Esophageal Cancer: Surgery Or Not?

Posted by rickho @rickho, Feb 19, 2024

I just completed my 8 Chemo and 28 radiation treatments with a follow up Pet Scan. My wife and I were excited with the images when compared to the 1st pet scan that showed cancer in the lower 3rd of the esophagus as well as in a couple of limpnodes located in the area. Our radiologist showed us the images and said it showed absolutely nothing now. We felt a EGD with a biopsy would be the next logical step but the surgeon who would be performing the surgery really wasn't receptive to it. She is probably the best in our area and performs a high volume of these surgeries annually. Her comment being "Even if the test comes back clear, the cancer returns 50 % of the time". So now I'm in the position of trying to make a decision to go with the surgery or not. I'm 70 years old, in good health. I'm just struggling with what I should do. I know it's not a easy surgery or recovery. I'm not afraid of the fight, I just don't know if I need to make it

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

@dsh33782

Alex
I was diagnosed with EC several years ago. I had 28 days of chemo and radiation. After 3 weeks, the tumor in my lower esophagus had shrunk 40%. And after treatment my scans showed the cancer was gone and my lymph nodes were back to normal. I did not have surgery. The treatments for cancer continue t improve so there is hope for a brighter future. Be aware the side affects are not fun and you may feel tired for a while. When do you start treatment?
Don

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I like to read about folk who have forgone the surgery. I was diagnosed back in Feb. with stage III EC, median squamous cell. I also turned down surgery, since the stats seem to show no survival benefit. Instead, I had proton radiation with adjuvant chemo. My chemo had to be cut short at 60% of the usual regimen because of a bad reaction to the drugs which landed me in the hospital. I chose MD Anderson, because cancer is all that they do. I have been through Mayo for lymphedema following failed PAD surgery, so I was in a position to evaluate both...

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Hi, Scott here this is a big decision. I did have surgery but I got all the information from my doctors oncologist and surgeons. Also other patients with esophagus cancer. Also family I wanted everyone’s opinion. It’s my decision overall I had surgery because it was going to have best results for me. I’m 19 weeks post operation. I’m doing well definitely a big change in eating I eat smaller meals more often so I keep my weight. I’m holding on to my weight. It definitely takes time also to get where I am. But I believe I made the right decision. Hope this helps you. Wish the best for you!

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Hi Gary. How are you today? I'm good because it's finally warm and sunny.
I understand that you are trying to decide whether to have esophageal cancer surgery.
Deb

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@etomami

I know when my husband finally came to terms with it in both his heart and his head to not proceed with surgery, he has been at peace. He is 1/2 way through his first 4 FLOT trtmts and doing ok! Tired, but ok. Prayers going out to you

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Hello, I hope everything works out for you. Definitely a very personal choice.

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@deserthykr

I decided this week, finally and definitely, to not have the surgery. What a weight has been lifted off my back and shoulders and head and heart!

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I know when my husband finally came to terms with it in both his heart and his head to not proceed with surgery, he has been at peace. He is 1/2 way through his first 4 FLOT trtmts and doing ok! Tired, but ok. Prayers going out to you

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@deb005

Hello, my husband had Ivor Lewis surgery also, 7 months ago..yes the surgery was rough, initially he held on to his weight reasonably well but has now lost 34lbs…he was tall and thin before his diagnosis so he couldn’t afford to lose any weight at all. He has recently been diagnosed with anorexia as hes struggling to gain any weight. We are booked in to see a surgeon closer to home in 12 days time…hoping he will get him sorted with a Jtube. This is such a struggle and no one has really done anything to help. His gp said he needs to have a protein supplement drink…3 a day but he hates it so will only have 1 daily. I’m praying the surgeon will insist on the Jtube…feeling very worried 😟 he also has dumping syndrome which doesn’t help and I’m finding preparing his meals a nightmare…

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Thank you for sharing. Prayers for you and your husband.

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@lionsfan

I meant to say minimally invasive. That's the optomist in me coming out. The incisions were a non-issue, but the overall recovery was difficult.

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Well as it was explained to us by the thoracic sx. Ivor Lewis sx, which is my husbands only sx option due to size and location of mass, is an 8 hr operation needing the assistance of a surgical oncologist. This is the sx he has declined due to recovery and quality of life. Do I agree??? Not my choice. I will honor and stand by his decision
We are 2 FLOT trtmts down 2 to go. Wait 6 wks for a PET then start radiation x 23 days with wkly chemo
So far he his swallowing and eating has improved. We appreciate all the comments and your stories. You are all in our prayers. One day at a time!!!

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@gdj

It wouldn't take my phone when I just tried.

Let's see if this works /

605-484-3319

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Thank you! I appreciate you being willing to talk to them so much! I have passed your number along to my friends and hope you all are able to connect!

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@courtney5

Thank you so much for being willing to take the time to speak with them! I apologize, I clicked on your profile and am unable to locate your contact information. Can you tell me how to navigate to your phone number?

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It wouldn't take my phone when I just tried.

Let's see if this works /

605-484-3319

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@goldenshadow

Hi my name is Scott. I have went through EC. I’m 62 my EC started Aug of 2024. Definitely scary at first my oncologist and surgeon were great. Very honest and up front. What made me feel better was that they were a team my case went through a tumor board. They discussed my case decided what treatment would work best for me. Flot treatment was used for me. Started with 4 treatments of chemotherapy every other week for 2 months. Then waited 5 weeks then surgery. Two surgical teams one for the front one for my right side. 9 hour surgery. Both surgeons talked to us in detail about how they would operate on me. I felt very comfortable because they made me comfortable. As in any surgery there can be complications. But I want to live. My determination to live is greater than my fears. My surgery went very well. My stay in the hospital was 8 days. First couple was tough I won’t lie. But once I put the work in breathing exercises and walks around the hospital at least 3 times a day. I got stronger and stronger that’s when I knew I was going to be ok. Also the nurses and doctors were great. They new I was serious about getting better. So after 7 days had my swallow check moment of truth. To see if there were going to be any leaks. There wasn’t any started to begin to drink broths and soups. Second day soft foods for about a week. Then started a little more like sandwiches no steak or chicken yet. But at least I could eat. It had been almost 8 months since I’ve eaten. I had a j tube that long because I couldn’t eat or drink anything. So for me surgery was very important. My surgery was Jan 3rd then waited 5 weeks had 4 more chemotherapy treatments same way every other week for 2 months. Got done April 4th. I feel better every day I take my walks every day. So far so good I get my scan first week of June. Hope this helps. I’m hoping the best for you!! What ever you decide.

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At age 62 I think surgery is a right decision; you hopefully have many years left. I'm considering a different decision at nearly age 79--depending on the outcome of my now-completed chemo/radiation treatment course.

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