Synovial Sarcoma: forearm amputated. Now I have lung mets

Posted by s2017synovialsarcoma @s2017synovialsarcoma, Aug 26 2:35pm

I’ve been living with synovial sarcoma since 2017. In December 2018, I had to undergo an amputation of my left forearm where the original tumor was. For a while, I thought that was the end of my battle, but in 2022, we discovered another tumor in my lung. By January 2023, I had to go through a lobectomy. Unfortunately, the cancer kept coming back, again and again.

I’ve already gone through chemotherapy and different medications, and even tried herbal treatments since they’re common here in the Philippines. Sadly, nothing has really worked.

I’m just wondering: is there anyone out there going through the same thing?I just wanted to connect with you.

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mcwjr189 | @mcwjr189 | Aug 27 9:21am

I had a sarcoma removed from my liver 5 yrs ago. It metastasized to my right lung 2 years later and I had a lung resection. Six months later I had nodules in both lungs. I opted out of chemotherapy or radiation. I went to Immunocine in Cancun for dendritic cell therapy in November of 24. To date no new nodules and I feel great. I have a rescan in 2 weeks

cootiekim | @cootiekim | Sep 11 12:27pm

Yes, started with a large mass in my right thigh. was diagnosed in 2022 and then found out in june of 2024 that is had metastasized into my lungs. I had chemo for 6 rounds that took 6-7months. the cancer didn't spread or grow while on chemo but since being off it has been growing somewhat slowly. I have been seeing a homeopathic dr and feeling good but the oncologist wants to start me on Pazopanib. Im so worried about the side effects making me sick and not working. or working but the side effects kill me. Im thinking about getting another opinion. I live in Canada and think I need to reach out to some the the clinics in the US