Tall Cell Subtype, maybe RAI avid, TG levels are extremely high

Hi! While I don't have the same cell type I have been through much of what you are describing.
I am sure this is very unsettling for you and your mother. It's hard to know what is the best course to take. Fortunately most of the doctors are familiar with all of the different factors. If ypu are concerned you could always request a 2nd opinion . I understand your concerns with side effects for medication. Thyroid cancer is somewhat unique in that are body is designed to make those cells and they impact so many of our body systems. I have lived with this for over 30 years. It's always been a balance of surgery, treatment and lab tests . Sometimes we have to weigh the possible side effects with the other factors if we don't treat . Remember they are possible side effects and not everyone is affected the same way.
I would suggest writing all your questions down and take to the doctor.
Hoping your mother continues to feel better. May you have positive times with her as well, away from all this cancer questions and testing.

Thank you so much for your reply! Since the surgery, my mother is doing well, but she is traumatised by the whole surgery experience (she had be tracheostomised and couldn't speak for 20 days before the doctors roved the tracheostomy tube from her neck) and has black outs every single time we visit a doctor's clinic, even if it's for a simple flu. She cannot and does not take fear amd anxiety well, her body immediately reacts. This is what is concerning me the most, because more than the physical effects, my mother will be mentally affected by the side effects. Otherwise, she has no other symptoms. We are due for a check up on 10th May, and the doctors may suggest Lenvima or another round of RAI. I am just praying that whatever happens, it happens for the best for her interests.

I am so very sorry she was so traumatized. I think you are an amazing advocate for her , especially in recognizing that it is the trauma that may be causing her black outs. That is a very significant
response to her stress, and it could show that she has not
been able process all she has gone through. Sometimes this can happen if there is other or prior trauma as well.
I would encourage you to discuss with her the helpfulness to find a someone who is experienced with trauma responses for her to speak with. A therapist could help her find ways to process the events and prepare for more doctors appointments. You might also have the hospital Chaplain or someone from her faith foundation to help you speak with her about seeing someone experienced with suffering like she is. My hope is she will agree and she won't have to struggle so much. No one should hurt that much.
Is her doctor aware of this reaction?
I am praying for you both.

Update: We will be going in for a PET CT Scan on Monday to figure out the level of metastates, and if there is local mets, they have suggested neck dissection. Or Lenvima, but Lenvima will be long drawn and difficult treatment, so they have asked us to consider surgery first.

@achatterjee, how did the appointment go? What did you learn? Next steps?

I am sorry to hear about your mother’s reaction to this traumatic experience. Did you ever hear of Gilda’s Club? It was named after Gilda Radner, the SNL comedian who was dealing with cancer. It’s a place where people who were diagnosed with cancer can meet and do things to heal their minds while healing their body. They have a website and now have several locations; they offer assistance and support for people dealing with cancer. They have yoga and healing programs and people to talk to about dealing with cancer! I have directed a few people to them and they said they were great! It might be a good resource for your mother to consider; it sounds like they take the focus off cancer and put it back on living and doing things. Even if you do not live in the area of one of their locations, it might be worth calling them for information. Good luck!

Hello. The PET CT Scan revealed two tiny metastatic spots on my mother's ileus bone, in her hip, so she is put on Lenvima 12 mg. With God's grace, she is fine except for really high bp. She is put on two different medications for it. We are worried but I am hopeful Lenvima will work

Hi! Thank you so much!! Unfortunately, India doesn't have a Gilda's club. I wish we had more such centres here where people can talk about their fears of cancer.

I checked the website and you are right, they do not have a club in India. However if you put India in, a message on the side comes up with a phone number to call for resources for you particular need. I don’t any details about it, but figure any information might lead to some help. I hope it helps.