The Patient Portal—Help or Hindrance?

Posted by Becky, Volunteer Mentor @becsbuddy, Nov 1, 2022

We’ve always talked about quick access to all the information we want, when we want it. Gone are the days of ‘snail’ mail and encyclopedias. Now we have Patient Portals! And they are here to stay!

In 2016 the Cures Act went into effect, but the part that pertained to access to patient records wasn’t effective until April 2021. The Dept of Health and Human Services began enforcing the rule which declared that a hospital or doctor must allow access to a person’s health information. Failure to do so could result in fines for the doctor and hospital. Thus, the Patient Portal.

The result is that as soon as you have lab work, x-rays, CT scans, or a diagnostic test, YOU will receive the information (often before the doctor does.). This has led to much confusion and fright for many patients. A test result, read by a patient, out of context, or without a doctor’s explanation, can lead to confusion and anxiety and un-necessary emotional harm. I know this personally, when I received the results of my MRI well before my doctor. Seeing a report that stated “new lesions in areas of the brain,” really freaked me out!

In today’s world of instant gratification with computers, the emotional cost of instant access can be high.

- How have you been able to handle reports on the Patient Portal? What suggestions do you have for other members?

Interested in more discussions like this? Go to the Just Want to Talk Support Group.

@mikaylar

I think the doctors like portals so they don't have to deal with us verbally. They can answer when they feel like it. My neurologist took over a week to answer in one instance. I just hate everything about trying to get care these days. I just had a surgery. I met the doctor at our consultation for 15 minutes before the surgery, then she looked in for 3 minutes before the surgery and spoke mainly to the anesthesiologist. She never came in after the surgery and I had to wait 2 weeks until the nurse called me to see how I was. I will probably never see or talk to the doctor again. Has anyone else experienced this?
Mikayla

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When I got the appointment with my breast cancer surgeon, she sent a letter out giving her contact info as well as that of her nurse and two nurse practitioners. In the letter, she clearly stated that I would see her on the day of surgery but not after unless absolutely necessary. All of my follow ups have been with her staff.

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@casey1329

I've found that keeping a typed,dated, running record of all doctor appointments, giving the doctor's name,why I went and what was the outcome to be very useful because at my age I can't remember everything. I also ask for a copy of every test, procedure etc. All of this is put into a binder which I bring to all my appoints. It also includes insurance information. Doctors in general really like it...good luck !

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good idea, it cuts a lot of wear and tear on the issues at hand for DOCTORS VISITS....YOU ARE SMART...THANKS>..Margareto

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@ellerbracke

@mikaylar: Yup, happened to me as well. Consultation with surgeon for lumpectomy - maybe 15 minutes in office. Day of surgery (still with COVID protocol, mask on my face at all times) he waltzes in about 40 minutes behind schedule, says “hey”, scribbles something on my right shoulder, and that was it. Post surgery consult a few days later was with a very nice PA, never saw the surgeon again. And - because of numerous delays, recovery rooms were full, so I went from that immediate “waking-up” station/stage straight out the door.

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Omg, I am not alone. I went from waking up and 45 minutes out the door. I could hardy get dressed; I was so groggy. Years ago they sent my daughter home right after a hysterectomy and that night she could not urinate. I raced her back, they catharised her and then had the gall to charge her another co-pay FOR THE SAME DAY that they screwed up. I wrote 7 letters to ever CEO and anyone of importance. We got off the hook. This is not good.

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@mikaylar

I think the doctors like portals so they don't have to deal with us verbally. They can answer when they feel like it. My neurologist took over a week to answer in one instance. I just hate everything about trying to get care these days. I just had a surgery. I met the doctor at our consultation for 15 minutes before the surgery, then she looked in for 3 minutes before the surgery and spoke mainly to the anesthesiologist. She never came in after the surgery and I had to wait 2 weeks until the nurse called me to see how I was. I will probably never see or talk to the doctor again. Has anyone else experienced this?
Mikayla

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@mikaylar: Yup, happened to me as well. Consultation with surgeon for lumpectomy - maybe 15 minutes in office. Day of surgery (still with COVID protocol, mask on my face at all times) he waltzes in about 40 minutes behind schedule, says “hey”, scribbles something on my right shoulder, and that was it. Post surgery consult a few days later was with a very nice PA, never saw the surgeon again. And - because of numerous delays, recovery rooms were full, so I went from that immediate “waking-up” station/stage straight out the door.

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@becsbuddy

@mikaylar I can imagine that you’re upset that the doctor didn’t speak to you after surgery. Was this surgery in a hospital or outpatient surgery center? You might call back to the hospital/surgery center and ask to speak with the patient representative. Their job is to listen to you, explain hospital protocols, and talk to physician. They are, basically, a go-between.
Were there any complications or problems that you needed to talk to the doctor about?

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It was a 1 day procedure in the hospital and the of the best in Philadelphia, might I add, Penn. It was 2 weeks later that the nurses assistant had a telemed with me to tell me exactly what the doctor did during surgery - 2 freakin weeks!! I saw this surgeon for consultation a month before surgery for 15 minutes and 3 minutes before surgery when she talked to the anesthesiologist. That's it. I assumed the surgery went well or I would have heard before 2 weeks but who knows.

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@mikaylar

I think the doctors like portals so they don't have to deal with us verbally. They can answer when they feel like it. My neurologist took over a week to answer in one instance. I just hate everything about trying to get care these days. I just had a surgery. I met the doctor at our consultation for 15 minutes before the surgery, then she looked in for 3 minutes before the surgery and spoke mainly to the anesthesiologist. She never came in after the surgery and I had to wait 2 weeks until the nurse called me to see how I was. I will probably never see or talk to the doctor again. Has anyone else experienced this?
Mikayla

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i know other who have experienced similar situation to yours... I am now an older person who remembers going into hospital, getting a bed and ready for the procedure the next day, and for however many days in hospital the doctor came by to see how you were - the morning rounds....then those drs went on to their afternoon private-type practices in the afternoons etc. ; and forget now but when had babies I think it was one or two weeks in hospital... now I think can go in and out same day? i can understand cut backs etc. but it seems a lot of responsibility for aftercare is falling on nurses or psw's but my adult daughter works in entirely different field and says its the thing now to 'delegate" .... even when I asked my nurse practitioner about referring me to a neurologist I had seen before she said 'you phone him' !! So why have 2 or 3 receptionists - I feel and am keeping track of my patient records, data, when get copies of blood work I have to ask about results etc, and am not criticizing but questioning, its the way of the world these days.... and IMO COVID changed everything! My husband's oncologist said he liked working from home and going into hospital only one day a week - so obviously not now seeing as many patients face to face; but was it necessary for him to be at the hospital 5 days a week, i dont know... but it IS the future and we somehow have to grin and bear it. Hope you feel better soon.

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@mikaylar

I think the doctors like portals so they don't have to deal with us verbally. They can answer when they feel like it. My neurologist took over a week to answer in one instance. I just hate everything about trying to get care these days. I just had a surgery. I met the doctor at our consultation for 15 minutes before the surgery, then she looked in for 3 minutes before the surgery and spoke mainly to the anesthesiologist. She never came in after the surgery and I had to wait 2 weeks until the nurse called me to see how I was. I will probably never see or talk to the doctor again. Has anyone else experienced this?
Mikayla

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@mikaylar I can imagine that you’re upset that the doctor didn’t speak to you after surgery. Was this surgery in a hospital or outpatient surgery center? You might call back to the hospital/surgery center and ask to speak with the patient representative. Their job is to listen to you, explain hospital protocols, and talk to physician. They are, basically, a go-between.
Were there any complications or problems that you needed to talk to the doctor about?

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@ess77

@casey1329, @becsbuddy, @gingerw, @artscaping, and all...Thanks Casey, for your good advice. This is a problem with this office for years. I've mentioned, complained and been quite verbal through the years, but no improvement. Often can't reach a person for hours or days!
With the new system, the same company Mayo uses, I had high hopes for improvement. It is much better....but the staff stil is horribly slow to respond. They have still not responded to the iron test results that are very important.
I'll chat with him in person and see what happens.
I'm just not willing to allow this kind of stress cause continued issues. No more.
Be blessed.
Elizabeth

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Getting used to this new keyboard is going to be hard.

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I think the doctors like portals so they don't have to deal with us verbally. They can answer when they feel like it. My neurologist took over a week to answer in one instance. I just hate everything about trying to get care these days. I just had a surgery. I met the doctor at our consultation for 15 minutes before the surgery, then she looked in for 3 minutes before the surgery and spoke mainly to the anesthesiologist. She never came in after the surgery and I had to wait 2 weeks until the nurse called me to see how I was. I will probably never see or talk to the doctor again. Has anyone else experienced this?
Mikayla

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@karen1945

Yes! I find the response is quicker when I use the portal rather than the phone.

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Hi Karen, I'm not surprised by that - portal messages & responses are some of the statistics that can be monitored by management to determine how responsive the personnel are to patient requests. Unless they have a sophisticated system, phone messages are not necessarily input into the portal, and become random slips of paper floating around. Until the latest software upgrade, my practitioner literally had to log onto 3 different systems to collect all the messages - the main portal, the phone message system and the separate e-mail message system. No wonder things can "slip through the cracks." In addition, with staffing issues, not every primary provider has an individual employee monitoring just for them - often it is a pool arrangement with 3-4 providers sharing a group of nurses and aides.
Sue

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