Anyone else had thyroid tissue regrowth after a total thyroidectomy?

Had a TT about 13 years ago and a total hysterectomy 1 year ago. Many hormones fighting each other. I started out being hypothyroid after the Tt which is to be expected. I have taken a high dose of 200mcg synthroid for years. Within the last 5 months I have felt horrible, sweaty hot, extreme muscle aches, joint pain all over, thought I was becoming paralyzed, anxiety, mood swings rapid heart rate, fatigue all the symptoms of hyperthyroid. Which my tsh level is 0.007. They found tt tissue approximately 1.5 cm about 1 year ago. They biopsied it and it is thyroid tissue with no cancer present at this time. I am now extremely hyperthyroid which explains all my symptoms mentioned above. They are wanting to remove this tissue due to my father having tt nodules they watched for years and then they turned into cancer & spread throughout his body ending in bone cancer & eventually taking him home. For some reason God is placing extreme thought & caution on myself whether to have this nodule removed or for to keep up on monitoring the tissue growth, pathology via sono every 3 months. My body has been under extreme stress with many losses I’ve endured the last two years. I truly don’t feel healthy enough to go through another surgery yet. Is God regrowing my thyroid to show he can perform miracles? Any feedback is greatly appreciated & welcome
💛

Had a TT about 13 years ago and a total hysterectomy 1 year ago. Many hormones fighting each other. I started out being hypothyroid after the Tt which is to be expected. I have taken a high dose of 200mcg synthroid for years. Within the last 5 months I have felt horrible, sweaty hot, extreme muscle aches, joint pain all over, thought I was becoming paralyzed, anxiety, mood swings rapid heart rate, fatigue all the symptoms of hyperthyroid. Which my tsh level is 0.007. They found tt tissue approximately 1.5 cm about 1 year ago. They biopsied it and it is thyroid tissue with no cancer present at this time. I am now extremely hyperthyroid which explains all my symptoms mentioned above. They are wanting to remove this tissue due to my father having tt nodules they watched for years and then they turned into cancer & spread throughout his body ending in bone cancer & eventually taking him home. For some reason God is placing extreme thought & caution on myself whether to have this nodule removed or for to keep up on monitoring the tissue growth, pathology via sono every 3 months. My body has been under extreme stress with many losses I’ve endured the last two years. I truly don’t feel healthy enough to go through another surgery yet. Is God regrowing my thyroid to show he can perform miracles? Any feedback is greatly appreciated & welcome
💛

Thank you for your response. I'm suppose to have a core biopsy tomorrow but i have a slight fever and I've been hacking (coughing) for four days and unable to sleep and I don't have an appetite so I don't know if I can have the biopsy tomorrow. I don't think it's good to have a biopsy with all this congestion and heavy coughing. I will probably go into urgent care to see if they can tell me what it is. I tested negative for covd twice. Hope this isn't related to the mass they found. I feel it could be pneumonia.

Oh no! Running a fever is not good for any procedures….I tend to think they might just postpone the procedure for a week until you are feeling better. There are a lot fo cold-like viruses going around (RSV is a big one in my area) so it might be something like that and not necessarily related to your situation. You should definitely call the doctor and tell them you are sick….it does not seem like a big deal to postpone a test for a week so you can get over the infection, but the doctor will let you know. I hope you feel better soon.

Thank you for your response. I'm suppose to have a core biopsy tomorrow but i have a slight fever and I've been hacking (coughing) for four days and unable to sleep and I don't have an appetite so I don't know if I can have the biopsy tomorrow. I don't think it's good to have a biopsy with all this congestion and heavy coughing. I will probably go into urgent care to see if they can tell me what it is. I tested negative for covd twice. Hope this isn't related to the mass they found. I feel it could be pneumonia.

Wow! It is definitely a stressful situation! I would assume the GERD is acting up due to the stress of not really knowing what is going on and thinking some of the worse scenarios…..I have GERD too and it definitely reacts to stress! Some of your issues may be coincidental and not related to the growth so TRY not to get too worried about them; swallowing concerns might just be related to the GERD. Try not to worry too much about the radiologist scan with the needle biopsy…it’s the same as a regular FNA. I actually thought it was kind of cool…..the doctor is able to see where they put the needle to take the sample from…..it seems like a much more accurate way to due FNA! When I was being considered for RadioFrequency Ablation, the first needles for the FNA were filled with blood too; they just put the needle in a new location and did an additional test and then sent the material out for Affirma testing. I don’t know if Affirma testing is used on other areas or if it is just thyroid, however it is supposed to be a very good prediction for cancer. The waiting and not knowing is definitely tough! However, on a brighter note, the treatment options and surgical techniques have advanced significantly since your thyroidectomy was done, so you might have options you had never heard about. Radio-frequency Ablation, Cyberknife surgery, endoscopic surgery, etc….techniques and treatments have evolved, so once you find out what is going on, the treatment options might help to reduce the stress. Try to remain positive…scar tissue can really muck things up so you don’t want to assume the worse and get yourself all stressed out when it could be related to scar tissue. Sending positive thoughts your way! Good Luck!

I had my thyroid totally removed in 2010. I’ve had GERD and have been on Prilosec for years and now Protonix. I’ve had a lot of heart burn and tickling in my throat etc. Now I’m finding out my thyroid seems to have regrown in the left side but also down to my sternum manubriim. I had a CT scan in October 2023 then my surgeon just suddenly left the practice. I got a needle aspiration biopsy and the specimen only contained blood. No tissue. So then I had to wait to see my new surgeon and he has now ordered a new CT scan for tomorrow. And then an interventional radiologist will do a biopsy using the CT to guide him. I’m actually quite scarred. It sounds like the surgery will be very invasive and difficult and since the surgeon saw a large 4CM mass in a difficult spot back in October he is very concerned it could be a worse scenario. My thorax is being pushed to the right because of the mass. When I had my thyroid removed they found a minimal carcinoma and I wondered why they didn’t follow up much closer because I have had the symptoms for a long time and been treated for GERDS when it’s something related to my thyroid regrowth. I haven’t been able to sleep much because it seems my throat is getting tighter and tighter and now I have congestion in my throat causing some panic moments. I tested for Covid and that was negative. I’ve lost my appetite because I ‘m worried I’ll choke. I will write more after I get results from tomorrows CT scan. Wish I was more hopeful.

I had my thyroid totally removed in 2010. I’ve had GERD and have been on Prilosec for years and now Protonix. I’ve had a lot of heart burn and tickling in my throat etc. Now I’m finding out my thyroid seems to have regrown in the left side but also down to my sternum manubriim. I had a CT scan in October 2023 then my surgeon just suddenly left the practice. I got a needle aspiration biopsy and the specimen only contained blood. No tissue. So then I had to wait to see my new surgeon and he has now ordered a new CT scan for tomorrow. And then an interventional radiologist will do a biopsy using the CT to guide him. I’m actually quite scarred. It sounds like the surgery will be very invasive and difficult and since the surgeon saw a large 4CM mass in a difficult spot back in October he is very concerned it could be a worse scenario. My thorax is being pushed to the right because of the mass. When I had my thyroid removed they found a minimal carcinoma and I wondered why they didn’t follow up much closer because I have had the symptoms for a long time and been treated for GERDS when it’s something related to my thyroid regrowth. I haven’t been able to sleep much because it seems my throat is getting tighter and tighter and now I have congestion in my throat causing some panic moments. I tested for Covid and that was negative. I’ve lost my appetite because I ‘m worried I’ll choke. I will write more after I get results from tomorrows CT scan. Wish I was more hopeful.