Three day paralysis of upper thighs without pain

@chrosnip your decision to get safety plans is terrific.

Are there any other symptoms like, difficulty walking, speaking, tremors, double vision…
If so, there is a disorder that does not show up on the tests. It’s not common so many doctors don’t think of it when making a diagnosis.

I have had it for about 8 years. It’s called Functional Neurological Disorder FND. Or FMD. The disease causes some to just fall for no reason. Please research FND/FMD

Thanks so much, Susan. I have not had any of the symptoms of FND. When my first incident occurred I did not fall either time. I slid out of the bed at the first incident. It then took me 40 minutes to right myself. Once straight I could walk. For the second incident I was seated and slid onto the floor. I could not right myself and had no use of my legs. I stayed on the floor without food or water for almost 3 days. For both incidents I went to the hospital and overnight the symptoms disappeared with the neurologists checking for everything, including myasthenia gravis. Initial diagnosis for the second event in the hospital was a myopathy. My neurologist now predicted a peripheral palsy. Strange that both incidents lasted 3 days. I will look up FND and consult again with my neurologist. Thanks so much, again. Pat

@chrosnip I am looking at the symptoms of FND. One jumped out. “Leg and arm paralysis”.

I’m curious, if it’s palsy why does it last only 3 days?

I have had a similar experience. Both of my legs went paralyzed from my upper thighs down on two separate occasions ten years apart, (the first happened six months after a sever Epstein-barr infection that hospitalized me for a week). After the first episode I gradually, over a period of several days, regained movement but it was very choppy and broken for about a week after the paralysis. The second time this happened after a period of emotional stress and I was hospitalized and treated with a high dose of IV methylprednisolone. This knocked me out of paralysis more quickly but still, my movement was very choppy for a period of a couple weeks... Completely resolved in a few weeks and I was "normal". My doctors were stumped... I had seen a rheumatologist and three neurologists.

At one point after the bouts of paralysis I developed an episode of just four random days of extreme hip joint pain that went away spontaneously. Shortly thereafter I developed leg stiffness and a gait that resembled Parkinson's. (I also have a history of Hashimotos Thyroid disease, and Papillary Thyroid cancer.)

I was eventually tested by a general practitioner (during one of my hospitalizations for nerve and muscle issues in my arm) for Celiac Disease. My levels were off the chart. I had no history of GI symptoms whatsoever. Celiac Disease is an autoimmune, multi system disorder that primarily attacks the small intestine-- but it will attack any system in the body.

Celiac Disease can be tested initially with blood work (I will attach the serology). All of the labs should be tested because even one "off" level can warrant an endoscopy that is needed for an accurate diagnosis. (They will look for the blunting of villi in the small intestine.)

Celiac Serology:
1. Endomysial IgA antibody
2. Antigliadin Antibody IgG
3. Antigliadin Antibody IgA
4. Tissue Transglutaminase Antibody
5. Immunoglobulin A level

The only way to treat Celiac is to maintain a gluten free diet, without cross contact of gluten (which can be tricky but is doable). This will reduce inflammation in the system and eventually help the small intestine to heal. Going gluten free, however, was not enough for me, to regain movement without muscle stiffness/Parkinson like gait etc. I have recently learned, quite miraculously, that I cannot tolerate high levels of glutamate (an amino acid found in all food). I had read that through an article written by Dr. Vikki Peterson, a Celiac specialist, that the body that exhibits neurological symptoms with Celiac may also have a problem tolerating high levels of glutamate. When I removed things such as bone broth and fermented vegetables (along with many other foods) my symptoms disappeared. I feel better than I have in years. I keep a very regimented diet, that I am learning to be creative with and I am out and about running all over the place! I am now 42 years old and the mother of two young children and am grateful for my life.

I do not know if any of this could be helpful to you, but if you have not been tested for Celiac Disease, it may be worth investigating. If you do have Celiac, then being aware of dietary glutamate could be useful.

I wish you all the best.... I know how hard it is going without answers for such extreme and bizarre symptoms. I hope you get answers and feel better very soon!

I don't know. Will ask my neurologist.

What a journey! I have an esophageal problem and also loose bowels. Both are resolved. The latter is because I had my gall bladder removed so the route of digestion is too fast. My gastroenterologist is great. Also I just had a cystoscopy and have dietary changes for IC. No pain there, however.
Today had a brain MRI. Let's see what that shows.

Also, I did have progesterone when I was hospitalized for the second paralysis. I was weaned off of that after 5 days. Can be dangerous. My GP knew all about that.