Problems months after colon resection surgery: What Helps?

Posted by joyce1 @joyce1, Feb 25, 2017

Three months after colon resection I had a severe stomach cramp this morning and have not had a bowel movement yet. This is the first time this has happened. So far things have been good.

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Profile picture for hawkeye1976 @hawkeye1976

Hi All, sorry for the late reply. The pain I was experiencing lasted about a week then suddenly disappeared. I'm wondering if it was even related to my surgery. I went down to see my surgeon and he said everything looked ok. No sign of a leak or hernia. So, not sure. I'm back to feeling good. Hopefully, it was just a blip in my recovery. Thanks all for the support.

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@hawkeye1976, like Teresa, I’m grateful that you returned to share that the pain was ultimately short-lived (although I’m sure the week felt long). This gives others hope and better understanding of the recovery process.

You’re about 3.5 months out from caecum surgery if I’ve calculated correctly. You said you’re feeling good again. Did your surgeon caution you about the amount or level of weight lifting and exercise you should do or how to gradually and safely get back into it?

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Profile picture for hawkeye1976 @hawkeye1976

Hi All, sorry for the late reply. The pain I was experiencing lasted about a week then suddenly disappeared. I'm wondering if it was even related to my surgery. I went down to see my surgeon and he said everything looked ok. No sign of a leak or hernia. So, not sure. I'm back to feeling good. Hopefully, it was just a blip in my recovery. Thanks all for the support.

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@hawkeye1976

I'm so pleased to hear that the problems you were having were short-term. It is good that you are feeling better now. Take care!

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @hawkeye1976

I would like to join, @colleenyoung in welcoming you to Connect. We have another member, @thull, who has had multiple colon surgeries and she may be able to add some thoughts about diet and activities following surgery.

You say that you have barely eaten in five days. Have you tried any nutritional drinks like Atkins, Ensure, Boost, etc.?

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Hi All, sorry for the late reply. The pain I was experiencing lasted about a week then suddenly disappeared. I'm wondering if it was even related to my surgery. I went down to see my surgeon and he said everything looked ok. No sign of a leak or hernia. So, not sure. I'm back to feeling good. Hopefully, it was just a blip in my recovery. Thanks all for the support.

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Profile picture for tracy430 @tracy430

I'm also 3 months post op. I'm always having some kind of pain. I just had my 2nd CAT scan since the surgery. Everything looks fine, all my labs are fine. I'm still severely constipated. I know I needed this surgery, but I still can't help regretting it.

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Don’t worry. I was told that all colorectal surgeons say it takes at least a year to get back to normal after a colon resection, even a laparoscopic robotic one like mine. I was in extreme pain off and on for several months, especially on the right side where the robot arms went in to go to the left to perform the surgery. I would also have explosive bowel movements without warning. Both those issues have passed and it is now just over a year since my surgery. What remains are frequent bowel movements, ranging from 4 to 7 times over a 24 period, which are sometimes pencil thin or small clumps. I will be seeing my gastroenterologist soon but hesitate to have yet another CT Scan. Too much radiation.

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Profile picture for 1943 @1943

One year after colon resection have frequent diarrhea and hard to clean hemrhoids . Just the opposite of constipation. Also bm several times a day

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I just read your comment. It has been just over a year since my laparoscopic robotic colon resection and I still have 4-7 bowel movements over a 24 hour period. I was told it would take about a year to go back to normal but I am not normal and am frustrated. I no longer have the urgent, diarrhea explosions of before but sometimes my stool is thin, pencil thin strips or small clumps. Other times, it is fairly normal in size and consistency. Wish I could say away from doctors but am making an appt with my gastroenterologist.

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Profile picture for michaelfromfl @michaelfromfl

Hello,

I had a colon resection surgery for diverticulitis in August of 2020 and I am experiencing some pretty severe abdominal pain and digestive issues.

I was completely fine until about 6 months later. I woke up one morning with really bad abdominal pain and decided to get a colonoscopy, endoscopy, ct scan, the whole works.

One day, the pain went away and everything went back to normal. Fast forward 6 months and the pain came back in full force - I have tried several diets, been diagnosed with SIBO, Candida, Dysbiosis, Leaky Gut and even mold poisoning but my main problem is so much abdominal pain, especially in the colon with highly altered bowel movements (constipation, watery stools, hard lumpy stools).

I have also had a HIDA scan, CT scan for bowel obstruction, CT scan for adhesions which all came back normal.

However, when this problem started, I noticed these little 'knots' all over my gut which were very painful to the touch and I went to a place called Clear Passage twice and did intensive manual therapy for these adhesions and now they are gone but a big part of me wonders if there is some sort of adhesions or stricture that hasn't been detected by CT scan.

Just recently, I have been getting colon "attacks" where it feels like a knife or a gun shot wound to my sigmoid colon that lasts anywhere from 30 minutes to an hour.

I've tried a wide array of different diets including fasting and intermittent fasting, supplements, natural and prescription prokinetics.

Now my doctor is trying to convince me to get a permanent nerve block but that seems absolutely insane to me with everything that is transpiring and this gradual worsening of symptoms.

Sorry for the long post but I am very very desperate at this point and looking for any possible answers I can find as I am in pain almost 24/7

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Hi @michaelfromfl,

I'm sure you are looking for some answers to this pain. This has been going on for a long time and you certainly need some answers. Adhesions, or scar tissue, can certainly be a problem after colon surgery. I would like to invite @thull to this conversation. She has had multiple colon surgeries. She may be able to offer some suggestions.

It certainly is your right to get a second opinion. If it were me, I would go to a multi-discplinary health care center like a university medical center or a facility like Mayo Clinic. These centers are also research-oriented and have lots of research behind their work.

Can you find a facility like this nearby for a second opinion?

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Profile picture for michaelfromfl @michaelfromfl

Hello,

I had a colon resection surgery for diverticulitis in August of 2020 and I am experiencing some pretty severe abdominal pain and digestive issues.

I was completely fine until about 6 months later. I woke up one morning with really bad abdominal pain and decided to get a colonoscopy, endoscopy, ct scan, the whole works.

One day, the pain went away and everything went back to normal. Fast forward 6 months and the pain came back in full force - I have tried several diets, been diagnosed with SIBO, Candida, Dysbiosis, Leaky Gut and even mold poisoning but my main problem is so much abdominal pain, especially in the colon with highly altered bowel movements (constipation, watery stools, hard lumpy stools).

I have also had a HIDA scan, CT scan for bowel obstruction, CT scan for adhesions which all came back normal.

However, when this problem started, I noticed these little 'knots' all over my gut which were very painful to the touch and I went to a place called Clear Passage twice and did intensive manual therapy for these adhesions and now they are gone but a big part of me wonders if there is some sort of adhesions or stricture that hasn't been detected by CT scan.

Just recently, I have been getting colon "attacks" where it feels like a knife or a gun shot wound to my sigmoid colon that lasts anywhere from 30 minutes to an hour.

I've tried a wide array of different diets including fasting and intermittent fasting, supplements, natural and prescription prokinetics.

Now my doctor is trying to convince me to get a permanent nerve block but that seems absolutely insane to me with everything that is transpiring and this gradual worsening of symptoms.

Sorry for the long post but I am very very desperate at this point and looking for any possible answers I can find as I am in pain almost 24/7

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Welcome @michaelfromfl. You'll notice that I moved your message to this ongoing discussion about colon resection surgery.
- Problems months after colon resection surgery: What Helps? https://connect.mayoclinic.org/discussion/three-months-after-colon-surgery/

I did this so you can connect with fellow members like @john2871 @hawkeye1976 @robinmacdonald @louiel @hopeful33250 @shelfitz @fourof5zs and others.

@john2871 asks a good question. "What type of physician should I see? Should I start with an internist, gastro-interologist, the original resection surgeon?

I can imagine that you're both getting tired of chasing down the problem. I'd like to hear what others think, but my first suggest would be to get a second opinion at a large medical facility where specialists from different disciplines work together as a team to problem-solve.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, John. This must be so frustrating to have this recurring pain 5 times in the past year, more than 3 years after surgery and that an x-ray showed nothing obstructive. Have you been able to recall any food you ate or activity you did the day before the painful episode in the night? Is there a common thread?

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Coleen,
After another episode, I'm writing to ask what type of physician should I see to begin diagnosing my issue. It definitely is a result of lifting so I suspect a hernia or a failed hernia repair (I've had several). Should I start with an internist, gastro-interologist, the original resection surgeon? Getting tired of chasing this thing down. Thanks in advance.
John Salacain

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Hello,

I had a colon resection surgery for diverticulitis in August of 2020 and I am experiencing some pretty severe abdominal pain and digestive issues.

I was completely fine until about 6 months later. I woke up one morning with really bad abdominal pain and decided to get a colonoscopy, endoscopy, ct scan, the whole works.

One day, the pain went away and everything went back to normal. Fast forward 6 months and the pain came back in full force - I have tried several diets, been diagnosed with SIBO, Candida, Dysbiosis, Leaky Gut and even mold poisoning but my main problem is so much abdominal pain, especially in the colon with highly altered bowel movements (constipation, watery stools, hard lumpy stools).

I have also had a HIDA scan, CT scan for bowel obstruction, CT scan for adhesions which all came back normal.

However, when this problem started, I noticed these little 'knots' all over my gut which were very painful to the touch and I went to a place called Clear Passage twice and did intensive manual therapy for these adhesions and now they are gone but a big part of me wonders if there is some sort of adhesions or stricture that hasn't been detected by CT scan.

Just recently, I have been getting colon "attacks" where it feels like a knife or a gun shot wound to my sigmoid colon that lasts anywhere from 30 minutes to an hour.

I've tried a wide array of different diets including fasting and intermittent fasting, supplements, natural and prescription prokinetics.

Now my doctor is trying to convince me to get a permanent nerve block but that seems absolutely insane to me with everything that is transpiring and this gradual worsening of symptoms.

Sorry for the long post but I am very very desperate at this point and looking for any possible answers I can find as I am in pain almost 24/7

REPLY
Profile picture for hawkeye1976 @hawkeye1976

Hi All, 45 year old male. Had part of my cecum removed on Nov. 27 because of complex polyp found during routine colonoscopy. Everything was going great. At the two week mark I was opening up what I was eating. Really was surprised how well I was healing. At the one month mark the only issue was sore abs, like I had done a bunch of sit ups. At week 6 I started doing my exercise bike and figured I was almost 100% although I still had the sore abs. Then at week 7, I came down with a really bad stomach ache. It has been with me for about 5 days now. I've barely eaten the past 5 days. I got in to see my surgeon and he says everything looks good. In addition to the stomach ache, I get pains in my sides and then yesterday I started having a really bad lower back ache.

Reading through the messages it sounds like some of this is normal? Not sure why I was doing so well and then it took a 180 on me. I'm curious for some of you that have posted about the stomach aches if they finally subsided? Thanks! Glad I found this site.

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Hello @hawkeye1976

I would like to join, @colleenyoung in welcoming you to Connect. We have another member, @thull, who has had multiple colon surgeries and she may be able to add some thoughts about diet and activities following surgery.

You say that you have barely eaten in five days. Have you tried any nutritional drinks like Atkins, Ensure, Boost, etc.?

REPLY
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