1. < Osteoporosis & Bone Health

T--score change, next steps

Posted by janism @janism, Jun 24 11:39am

I am finishing my course of Tymlos and my progress is--

Lumbar spine T score -2.2, prev -3.2
Left total hip T score -2.8, pre -3.2
Right total hip T score -2.5, prev -2.8

I know that my nurse-practioner is going to recommend Reclast, and after reading about side effects I don't really want that. Experiences?

I'm looking for a magic wand and know there isn't any. Sigh.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

njx58 | @njx58 | Jun 24 12:57pm

No magic wand. 🙁

Your choices are likely Reclast or Fosamax. There are many threads here about Reclast experiences. Some people have had issues, and others haven't had any.

REPLY
janism | @janism | Jun 24 1:36pm

I should have said that I can't do Fosamax--I started it before the Tymlos and I developed severe GERD so we discontinued.

REPLY
1 reply
hmbrglr | @hmbrglr | Jun 24 1:53pm

How long were you on Fosamax before your symptoms progressed. I am having Gerd issues after 7 mos. Bout I was taken off of Prolia because I had a rash and allergic reaction after my first year . Now I’m dealing with considering another or giving up.

REPLY
1 reply
njx58 | @njx58 | Jun 24 2:15pm
In reply to @janism "I should have said that I can't do Fosamax--I started it before the Tymlos and I..." + (show)
@janism

I should have said that I can't do Fosamax--I started it before the Tymlos and I developed severe GERD so we discontinued.

Jump to this post

There are people here who have described ways of getting the Reclast infusion to minimize side effects: pre-hydration, slower infusion rate, maybe even lower dose.

REPLY
janism | @janism | Jun 24 9:31pm
In reply to @hmbrglr "How long were you on Fosamax before your symptoms progressed. I am having Gerd issues after..." + (show)
@hmbrglr

How long were you on Fosamax before your symptoms progressed. I am having Gerd issues after 7 mos. Bout I was taken off of Prolia because I had a rash and allergic reaction after my first year . Now I’m dealing with considering another or giving up.

Jump to this post

I was on Fosamax very briefly. I had severe GERD and got off of it right away.

REPLY
Michael Lavacot | @michaellavacot | Jun 24 10:35pm

@janism - For the best results, try to get Evenity after Tymlos. Evenity will move your hip to below -2.5 whereas Reclast will likely not be able to no matter how long you take it. Alternatively, you could move to Prolia, though I would REALLY try to get Evenity and hopefully be able to avoid Prolia.

REPLY
lizzie12 | @lizzie12 | Jun 25 6:57am

I was on Fosamax for 9 months when I developed severe acid reflux suddenly. I'm now on Reclast, had my first infusion 9/2024. Hydrated well before, during and after, took Tylenol after the infusion. Fortunately no side effects, maybe some tiredness that night and next day. Will have another in September.

REPLY
Please sign in or register to post a reply.