Stomach bloating/ digestive issues
Hi. I have been having severe bloating and stomach pain for over a year now. I have been checked for SIBO and H-pylori. I have had a stomach CT, an ultrasound, endoscopy, colonoscopy, a hida scan, and a bunch of bloodwork done. The bloating and stomach pain are accompanied by exreme fatigue, hot flashes, and severe foot cramping. I was told over a year ago (after choking on food and some serious heartburn) that i have an impaired esophagus. I was placed on Emaprezale. The stomach issues continued to get worse. I was placed on more and more stomach medicine by primary care dr and GI. Nothing has helped. I was 125 lbs and i eat healthy and would work out regularly. I am now 140 lbs. I cannot workout because it causes stomach pain. Plus i am so tired i can barely make it through work. I went to see a naturopath after no success with GI. I was eventually put on an elemental det after other gut healing steps did not work. Even on the liquid diet the bloating continued, but i was not as tired. Eventually i crashed and needed to eat again. I had a food allergy and them avoided everything i wss told not to eat but this did not help. I was told i have gastritis and esophagitis but nothing they have done has helped how i feel. It is getting hard to make it through the day. I need help. I have had previous health issues including uterine fibroids that lead to bad blood hemoraging. I ended up having a hysterectomy . I had brain and spinal cord surgery 20 years ago for syringomyelia. I have had pancreas problems. I was told i had autoimmune problems including juvenile arthritis and sjogrens. Now i test negative for autoimmune problems but have lasting joint damage. I am 36. My rheumatologist told me i have the joints of someone 65 or older. I have been checked for pancreas issues but have no problems anymore. I am taking digestive enzymes but they ate not helping. Sorry for the long rant. Any suggestions???
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
Thank you at 66 and counting. I hate giving up yogurt but I will give it a try. It would be worth it.
I have gone Veggie except for seafood. I am going to call the Surgeon and see if he could meet me and explain why this is happening. I never ever had to worry about weight. I know I don’t get the exercise I should as I live in Oregon and we have had rain for probably 6 weeks straight. We had one day of sun and I immediately took my dogs for a walk on the beach. I know that I have not gotten around as much lately as my car was hit by a school bus making and illegal left turn in front of my car. Totaled my car. Had I been 5 seconds earlier, I would have had the school bus in my front seat. My legs and body were hurt and it makes for less exercise. But, this weight gain is ridiculous. I just pray it is not something else. Yogurt OUT
66andcounting
@66andcounting
@66andcounting
Posts: 12
Joined: Apr 06, 2017
I am so sorry. I wish I could say something that would make a difference. My hobby is cooking. Imagine my shock when I learned that I can no longer tolerate many of the foods I cherish. I’m getting over it ’cause I’m tired of being sick. In 2008, we retired & moved up to the upper part of Michigan. We started growing & raising all our own food. I knew the food we were eating wasn’t the food mom made 50-60 years ago. So I figured I couldn’t go wrong in my own organic farming methods. But the damage was already done. Downstate we lived in a farming area where crops were sprayed, chemicals from the local Ford plants were dumped, jet planes flying overhead every 5 minutes to the airport, cars billowing out pollution, you get the picture. I’ve always stayed at the same weight as I was in 8th grade. Yeah, I was diagnosed with non-Hodgkins lymphoma & the rest is history. My health is deteriorating, but I am determined to fight back. I try to stay active. I try to eat healthy, knowing that everything I buy from the grocery store is susceptible to who-knows-what. Try to remain positive. Know that we are the first generation who were born and raised in a chemical filled world. Shop at your local farmers market. Visit your local farms. Try other exercise options available to you. Remember, you’re doing this for yourself! Keep in touch. I do care.
My 20 year old son has been sufferding witht he bloating, stomach soarness, chest tighrening, acid reflux, and nauseousness. He has had stomach study done, Ultra sound, C.T Scan, and a barrium swallow also. Still he cannot get a diagnoises. We are going to his first appointment at Mayo Clinic in Scottsdale in June. He is so discouraged and seems depressed, which is totally understandable. I’m glad I found this way of connecting with people with like symtoms. I think it’s really good to talk to others and I will keep encouraging my son to read some po’sts. I
Liked by Colleen Young, Connect Director
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
My 20 year old son has been sufferding witht he bloating, stomach soarness, chest tighrening, acid reflux, and nauseousness. He has had stomach study done, Ultra sound, C.T Scan, and a barrium swallow also. Still he cannot get a diagnoises. We are going to his first appointment at Mayo Clinic in Scottsdale in June. He is so discouraged and seems depressed, which is totally understandable. I’m glad I found this way of connecting with people with like symtoms. I think it’s really good to talk to others and I will keep encouraging my son to read some po’sts. I
Let us know how your son’s appt goes.
Nanny23
@nanny23
@nanny23
Posts: 48
Joined: May 23, 2017
@lizwhite80 , Hi there. Did your Dr say anthing to you about IBS? I was diagnosed at age 21. Iam 65 now. And it has been an uphill battle practically the whole time. I also have GERD and gastroparesis, Diabetes 2, hypothyroidism and a couple other things. I am negative for Sjogrens thank God. I suffered with my stomach until i was prescribed Tagamet and Bentyl in the early 80’s. I would have the bloating and pain and Bentyl took care of it. Do your bowels ever work at odds? Like constipation one day and diarrhea the next? Or, it doesn’t have to work that way for you to be diagnosed with Irritable Bowel Syndrome. You can have chronic constipation or chronic diarrhea with IBS. it can play havoc with your life. I cannot do without my PPI or my Bentyl. Or have you been to see your gynecologist? I have heard that bloating is a classic symptom of ovarian cancer. I am overdue for my gyno appt. Good luck Liz, keep looking. Btw, stress will make your stomach worse. So take care of yourself and let me know what the doctors are saying. Love, Judy
I have had bloating and stomach issues my whole life. I’m 67 now but they started as a teen. I now have an ulcer they took forever to finally find. Am taking protonix for it but still have symptoms. Hope you find an answer and feel better.
Liked by Kanaaz Pereira, Connect Moderator
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
@lizwhite80 , Hi there. Did your Dr say anthing to you about IBS? I was diagnosed at age 21. Iam 65 now. And it has been an uphill battle practically the whole time. I also have GERD and gastroparesis, Diabetes 2, hypothyroidism and a couple other things. I am negative for Sjogrens thank God. I suffered with my stomach until i was prescribed Tagamet and Bentyl in the early 80’s. I would have the bloating and pain and Bentyl took care of it. Do your bowels ever work at odds? Like constipation one day and diarrhea the next? Or, it doesn’t have to work that way for you to be diagnosed with Irritable Bowel Syndrome. You can have chronic constipation or chronic diarrhea with IBS. it can play havoc with your life. I cannot do without my PPI or my Bentyl. Or have you been to see your gynecologist? I have heard that bloating is a classic symptom of ovarian cancer. I am overdue for my gyno appt. Good luck Liz, keep looking. Btw, stress will make your stomach worse. So take care of yourself and let me know what the doctors are saying. Love, Judy
I had gall bladder surgery. Prior to surgery I was 128 lbs. I am now 160. Horrible. I keep thinking something is wrong. I keep my calories at no more than 1000 daily. I do have glass of wine now and then. It must be 100% sugar.
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
WoW! You sound almost like me! I was diagnosed with Waldenstrom Macroglobelemia in 2015. Watch & Wait is where I am currently. However, I, too, have bloating, cramps, & diarrhea almost daily. Went to see my Dr. who sent me to a specialist. He wants to do all the tests they did 2 years ago … again! Not fun. I’m not convinced the tests will show anything … again! Currently I am on a restrictive diet, meat, potatoes, & rice. No gluten, lactose, fruits, or veggies. I’m afraid to eat. Always eat at home. Everything comes from our own farm (fruits, meat, veggies). I want to blame my cancer for my intestinal problems, but every Dr. I’ve been to says it’s not related. Can’t make any plans ’cause I never know from day to hour what’s going to happen. Any help or suggestions?
I have RA on top of bloating stomach. I have been told calories are the biggie not exercise. Of course I have to be careful walking so exercise is when I walk my dogs. Slowly
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
Well, I just wrapped up an Easter dinner sans gluten, lactose, fruits, & veggies! Go figure! 🙁 Can’t say I’m happy about it, but I sure am determined to stay away from anything that MIGHT be the culprit of my inner problems. I will even admit that I didn’t overeat! WoW! That’s a milestone! Anyway, I don’t think I’m going to go thru the digestive tests the Dr. is recommending. I just don’t think I can go thru them anymore. I guess it’s my body & I have to feel comfortable with what’s done to me. Anybody been there – done that?
I have to avoid gluten and no nightshade veggies because of RA
Nanny23
@nanny23
@nanny23
Posts: 48
Joined: May 23, 2017
Thank you at 66 and counting. I hate giving up yogurt but I will give it a try. It would be worth it.
I totally agree that they are poisoning our foods. All these GMO’S can’t be good for any of us. I get sick everytime I eat but have an ulcer and can’t go without food or the ulcer hurts. I can’t win. Someday I’ll find an answer I’m determined to
@lizwhite80 , Hi there. Did your Dr say anthing to you about IBS? I was diagnosed at age 21. Iam 65 now. And it has been an uphill battle practically the whole time. I also have GERD and gastroparesis, Diabetes 2, hypothyroidism and a couple other things. I am negative for Sjogrens thank God. I suffered with my stomach until i was prescribed Tagamet and Bentyl in the early 80’s. I would have the bloating and pain and Bentyl took care of it. Do your bowels ever work at odds? Like constipation one day and diarrhea the next? Or, it doesn’t have to work that way for you to be diagnosed with Irritable Bowel Syndrome. You can have chronic constipation or chronic diarrhea with IBS. it can play havoc with your life. I cannot do without my PPI or my Bentyl. Or have you been to see your gynecologist? I have heard that bloating is a classic symptom of ovarian cancer. I am overdue for my gyno appt. Good luck Liz, keep looking. Btw, stress will make your stomach worse. So take care of yourself and let me know what the doctors are saying. Love, Judy
Hello! My doctor had me do an allergy test which said to cut out gluten, dairy and eggs. I have been feeling much better cutting out these. Still get pretty bloated and have issues, but I feel much better than before. I went to a different doctor who suggested a low food map diet for IBS. She said it manifests differently in people. Anyways, made me think of your comment. How are you doing?
Texas Freedom
@oregongirl
@oregongirl
Posts: 751
Joined: Mar 04, 2017
@lizwhite80 , Hi there. Did your Dr say anthing to you about IBS? I was diagnosed at age 21. Iam 65 now. And it has been an uphill battle practically the whole time. I also have GERD and gastroparesis, Diabetes 2, hypothyroidism and a couple other things. I am negative for Sjogrens thank God. I suffered with my stomach until i was prescribed Tagamet and Bentyl in the early 80’s. I would have the bloating and pain and Bentyl took care of it. Do your bowels ever work at odds? Like constipation one day and diarrhea the next? Or, it doesn’t have to work that way for you to be diagnosed with Irritable Bowel Syndrome. You can have chronic constipation or chronic diarrhea with IBS. it can play havoc with your life. I cannot do without my PPI or my Bentyl. Or have you been to see your gynecologist? I have heard that bloating is a classic symptom of ovarian cancer. I am overdue for my gyno appt. Good luck Liz, keep looking. Btw, stress will make your stomach worse. So take care of yourself and let me know what the doctors are saying. Love, Judy
Amazing what our diet can do. I rarely eat eggs. Maybe 2 a year. Unfortunately, I became a vegitarian. I miss meat. But if I eat it, I must be slow as my system has had “fake” food for so long. Today I am feeling so good, that I am lying around watching You tube and just enjoying a day with no pain. Not yet anyway.
CL
@lelia
@lelia
Posts: 150
Joined: Sep 18, 2014
Get tested for fructose malabsorption and lactose intolerance.
Liked by Jackie, Volunteer Mentor
Hi
I feel your pain. I have been dealing with severe pain in the top part of my stomach. I eat and I am sick. The pain shoots up. My dr keeps giving me RX and nothing works. I have been on Omoperxole for 20 plus years I’ve had colonoscopy and gastro. I am now waiting to go fir an IV CT and also waiting to get into a new gastro dr. I’m at the end of my rope. I stopped eating everything just liquids. I wish someone had answers too for why this is happening. I’ve had my gall bladder out too.
Robin
I have been suffering from indigestion for years now. Many hours after consuming a meal, I still feel full and heavy. Sometimes I can feel the food up my chest.
Let me also add that I don't usually experience free bowel movement. It take about 3 to 4 days for me to poo. So virtually all that I consume remains inside of me.
I am now overweight because of this situation. I have tried observing intermittent fasting just to reduce my food consumption. But lately I have started experiencing burning feelings on my stomach (I hope it's not ulcer).
What can I do
@66andcounting
It’s a shame that we are all getting so sick! I can’t help thinking it’s all the poisons “they” have put in our foods, drinks, environment, water, soil, etc. Yep, they poisoned us for their own profits & now we pay the price. Hope the yogurt ban works. It has helped me.
Liked by Ryman