Anyone taking Tagrisso for Lung Cancer?

I’m so happy to hear that you’re in remission. How many milligrams of Tagrisso were you taking I’m on 40 mgs. I I couldn’t take the 80 mgs.

I hope the Tagrisso works for you. I had to stop as it caused pneumonitis in all 5 lobes. Thankfully my last scan shows me in complete remission. Praying it stays that way. Good luck

I was diagnosed last August with NSC S3b in upper right lobe and the EGFR mutation. 2 noded involved. Started 4 rounds of chemo 3 weeks apart early October. Added Tagrisso 80 mg about a week after 1st chemo. By Nov, the mass had shrunk about 1/3rd. Thoracotomy 8 weeks ago showed no evidence of cancer! I've waited to start back on Tagrisso due to pain, breathlessness and cough but plan to start back in 2 weeks. I'm praying that I won't have any significant side effects.

I have been taking Tagrisso for about 14 months for stage IV lung cancer. A recent PET Scan revealed an increase in the size of my cancerous lung nodules. This coming Friday I will see my oncologist to see what she will prescribe to decrease or eliminate the cancer: Does anyone have any suggestions or comments?

Tinae, I don’t think conventional doctors have a clue they’re not trained about nutrition. Or vitamins my doctor checks my liver every six months and thank God I’m doing well. Show him what I’m taking. I guarantee he or she will tell you don’t take it. But I’m so happy you’re doing well.

@babs did your doctor ever tell you you shouldn’t be taking any of that stuff? They tell me that it does something to my liver enzymes and different things in my blood test so that’s why they recommend I don’t take it.

The pharmacist couldn’t come up with a reason why I couldn’t eat the mushroom so that’s why I’m back on those, but I’m pretty sure if I sent him a screenshot of what you’re taking. They’re gonna tell me I shouldn’t. I’m gonna give it a whirl.

Thanks for the information. I’ll have to look it up.

When I first got diagnosed somebody through my office who knew me had stated that he knew somebody that did the maitake mushrooms and was eating them.

I actually talked to the man turns out he had testicular cancer, which had spread to his lymph nodes and he had 120 hours of infusion but then after that he started eating the mushrooms and it’s been 13 years so just like the man you mentioned his cancer disappeared.

So after being told, I couldn’t take my community I’m back to eating the mushroom. I just need to get it back into my ritual of eating it every day.

Can you share how you found out you had lung cancer?

Good for you. I’m so happy you’re dealing with a holistic doctor. I was taking my community also too then I found this website this guy Chris Wark had stage three colon cancer. He was in the hospital had surgery. They want him to have chemo and he refused it. He did a lot of researching and all he did was a plant-based diet. The oncologist told him if he didn’t have chemo, he would be dead in six months. That was when he was age 26 now he’s 47. I joined his website once a month he does a video and you can ask him questions and he tells you what’s good to take. What’s not good to take. It’s very interesting. I stopped taking my community because there’s something that’s supposed to be in if that’s not and I forgot what they said, but I found a liquid mushroom. It’s called. CHAGIT mushroom blend. I put 2 teaspoons in my oatmeal. It’s very good. My community doesn’t have a special ingredient in it and I forgot what they said. The guy who created Chagit mushroom blend was on Chris’s video he was saying a lot of great things about it. I also deal with this company called Better Way Health. Chris said beta glucan is a very good vitamin to take it. Builds up the immune system also vitamin D3 and curcumin.

I too went to a natural doctor. Working on changing eating habits, and all that good stuff and then I started taking a supplement called my community, which has 17 different mushrooms.

My oncologist made me promise that I wouldn’t spend a lot on anything and I’d give him a copy so I sent him a screenshot as soon as I did that at the pharmacist came back and said I shouldn’t be taking it because it can make your liver enzymes, your blood count, and something else off.

But I can eat the mushroom so I’m eating the mushroom called the Maitake.

There’s some other people that have the same lung cancer I have and they’ve been taking the my community supplement and they have no signs of their cancer but yet my doctor says I can’t take it so I’m going to wait till my next scan and if this is getting worse, I’m going back on that my community.

What’s discouraging is that the oncologist most often go with the western medicine that’s what they know and pharmaceutical companies won’t invest in something cheap like green tea or mushrooms to help the patients. Early at least do some testing to see if there’s something else out there.

We all have to be our own advocate though, and if we feel there’s something that works for us it’s always good to share it with other people in our situations.

We already have cancer how much worse can you get?

Hi Tinae, I too am taking Tagrisso, I’m also seeing a holistic doctor. She detox me and I am juicing, carrots, ginger, lemon, and celery. Plus, I am taking vitamins. I feel really good. I’m glad you’re doing well too.