all got urs sorted

@lilyann sending prayers your way.

I just had the ultrasound yesterday. Lung issues took priority. I will update when I hear from the docs. Pray you're doing well.