Problems months after colon resection surgery: What Helps?

Posted by joyce1 @joyce1, Feb 25, 2017

Three months after colon resection I had a severe stomach cramp this morning and have not had a bowel movement yet. This is the first time this has happened. So far things have been good.

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Profile picture for bailey4you @bailey4you

This is the worst surgery and I regret having it done. After 3months iam still dealing with problems. Newest problem I can't eat. Does anyone else have this problem

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I can relate to you 100%. I too have had colon resection and it's been 3 months. I wish I never had this surgery. My quality of life is worst now than before the surgery. No matter what I eat I feel lousy and always constipated. Has anyone out there had their Sigmoid colon removed? The stool now goes directly to the rectum and sits there. I have tried everything. I believe the colon is not stimulated enough so now I am doing acupressure and it helps a little. I am in such a depression that my next step is to see a therapist for medication to help me through this horrible phase. I am praying for you all.

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Profile picture for bailey4you @bailey4you

This is the worst surgery and I regret having it done. After 3months iam still dealing with problems. Newest problem I can't eat. Does anyone else have this problem

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I don't think that 3 months post colon surgery is really enough time to be indicative of anything.
You may be expecting too much too soon or maybe just frustrated which is understandable.
You can find right here the stories of a hundred colon resection patients that are struggling with diarrhea and constipation a year after surgery. There are many more who have bowel problems years after colon surgery.
Every case can be dissimilar in numerous ways as no two patients and no two surgeries can be said to be identical.
Even at 3 months, I hope you are sharing your concerns with your doctors.
For as much as a doctor might feel that what you are experiencing is normal at this point, a proper diet must be found. You cannot give up because if you do, you will never improve.
There is light at the end of this tunnel and while we are all at various stages of this journey, no two stories are alike. You have to find what works for you.
I hope that you are making use of the abundance of online research that is available. We have all improved our knowledge over time of all things medical that has benefited our recovery and quality of life.
Best wishes to you always!

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Profile picture for idkaren @idkaren

Tracy I am starting to regret my surgery also. I know I needed it but I am in more pain than before resection

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This is the worst surgery and I regret having it done. After 3months iam still dealing with problems. Newest problem I can't eat. Does anyone else have this problem

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Try enzymes. I am a year post op and just getting somewhat normal. My problem was constant diarrhea and I was pooing about 12 times a day.

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No pain like yours, but it has been over a year since my surgery and digestion is just starting to get kinda normal. Enzymes seem to be the answer.

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Profile picture for samantha1994 @samantha1994

Hi, I hope you feeling better now. Did you see your oncologist after you experience those symptoms, what did he says?

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Welcome, @samantha1994. Did you also have colon surgery?

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Profile picture for karina1954 @karina1954

I'm having the exact same symptoms. On the 11 weeks into surgery. I'm really nervous. Get to see my oncologist hopefully he may shed some light on this. Good Luck...if not I may go to emg.

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Hi, I hope you feeling better now. Did you see your oncologist after you experience those symptoms, what did he says?

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Profile picture for mrsbryant2032 @mrsbryant2032

I'm 8 months post op for a partial coloectemy where they took 8 inches due to repeated diverticulitis (7 times). Yes they waited way too long! She got in there and I was a scarred twisted mess. So here I sit now all these months later switching between constipation and diarrhea. The diarrhea keeps giving me horrible hemorrhoids. And quite often my intestines hurt where they did when I had diverticulitis. Even ended up in the ER once for it. CT and work up later and they said it looks OK, sent me on my way. Keeps happening though. I personally think it's nerve pain, maybe. Idk. Somedays I wish I hadn't let them cut on me.. really just wanted to vent to people who understood.

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mrsbryant2032
Yes it is discouraging. I am 8 months post op also. Had a diverticulitis flareup that didn't want to go away. Started in mid February 2022. After every two weeks of double antibiotics and after a colonoscopy in early April, I finally pleaded with my gastro doctor to help me find a way to get better. Finally in Early June 2022 I had a sigmoidectomy to remove the infected area. Pathology was no cancer but flareup still infected and abscessing. Positive with c diff in the hospital in June after surgery. c diff didn't go away so in Oct 2022 I was hospitalized for a week to get that under control. Still feel that it is in there waiting to rear it's ugly head. Does this ever end?
So careful to not get constipated but going seems to leave me weak.
Sorry... Just venting.

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Profile picture for karina1954 @karina1954

Recently I have been experiencing some awful pains in my stomach after have colon cancer surgery. Had the surgery 9 months ago. It's like de ja vue. Stomach feels tight mostly on the left side. Had a re sectioning. Not sure if this is normal or not. Would welcome anyone who went thru this or similar pains. Thank you.

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Hi @karina1954, I'm sorry to hear that you're still experiencing pain 9 months after colon resection. I moved your message to this existing discussion.
- Problems months after colon resection surgery: What Helps? https://connect.mayoclinic.org/discussion/three-months-after-colon-surgery/

Clearly you are not alone. Members like @mothermary1 @shelamac65 @branckerd @phyllmikey @philly318 @lsdd13 have added recent posts to this discussion offering tips that help.

Karina, have you talked to your surgeon about the pain you're dealing with?

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Profile picture for mkgdesigner @mkgdesigner

I had a total colectomy (laprascopic) almost 4 months ago due to motility issues. For about 10-15 years I had been having issues and have been to several doctors and surgeons for insight. I was using full half-gallon enemas, 3-4 times every other day or so for over four years to get anything to come out. I finally found an awesome surgeon at UCI Orange and after a variety of tests, decided on the surgery. It has been a struggle, but I'm learning some things that work very well for me and if i stray from them I have difficulties with pain, loose stool, difficult to get out and shooting pain above my main incision. Now things are going a lot better. I take metamucil (only 1 tablespoon with about a half cup of water to bulk up the stool) Before each meal along with 1 capsule of Loperamide 2MG (immodium to slow down and curb the diarrhea). Recently for the pain above my main incision which feels like its nerve pain and happens when I'm a bit gassy or after eating. So I'm now taking Gabapentin 300MG to stop the nerve pain. I took my first capsule last night before bed. I think it will take awhile to feel the effects but I'm hopeful. Good Luck, I hope you are able to find some relief.

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Hi, not sure if you’ll even see this but I need to reach out. I’ve had severe motility since having cervical fusion in June 2020. I had the surgery through the front of my neck. I had 3 cages put in. It was a 6 hour surgery. I woke up but my bowels never did and have not on their own since. I was scheduled September 2021 for total colectomy in Boston but canceled. The surgeon understood all my worries and said keep searching let’s reschedule January 2022. I canceled. I can’t wrap my head around this surgery because I can’t have a bowel movement. It makes no sense. I’ve had so many tests and every medication possible and I’ll go sometimes but never without something. My problem is severe allergies to drugs, many. I can’t take any pain meds ever. All the drugs like linzess and amitiza caused me severe reactions. Problem is I’m 68. Is it worth it? I read all these awful recovery stories and I just don’t know if I have it in me anymore to do it. I’m terrified to have a Gastro nasal tube in for days. I’m retired from 30 years working in a hospital so I’ve seen it all. I have an appointment on Friday and those words again I’m hearing, out of options again Joanne. Right now I’m on erythromycin 3 times a day for gastroparesis and had to stop amitiza for breathing issues but wasn’t working anyway. I just couldn’t function. I can’t imagine forfeiting this life at 68 for that recovery life which sounds just as bad. If you see this I hope you respond. I’m so curious how many folks do this for poor cut motility. Also, how how are most. Thanks for listening,hope this finds someone and you’ll respond.
Thanks…Joanne

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