Thyroid Cancer Group: Introduce yourself and connect with others

Welcome to the Thyroid Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with thyroid cancer or caring for someone with thyroid cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics or start a new one.

Pull up a chair. Let’s start with introductions.

What type of thyroid cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

@lbrockme

I'm glad things seem to be settling down for you. I was told the same thing by my surgeon and it's been 30 plus years. We are now in a , " if it creates a problem we will address it then " mode .
Hang in there!

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thanks for input. I will have my thyroglobulin checked in 2 weeks again, hopefully it is receding. I'm not sure how it is removed from our bodies when it is very high.

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@bhinderer

The endocronologist was glad to see pet scan was good, he is still concerned with high Tg (342) but it is decreasing every month. My TSH is very low, that was
a goal for me. I meet with surgeon on 3/29. The oncologist was kind of surprised to see me (I was referred by endo doc) saying my prognosis is good, in fact he said I would probably die with Thyroid cancer but not from it. I want to know what the surgeon thinks, I think for now I will not rush into any surgery, take a wait and see approach. I chat with other thyroid cancer survivors to get some input on treatments, they are helpful.

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I'm glad things seem to be settling down for you. I was told the same thing by my surgeon and it's been 30 plus years. We are now in a , " if it creates a problem we will address it then " mode .
Hang in there!

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@colleenyoung

@bhinderer, I'm checking. How did the meeting go with the endocrinologist and surgeon? What's next for you?

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The endocronologist was glad to see pet scan was good, he is still concerned with high Tg (342) but it is decreasing every month. My TSH is very low, that was
a goal for me. I meet with surgeon on 3/29. The oncologist was kind of surprised to see me (I was referred by endo doc) saying my prognosis is good, in fact he said I would probably die with Thyroid cancer but not from it. I want to know what the surgeon thinks, I think for now I will not rush into any surgery, take a wait and see approach. I chat with other thyroid cancer survivors to get some input on treatments, they are helpful.

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@bhinderer

Papillary thyroid cancer , somewhat aggressive. TT done 6/23, 48 lymph nodes removed, 21 cancerous. RAI in 11/23, my body scan showed no metastasis. I'm 72 and overall good general health otherwise. Had Pet scan 2/28/24, showed no abnormalities. Had ulttrasound 2/29/24, showed some lymph node abnormality. My left vocal cord is paralyzed, surgeon did injection to help my voice. next step - meet with endo doc and surgeon.

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@bhinderer, I'm checking. How did the meeting go with the endocrinologist and surgeon? What's next for you?

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It sounds like you have had a rough 7 or 8 months . Its looks like your doctors are being very assertive with your care. Thats good to see. And good news with the RAI and PET scan.
You seem to be involved with your care and that is important.
Hoping the lymph node is just responding to all the trauma your body has been through. Praying your meeting with the endo goes well. Hopefully all your blood tests are stable and everything is under control.
I've had an aggressive thyroid cancer for over 30 years. Treatments have come a long way since my early days with it.

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Papillary thyroid cancer , somewhat aggressive. TT done 6/23, 48 lymph nodes removed, 21 cancerous. RAI in 11/23, my body scan showed no metastasis. I'm 72 and overall good general health otherwise. Had Pet scan 2/28/24, showed no abnormalities. Had ulttrasound 2/29/24, showed some lymph node abnormality. My left vocal cord is paralyzed, surgeon did injection to help my voice. next step - meet with endo doc and surgeon.

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@colleenyoung

@mmm123, that must be a lot for both you and your husband to take in, having 2 cancers to deal with simultaneously.

If you also wish to connect with others living with multiple myeloma and stem cell transplant, you can also follow the discussions in the Blood Cancers & Disorders Support Group (https://connect.mayoclinic.org/group/blood-cancers-disorders/). I think you might appreciate this discussion specifically.

- My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
https://connect.mayoclinic.org/discussion/my-autologous-stem-cell-transplant-journey-mayo-phoenix/

To your question at hand regarding papillary thyroid cancer and learning more about what to expect during and after surgery, check out this related discussions:
- How long after thyroidectomy did you start to feel “normal”? https://connect.mayoclinic.org/discussion/how-long-after-thyroidectomy-did-you-start-to-feel-normal/
- Diet after Thyroidectomy? How long will I need a soft food diet? https://connect.mayoclinic.org/discussion/diet-after-thyroidectomy/
- Life after total thyroidectomy after papillary cancer https://connect.mayoclinic.org/discussion/life-after-total-thyroidectomy-after-papillary-cancer/

How are YOU doing?

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Thank you! Yes this is definitely a tough time! I’m trying to remain positive reading as much as I can about each cancer. Some days are better than others. It’s difficult not to worry and be scared, but I’m trying to handle it calmly which for me is not easy.

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@mmm123

My husband has been diagnosed with papillary thyroid cancer in one nodule only. The surgeon is going to remove the entire thyroid because he had genetic testing that indicated it may return after it's removed. He has mulitple myeloma as well and is under consolidation therapy for it at the present. He had induction therapy and then an autologous stem cell transplant. He is waiting to see when the thyroid cancer surgery will take place. I'm interested in learning more about the thyroid process, recovery, post treatment after the surgery, and other notes from others that had other cancers at the same time.

Jump to this post

@mmm123, that must be a lot for both you and your husband to take in, having 2 cancers to deal with simultaneously.

If you also wish to connect with others living with multiple myeloma and stem cell transplant, you can also follow the discussions in the Blood Cancers & Disorders Support Group (https://connect.mayoclinic.org/group/blood-cancers-disorders/). I think you might appreciate this discussion specifically.

- My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
https://connect.mayoclinic.org/discussion/my-autologous-stem-cell-transplant-journey-mayo-phoenix/

To your question at hand regarding papillary thyroid cancer and learning more about what to expect during and after surgery, check out this related discussions:
- How long after thyroidectomy did you start to feel “normal”? https://connect.mayoclinic.org/discussion/how-long-after-thyroidectomy-did-you-start-to-feel-normal/
- Diet after Thyroidectomy? How long will I need a soft food diet? https://connect.mayoclinic.org/discussion/diet-after-thyroidectomy/
- Life after total thyroidectomy after papillary cancer https://connect.mayoclinic.org/discussion/life-after-total-thyroidectomy-after-papillary-cancer/

How are YOU doing?

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My husband has been diagnosed with papillary thyroid cancer in one nodule only. The surgeon is going to remove the entire thyroid because he had genetic testing that indicated it may return after it's removed. He has mulitple myeloma as well and is under consolidation therapy for it at the present. He had induction therapy and then an autologous stem cell transplant. He is waiting to see when the thyroid cancer surgery will take place. I'm interested in learning more about the thyroid process, recovery, post treatment after the surgery, and other notes from others that had other cancers at the same time.

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@stever42

Hi Everyone, my name is Steve and today my Dr called me and told me that I have papillary thyroid carcinoma today. I'm 40 years old and kind of feeling scared. Glad to see this forum is out there with everyones stories of recovery. I didn't really get much info, they biopsied my right side earlier this week and now this. So I'm just waiting for another dr to call me about my next apt and see where we go from there.

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Hi Steve
I'm scheduled to have thyroid surgery on February 22 at Moffitt in Tampa FL. My byopsy came back 80% positive for cancer so I'm having it removed. I can't feel it and have no symptoms. I'm hoping for 1 day surgery and that will be it.
I'll be happy to try and answer any questions you have.
Don

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