The Patient Portal—Help or Hindrance?

Posted by Becky, Volunteer Mentor @becsbuddy, Nov 1, 2022

We’ve always talked about quick access to all the information we want, when we want it. Gone are the days of ‘snail’ mail and encyclopedias. Now we have Patient Portals! And they are here to stay!

In 2016 the Cures Act went into effect, but the part that pertained to access to patient records wasn’t effective until April 2021. The Dept of Health and Human Services began enforcing the rule which declared that a hospital or doctor must allow access to a person’s health information. Failure to do so could result in fines for the doctor and hospital. Thus, the Patient Portal.

The result is that as soon as you have lab work, x-rays, CT scans, or a diagnostic test, YOU will receive the information (often before the doctor does.). This has led to much confusion and fright for many patients. A test result, read by a patient, out of context, or without a doctor’s explanation, can lead to confusion and anxiety and un-necessary emotional harm. I know this personally, when I received the results of my MRI well before my doctor. Seeing a report that stated “new lesions in areas of the brain,” really freaked me out!

In today’s world of instant gratification with computers, the emotional cost of instant access can be high.

- How have you been able to handle reports on the Patient Portal? What suggestions do you have for other members?

Interested in more discussions like this? Go to the Just Want to Talk Support Group.

My experience has been nothing but positive. I also have several docs outside of Mayo, and when I compare their portal to Mayo, it is nothing short of day and night. There are some portals of outside docs where I cannot send to them "attachments" of recent bloodwork completed somewhere else, for example. Communication is limited in many cases which has not been my experience with Mayo. With Mayo, docs or their assistants respond quickly and are quite thorough with their responses. From my experience, it has been total care from Mayo.

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@lacy2

...one recent visit got copy of short report and the dr was a bit offhand with her comments, bordering on rudeness, i guess maybe she was tired from being in emerge all night etc., but now i know how she sees her patients/me, if i get her again i will view her differently.... and be very careful how i answer her questions etc!! she prejudged me, quite obvious, but in the long run doesnt matter, just nice to know how she really felt bout me 🙂

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Wow, and you may want to get another doctor. Why go through that experience again when you don’t need too? Your relationship with your doctor should be a good one…..yes they all have different personalities…but rudeness and prejudging is not good. Wishing you the best.

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...one recent visit got copy of short report and the dr was a bit offhand with her comments, bordering on rudeness, i guess maybe she was tired from being in emerge all night etc., but now i know how she sees her patients/me, if i get her again i will view her differently.... and be very careful how i answer her questions etc!! she prejudged me, quite obvious, but in the long run doesnt matter, just nice to know how she really felt bout me 🙂

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@mikaylar

Me too. Before portals (and even now), I get a printed copy of the summary of my visit. When I get home, I call the doctor's office and tell them all the mistakes in the report. Yesterday's report said I was 138 lbs; I'm 128. The 138 was from my visit 6 months ago. It said they took my vitals and didn't. Those results were all from 6 months ago too. From now on I'll read the summary before I leave the doctor's office. You get your 12-15 minutes seeing the doctor so you better be prepared with a list of questions and make it fast. My doctor stood up and was ready to check me out and I was still asking questions. This is pathetic!

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Agreed!

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@mikaylar

This is scary because minor mistakes could be serious. Like when they show you weight 160 when you are 128 (or something). That could affect the quantity of the medicine you take. One doctor said, "I see you are allergic to aspirin." No, I take one every day. Just continue to monitor your records and be diligent EVERYONE!

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Very true. They got my surgery dates mixed up which implicated when I would go off dual platelet blood thinner - and that impacted when I could do the next surgery. Fortunately, we can see the records now

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@vic83

I too have found several mistakes in my records. I have noted some "cut and paste" by doctors (or their assistants?) from past visits (including other doctors) and the original error gets repeated. I have also noted a difference in "quality of comments" between various networks - like some doctors are just learning to do it. Having complex medical background, I try to be very clear but still see mistakes.

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This is scary because minor mistakes could be serious. Like when they show you weight 160 when you are 128 (or something). That could affect the quantity of the medicine you take. One doctor said, "I see you are allergic to aspirin." No, I take one every day. Just continue to monitor your records and be diligent EVERYONE!

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@adr

You have a right to your medical notes and all other medical information. If I don't see it posted I ask for it. Simple.

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In the interest of helping them improve their systems, I let them know what doesn't work properly.

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@mikaylar

Me too. Before portals (and even now), I get a printed copy of the summary of my visit. When I get home, I call the doctor's office and tell them all the mistakes in the report. Yesterday's report said I was 138 lbs; I'm 128. The 138 was from my visit 6 months ago. It said they took my vitals and didn't. Those results were all from 6 months ago too. From now on I'll read the summary before I leave the doctor's office. You get your 12-15 minutes seeing the doctor so you better be prepared with a list of questions and make it fast. My doctor stood up and was ready to check me out and I was still asking questions. This is pathetic!

Jump to this post

I too have found several mistakes in my records. I have noted some "cut and paste" by doctors (or their assistants?) from past visits (including other doctors) and the original error gets repeated. I have also noted a difference in "quality of comments" between various networks - like some doctors are just learning to do it. Having complex medical background, I try to be very clear but still see mistakes.

REPLY
@adr

You have a right to your medical notes and all other medical information. If I don't see it posted I ask for it. Simple.

Jump to this post

Me too. Before portals (and even now), I get a printed copy of the summary of my visit. When I get home, I call the doctor's office and tell them all the mistakes in the report. Yesterday's report said I was 138 lbs; I'm 128. The 138 was from my visit 6 months ago. It said they took my vitals and didn't. Those results were all from 6 months ago too. From now on I'll read the summary before I leave the doctor's office. You get your 12-15 minutes seeing the doctor so you better be prepared with a list of questions and make it fast. My doctor stood up and was ready to check me out and I was still asking questions. This is pathetic!

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@vic83

Could your issue be a technical one dependent on the provider?
I have doctors in different healthcare networks, and so I have had the opportunity in this last year to compare them. I find that the big networks (Allina, Park Nicollet, Mayo) have very good MyChart pages with a technical support phone number. So, one only has to "create an account" and things are pretty clear. And one has the ability to forward documents to another network of providers.
BUT SMALL PRIVATE GROUPS OF DOCTORS are another thing!!! They do the minimum required by law. They have to post test results, but their "Notes" are little or non-existent. I suspect they don't have the resources to purchase the more expensive software and technical expertise or, perhaps the desire to provide notes to a visit. I utilized database technology a lot before retiring so I know this stuff should work.

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You have a right to your medical notes and all other medical information. If I don't see it posted I ask for it. Simple.

REPLY
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