The end of my Chernobyl Spa Days

Posted by hans_casteels @hanscasteels, Apr 11 12:56pm

Yesterday marked the end of my EBRT pilgrimage. Twenty-one precision-guided rituals at the Chernobyl Spa, where modernity’s most sophisticated death rays are deployed with bureaucratic cheer. One might expect balloons. A handshake. Perhaps a sticker. Instead, I was quietly deleted from the schedule. I ceased to exist at precisely 15:00.

This, of course, followed HDR Brachytherapy—an entirely separate saga in which a gnome-sized demon was inserted into my pelvis to wage microscopic war. But that’s a bedtime story for another PTSD support group.
There’s something about External Beam Radiation Therapy that really brings the term existential coordination to life. Each day, you show up. Not for lunch. Not for purpose. But to present yourself to the linear accelerator in a state of precise physiological readiness. The bladder must be full. The rectum must be void. The soul must be absent.

You clutch your water bottle like a sacred relic, not because you thirst, but because bladder volume has become a medical imperative. You are there to be targeted by millions of invisible particles designed to eradicate cells that have overstayed their welcome. The radiation is precise. Mathematical. Majestic in its cold indifference.

But before that ballet of beams begins, you must perform your own awkward dance: the meticulous coordination of bodily functions. This is not merely a preparatory step. It’s the gatekeeper. Arrive with the wrong contents in the wrong compartments, and you risk frying your rectum or missing your prostate entirely. The instruction manual reads: “Please try to urinate one hour before and drink 500ml of water.” Translation: Get it wrong, and you may cook the wrong organ. Radiation doesn’t do do-overs.

Your entire day begins to orbit this ritual. Meals are no longer timed by hunger, but by fiber intake. Laxatives become strategic allies. Your watch transforms into a cruel enforcer. And your brain becomes a battlefield of neurotic calculations: Did I drink enough? Too much? Is that a gas bubble or a biological betrayal in progress?
This negotiation with your own body is constant. Exhausting. Yet oddly intimate. In a world where you control nothing—not cell growth, not prognosis, not even the fate of your pelvic floor—this, at least, is something you can attempt to master.

And when the stars align—hydrated, deflated, and mentally broken—you lie down on the cold slab of mechanized mercy. What greets you is not recognition. Not thanks. Just the silent pivot of a robotic arm and the muted hum of indifference. The beam does not love you. It does not see you. It will not miss you when you're gone.
The technicians re-enter. “All done,” they say, as if you’ve just renewed your driver's license. You nod, grateful to leave. You shuffle out into the daylight, blinking against a world that does not know you just sacrificed your dignity for another millimeter of survival.

To the radiologist, you are not the climax of a delicate gastrointestinal symphony. You are “Patient #14, 14:45.” Your carefully measured bladder? A green checkmark. Your heroic bowel prep? A polite nod. Your existential angst? Muffled by lead walls and fluorescent lights.

It’s not their fault. They're overworked, understaffed, buried beneath tumors that are, statistically, not their own. Empathy is a luxury that fifteen-minute appointments do not permit. Were they to absorb the human drama of every patient, they'd implode before Tuesday.

Still, the contrast is jarring. For you, this is survival. Identity. Fiercely mundane heroism. For the system, it’s throughput. Efficiency. Patient flow.
And so you lie there, supine and vulnerable, gazing at two photographs of impossibly manicured gardens , as the dispassionate god that is the linear accelerator rotates around you, delivering photons to a target defined by millimeters and probability. It cares nothing for your dreams, your bladder, or your quietly clenched sphincter. And yet, this cold beam is the thing keeping you alive.
There is beauty in that contradiction. The most important war of your life is fought in silence, by strangers with charts and robots without bedside manner. You, meanwhile, are left with your plastic water bottle, your bathroom anxieties, and the quiet realization that coordination of bodily functions may be the most underrated survival skill of the modern age.

And tomorrow, you’ll do it again. And again. And again. Because cancer doesn’t care if you're tired. And neither, frankly, does the machine.

But your bladder? Now, that is a fussy little diva.
There has got to be a brochure for that.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@hanscasteels Below are a few lines (3 paragraphs) from your post above. I wish to add my experience today (parenthetical notes after the lines from your post).

a. Yesterday marked the end of my EBRT pilgrimage. Twenty-one precision-guided rituals at the Chernobyl Spa,
(This afternoon was my second SBRT treatment. Three more treatments to go.)

b. Your carefully measured bladder? A green check mark. Your heroic bowel prep? A polite nod.

(As I was getting off from the "treatment bed," one of the techs said, "Everything was according to the textbook. That's why we finished early."
(But in fact, we finished late. My schedule was for 1:30 p.m., Radiation Unit 9. Initially, I was told to wait 10 more minutes, then it would be my turn. Then I was told, Unit 9 is behind schedule, we will ask the RO to see you first, then you'll be in to Unit 9. After the RO had seen me, I was told that Unit 9 wasn't ready, I would be treated at Unit 6. My treatment started at 2:15 p.m.
(I was told that the cancer center has several Elekta MRI guided machines, the one at unit 6 is a sister of unit 9's. I guessed that the patient ahead of me at unit 9 (where I was the last time) had his treatment delayed. Maybe he had gas or his rectum wasn't empty? I understand that treatments do not proceed until the patient has passed the gas or emptied the rectum, and his bladder is almost full? [drink 500 ml water 30 to 40 minutes before, don't pee before treatment], else organs at risk. I think it is a good thing. Better late than sorry.)

c. The technicians re-enter. “All done,” they say, as if you’ve just renewed your driver's license.
You nod, grateful to leave.

(Then I heard the unexpected. I was about to ask, but the technician was ahead of me. She said, "Your bladder is perfect. As well as your rectum. Everything was according to the textbook. That's why we finished early."
(Event "c" is actually before "b," but I put it last because it was then that I said, "Oh, thank you. I'm happy to know.)

In conclusion, I think that each of us may have our own unique experience that we can share in this Support Group, and hopefully help others. Hans, you are a writer. Your posts are somewhat long, but I have read them all. I wish you the best!

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@vircet

@hanscasteels Below are a few lines (3 paragraphs) from your post above. I wish to add my experience today (parenthetical notes after the lines from your post).

a. Yesterday marked the end of my EBRT pilgrimage. Twenty-one precision-guided rituals at the Chernobyl Spa,
(This afternoon was my second SBRT treatment. Three more treatments to go.)

b. Your carefully measured bladder? A green check mark. Your heroic bowel prep? A polite nod.

(As I was getting off from the "treatment bed," one of the techs said, "Everything was according to the textbook. That's why we finished early."
(But in fact, we finished late. My schedule was for 1:30 p.m., Radiation Unit 9. Initially, I was told to wait 10 more minutes, then it would be my turn. Then I was told, Unit 9 is behind schedule, we will ask the RO to see you first, then you'll be in to Unit 9. After the RO had seen me, I was told that Unit 9 wasn't ready, I would be treated at Unit 6. My treatment started at 2:15 p.m.
(I was told that the cancer center has several Elekta MRI guided machines, the one at unit 6 is a sister of unit 9's. I guessed that the patient ahead of me at unit 9 (where I was the last time) had his treatment delayed. Maybe he had gas or his rectum wasn't empty? I understand that treatments do not proceed until the patient has passed the gas or emptied the rectum, and his bladder is almost full? [drink 500 ml water 30 to 40 minutes before, don't pee before treatment], else organs at risk. I think it is a good thing. Better late than sorry.)

c. The technicians re-enter. “All done,” they say, as if you’ve just renewed your driver's license.
You nod, grateful to leave.

(Then I heard the unexpected. I was about to ask, but the technician was ahead of me. She said, "Your bladder is perfect. As well as your rectum. Everything was according to the textbook. That's why we finished early."
(Event "c" is actually before "b," but I put it last because it was then that I said, "Oh, thank you. I'm happy to know.)

In conclusion, I think that each of us may have our own unique experience that we can share in this Support Group, and hopefully help others. Hans, you are a writer. Your posts are somewhat long, but I have read them all. I wish you the best!

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Somewhat long is a correct statement, but he s mentally unloading a situation he s in and can do nothing about it. We are all in the same boat. Some boats are floating, while others are sinking.

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@ecurb

Somewhat long is a correct statement, but he s mentally unloading a situation he s in and can do nothing about it. We are all in the same boat. Some boats are floating, while others are sinking.

Jump to this post

“Somewhat long”? No—it’s exactly as long as it needs to be. Sorry if raw reality doesn’t fit your scrolling schedule. Feel free to float past while the rest of us bail out the sinking parts.

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@hanscasteels

“Somewhat long”? No—it’s exactly as long as it needs to be. Sorry if raw reality doesn’t fit your scrolling schedule. Feel free to float past while the rest of us bail out the sinking parts.

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Aries or Taurus- that’s you.

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Another enjoyable read.
Hopefully you now enjoy your schedule freedom without the need for precise bowel and bladder regiment with whatever food and drink you desire.

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Radiation was the easiest part of treatment for me with the least side effects, at least so far (10 months later). I was expecting it to be so much worse.

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@jsh327

Another enjoyable read.
Hopefully you now enjoy your schedule freedom without the need for precise bowel and bladder regiment with whatever food and drink you desire.

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The whatever component I still under review. The whenever component; yes, with gusto. I don’t think that She Who Must Be Obeyed would approve of some of my choices if She wasn’t looking.

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@scottbeammeup

Radiation was the easiest part of treatment for me with the least side effects, at least so far (10 months later). I was expecting it to be so much worse.

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What was the worst part for you? I am assuming ADT?

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@hanscasteels

The whatever component I still under review. The whenever component; yes, with gusto. I don’t think that She Who Must Be Obeyed would approve of some of my choices if She wasn’t looking.

Jump to this post

Actually, I put on 5 lbs AFTER radiation and ADT, so thrilled was I to eat all the gassy, carbonated verboten delights listed on the menu at the “radiation Cafe”.

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@hanscasteels

What was the worst part for you? I am assuming ADT?

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Yes. I started with Lupron but got bad tachycardia episodes, suicidal thoughts, and severe depression. Plus, the nurse hit a nerve during one of my monthly injections and I couldn't walk for 20 minutes and was sore for two weeks. I switched to Orgovyx for my last three months and it was a bit better.

What's really got me worried, though, is I'm almost six months past my last Orgovyx pill. At three months my testosterone had recovered into low-normal range, I was feeling good, and Mr. Happy was working great. But at six months it had plummeted, along with estradiol. When I brought it up to the oncology nurse practitioner I was told "you had cancer so there's a price to pay." I don't want to accept that so am going to see an endocrinologist and a sexual health specialist so we'll see.

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