Thyroid Cancer Group: Introduce yourself and connect with others

m san from nepal,,with fnac diagnosis shows suspicious papillary thyroid,,and ultrasound shows 9.1mmx6.5mm..so is it necessary to do surgery or not,,some doc saying do surgery n some saying wait till 1cm so m confuse what to do ,,can anyone suggest me,,

@fcast1334, getting a rare diagnosis is scary. But you are not alone. You can connect with others who have experience with Anaplastic Thyroid Carcinoma in this discussion:
- Daughter, 45 anaplastic thyroid cancer. Had surgery, chemo, radiation. https://connect.mayoclinic.org/discussion/daughter-45-anaplastic-thyroid-cancer-had-surgery-chemo-radiation/

As you prepare for your meeting with the medical oncologist, here are some questions you might wish to ask:
What stage is my thyroid cancer?
What treatments do you recommend?
What are the benefits and risks of each treatment option?
I have other health problems. How can I best manage them together?
Will I be able to work and do my usual activities during thyroid cancer treatment?
Should I seek a second opinion?
Should I see a doctor who specializes in thyroid diseases?
How quickly do I need to make a decision about thyroid cancer treatment? Can I take some time to consider my options?
What might happen if I decide to have regular checkups but not have cancer treatment?
Are there any brochures or other printed material that I can take with me? What websites do you recommend?
Am I able to access my medical records through an online patient portal?

Sending you warm wishes for the holidays and hope you will have time to spend with family and not think about cancer.

Hi all. I had a lump and my Thyroid removed 12/2/22. I received results on the pathology report yesterday saying I have Anaplastic Thyroid Carcinoma which I am told is rare. I have an appointment with a Medical Oncologist next week to determine treatment.
Does anyone know of a case like mine? Scary since it is rare and not much information on it. My surgeon said he had only seen it 3 times in the years he has been practicing.

I have a breast MRI every year, followed by a mammogram six months later. I’m having to fight Medicare to pay for the $2100 MRI. I get a colonoscopy every year and an endoscopy every other year. Thank you

Hi Colleen, he is seeing some decrease in the mass in his neck with first Keytruda immunotherapy, chemotherapy (4th one)and he is on his 12/35 radiation treatments. Today is a hard day as he can’t swallow anymore. He says its like swallowing razor blades and has stopped eating. Tomorrow he will have IV fluids and a feeding tube put in.

Welcome new members @mcmaya @tobyscott @wwbosworth and @koh to the Thyroid Cancer group.

Koh, glad to see you connected with others in the Hurthle Cell Carcinoma discussion https://connect.mayoclinic.org/discussion/anyone-here-with-hurthle-cell-carcinoma/

Mcmaya, did you decide to get radioactive iodine again? Did you talk to your doctor about your concern in getting a secondary cancer?

TobyScott, how is your son doing on chemo and radiation? Are they able to see improvement (shrinkage of the mass) yet?

Hey Wendy, @mcmaya @vstormy @dho @botts are a few other members who have papillary thryroid cancer. With both Lynch and CHEK, do you stay on top of breast cancer and colon cancer screening?

Hi, I had a thyroid nodule that a doctor at a cancer hospital monitored for about 10 years. After testing at another hospital to determine if I might be able to have radio frequency ablation, it was revealed that there was a 50% chance that my nodule was cancerous. I had right lobectomy with isthmusectomy, and one parathyroidectomy in July. The results revealed Hurthle Cell Carcinoma. I find the follow up care fairly nonexistent. I do not take any medication but I can’t tell if my symptoms are normal recovery issues, hormone changes, an infection, or the cancer cells in an associated area. When I report issues I am told they are not related to the surgery or Hurthle cell cancer but I can’t shake an infection I seem to have gotten when I had the surgery. Does anyone have experience with Hurthle Cell Carcinoma? My understanding of the cancer is based on my own research and then explained by the doctor. Thanks for any information.

Hi, I'm Wendy from San Diego. I had three papillary cancer tumors in my thyroid in 2014. I'm doing well and take tirosint every morning. I have Lynch Syndrome and CHEK2.

Hello, my son age 30 is diagnosed with anaplastic thyroid cancer in May, 2022. He had a 2 lb mass removed from his neck, thyroid was removed and another lymph node on his neck. He begins chemo and radiation this week but a second grape size mass is now growing close to the site of the mass. Any advice is greatly appreciated.

I was diagnosed with Papillary cancer that has metastasized to both lungs. Hundreds of small and larger cancers in each.
Had RAI, 175 with better results than expected.
Doctors would like me to do it again. I’m reluctant because I was originally told it could cause a secondary cancer elsewhere.