Thyroid Cancer Group: Introduce yourself and connect with others

Hi -- I haven't been diagnosed with thyroid cancer. I had FNA for thyroid nodules in 2011 and 2013 that were both negative. I had annual follow up ultrasounds until 2018 and was advised to discontinue because ultrasounds had been clear for 5 years. In 2020, I had another thyroid ultrasound which didn't show much change. All nodules (and I have many) at that time were no greater than Ti-RADS 2. I just had a thyroid ultrasound this past week and had widespread changes. Most are TI-RADS 4 now and I have one TI-RADS 5. I am surprised that nearly all of the nodules have become suspicious for malignancy. Has that happened to others who had multiple nodules? I meet with my PCP next week to get FNAs scheduled. I've been educating myself this week on the types of thyroid cancer. I do have the RET mutation on genomic testing and so am quite concerned about medullary thyroid cancer.

HI! you are a meddie
fellow! I am also in the Facebook group and have participated with comments in our two books, I am kind of a veteran after 14 years leaving with MTC.

HI EVERYBODY! my name is Elba, I live in Puerto Rico and have medullary thyroid cancer, diagnosed during 2007, TT same year, I am treated at MD Anderson, at this point I am stable after so many years and 3 surgeries (neck and head), taking a new medicine called Retevmo that is working very good to me. I participated on the medical trial, by then the name was Loxo but it was FDA approved this year during May I think.

I had a thyroidectomy May of 2011 at Mayo by Dr. Thompson. I have medullary thyroid cancer. I also had papillary in my tumor. I have had one tiny recurrence of disease. My endo at Mayo is Dr. Marius Stan and I love him. Any Medullary patients I encourage you to join the Facebook group Medullary Thyroid Cancer - MTC. Also read the books put together by MTC thyvers- After the Diagnosis and The Butterfly Sings.

Have you joined the Facebook group? I also have MTC and that groups is everything. The group is:
Medullary Thyroid Cancer -MTC

Just thinking of you this Monday Morning and wondering how you are feeling!?

I trust there is improvement!?

Bob

Thinking of you this morning!

Thsnk you do much for your response! I am keeping positive snd I know movement is the key to longevity 🙏👍😎

I have my Parathyroids so can’t respond to that but the Levotroixin at 200mg has my TSH where it needs to be…around 4.0.

I did have Open Heart Triple Bypass in January.

My Thyroid Surgery was May 17, 2021 and I am back to the gym 5 days a week, 2 hours a day, working out, and 2 miles in the treadmill. This has really aided in my recovery.

You will be in my prayers.

Bob

This may be a repeat…still finding my way around.

Bob, age 80 living in Virginia.

Papillary stage two Cancer in one nodule . Surgery with total Thyroidectomy. Wait snd Watch strategy with no RAI to be done immediately.

3.5 months and still sore throat and a little hard to swallow.

Levothroxine Med 200mg.

Had a triple heart bypass surgery January 27, 2021.
Back to the gym 2 hours a day, working out and treadmill fir 2 miles a day.
Would appreciate any thoughts.

Bob