Artificial sphincter: Was it difficult to learn how to use? Tips?

Posted by peterj116 @peterj116, Dec 18, 2024

How difficult was it to learn to use?
I had another visit to the surgeon yesterday & showed him a spreadsheet from the last week, showing uncontrollable leakage of around 500ml per day. He didn't think that was a big deal (3 months post-op) and said that I'll just have to put up with it.

After 5 or 6 training sessions with PT, I still can't move my pelvic floor at all. He said he's never had a patient who can't exercise his pelvic floor muscles. Well, I can't. I can't be the only one in the world.

He's referred me to a "sphincter specialist" who will "assess" me.
I dread to think what that involves.
But I may be able to get one installed 9 months after surgery, rather than wait for a year of uncontrollable incontinence (can't see me living through a year of this).

But then he said that he doesn't know if I'll be able to manage the artificial sphincter - implying that I'm so stupid & uncoordinated, I won't be able to push a button.

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not sure if I already mentioned but I use the bag with condom. I do everything I did prior except wear shorts. Its not without its complications but I have a life. Its been 5 years. I may look at the AUS but not convinced it offers any less complications.

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