Support for caregivers: I feel helpless not being able to fix things
It’s only my husband and I with a dog. My husband just went thru his first chemo infusion and he had a terrible week. I feel I’m doing everything wrong.
I feel helpless not able to fix this problem. Seeing loosing so much weight and with little energy, it breaks my heart.
Does anyone have recommendations on type of foods that can provide him with energy?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
With my husband it seemed his tastes changed all the time. What tasted "ok" one day could not be tolerated the next. For a while jello was something he liked. I made more jello that first month or two than I had in our 45+ years together.
I agree that the creon helps and he can at least get some benefit from what he does eat.
He looked forward to ham and augratin potatoes for Thanksgiving... but, did not eat any of the left overs. It really is a juggling act trying to get him to eat.
I leave a little bucket with fruit and protein drinks by the couch that he munches on each morning so at least I feel he is starting off with something in his stomach. But after that I think he eats to appease me... really isn't very interested in food. His doctor put him on mirtazapine to stimulate appetite and I think that helped. Also marijuana gummies helped with nausea and appetite.
My husband has regained the weight he lost, but I"m not sure if it is because of the things I mentioned, or that the gem/abrax drugs that he is currently on don't cause all the puking that the folfirinox did. Unfortunately his CA19-9 numbers are slowly increasing so I'm not sure what regimen will be introduced next... and what changes that will bring.
Good luck. You are not alone in this journey.
Don't get discouraged this is a terrible thing to watch a loved one go through and your reaction is normal.. Just be supportive and know that the best thing you can do for him is be there. Talk with your oncologist about what foods but as a general rule stay simple and eat smaller meals. Keeping you and your loved ones in my prayers. We are going through the same thing. He has lost a lot of weight as well. Feels very tired and miserable but hopefully it gets better for him. Don't hesitate to reach out it is a very lonely journey.
Hello,
I am in the same situation as you. Except we have have cats 😼. My husband also has pancan and lost so much weight. He had 14 rounds of chemo and radiation. All of these are so hard on the body. Does your husband take pancreatic enzymes? This was a game changer for us. My husband has a good appetite now and enjoys his food. This is all I can ask. He eats everything he loves. I try to bake or cook his favorites. When he was on chemo he liked eggs, soups, casseroles, ice cream especially. He isnt fond of protein drinks but if I made him a milkshake I could sneak some in without too much flavor change. I hope this helps a bit. I know how hard this whole thing is, but I treasure each day he feels well and enjoys the things he loves. Hugs and prayers for you both ❤️