1. < Digestive Health

Total Pancreatectomy: What can I expect?

Posted by mcantr @mcantr, Dec 26, 2018

I am searching for a forum or support group for people who have had a total pancreatectomy. I have a family member who had one several years ago and feel that it would be helpful if he had a way to search for the experiences of others who have had the same procedure.

Interested in more discussions like this? Go to the Digestive Health Support Group.

lake3031 | @lake3031 | Jun 11 7:27am
In reply to @oregonian "Oh my, you have had an ongoing battle with your body and your life and yet..." + (show)
@oregonian

Oh my, you have had an ongoing battle with your body and your life and yet you are kind enough to respond to this request with articulate truth! I admire you for your tenacity and clear eyed evaluation of your situation.
I am sending out positive thoughts (and prayers!) in your direction for less pain and for
research to finally solve the immune suppressants issue. Blessings, my invisible friend.

Jump to this post

Good Morning from humid NJ! People ask me how I have made it this far and not just went on hospice/palliative care. My answer is because of people like yourself to see my unfortunate hand in life but still somehow maintain some composure and always try to still put others first. It's just in my nature. Your words mean SO much to me. My prayers to you and all your loved ones. If you or anyone you know needs any help at all, I would be glad to lend a hand! 🙏

REPLY
ericawiersfischer | @ericawiersfischer | 2 days ago

Can anyone tell me their experience with having a Total Distal Pancreatectomy and Splenectomy for chronic pancreatitis. I find lots of literature about having these surgeries for cancer, but I do not have cancer. I have acute on chronic attacks of pancreatitis that have become frequent. I do not tolerate stents as they cause iatrogenic pancreatitis. I have not kept any of the 8 or so stents as long as they were intended so the therapeutic effect does not occur. I cannot tolerate any of the medications, intolerance or allergy. and so now I am scheduled for surgery. I am curious about complications and what will my digestive health my look like going forward. Any suggestions, or questions I should ask that I am not currently thinking about or aware of.

REPLY
1 reply
Moderator
Lisa Lucier, Moderator | @lisalucier | 1 day ago
In reply to @ericawiersfischer "Can anyone tell me their experience with having a Total Distal Pancreatectomy and Splenectomy for chronic..." + (show)
@ericawiersfischer

Can anyone tell me their experience with having a Total Distal Pancreatectomy and Splenectomy for chronic pancreatitis. I find lots of literature about having these surgeries for cancer, but I do not have cancer. I have acute on chronic attacks of pancreatitis that have become frequent. I do not tolerate stents as they cause iatrogenic pancreatitis. I have not kept any of the 8 or so stents as long as they were intended so the therapeutic effect does not occur. I cannot tolerate any of the medications, intolerance or allergy. and so now I am scheduled for surgery. I am curious about complications and what will my digestive health my look like going forward. Any suggestions, or questions I should ask that I am not currently thinking about or aware of.

Jump to this post

Hi, @ericawiersfischer. I moved your post related to
total distal pancreatectomy and splenectomy here so you could talk to others who've chatted about pancreatectomy, etc. Please meet @tls @ahtaylor @marvinjsturing @steve_b @huilim @hopeful33250. Hoping they have suggestions of questions you should ask, and information about any complications they experienced and what your digestive health will look like going forward.

When is your surgery, ericawiersfischer? How are you feeling about it as the surgery approaches?

REPLY
1 reply
ericawiersfischer | @ericawiersfischer | 1 day ago
In reply to @lisalucier "Hi, @ericawiersfischer. I moved your post related to total distal pancreatectomy and splenectomy here so you..." + (show)
@lisalucier

Hi, @ericawiersfischer. I moved your post related to
total distal pancreatectomy and splenectomy here so you could talk to others who've chatted about pancreatectomy, etc. Please meet @tls @ahtaylor @marvinjsturing @steve_b @huilim @hopeful33250. Hoping they have suggestions of questions you should ask, and information about any complications they experienced and what your digestive health will look like going forward.

When is your surgery, ericawiersfischer? How are you feeling about it as the surgery approaches?

Jump to this post

Surgery is end of August and I am feeling good about having this done as all other treatments have not been successful and I have been getting acute on chronic pancreatitis every 2-3 months with hospitalizations up to 5 days at a time. I am hoping this will be an end to Hotel Mayo visits.

REPLY
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